Joe--PA

[Guest guest]

Joe, My daughter grew PA for a while. She is six now, and has not grown it

for 2 or 3 years. It can be hard to get rid of. I am a little surprised

that the doctors haven't kept your daughter on a TOBI schedule, 28 days, 28

days off, until she has several clear cultures in a row. PA is bad stuff,

and you want to be totally rid of it. We did TOBI (on/off on the 28-day

schedule) for close to two years. My daughter also was very healthy even

while culturing positive for PA.

Good luck and let us know what happens.

Lori (in Tallahassee)

Message: 2

Date: Fri, 16 May 2003 16:07:14 -0000

Subject: throat culture

My 9 month old daughter, Abby had her 2nd clinic visit Tues. She had

grown PA from the bronchoscopy that was done when she was diagnosed 4

mos. ago. They said they'd eradicated it with the treatment she

received in the hospital (tobra IV, Tobi, Timentin). She grew none

from throat culture at discharge nor at her clinic in March. The

culture done Tues. has grown " a few non-mucoid gram neg. rods " that

they want to grow out over the wknd. to make sure but they think it's

probably PA. I understand the difference between mucoid and non-

mucoid and that this is what they call " intermittent " colinization.

They'll put her back on Tobi for 28 days. I've asked why she has

this and what does it mean. My doctor said that the reason some get

it easier is because of the difference in mucous. Her's is obviously

the right medium for it to grow. What I wonder is this: How common

is it for a CF baby like Abby to grow PA? How many of your chilren

have grown it? I want to know how serious this is so we can decide

whether or not to seek other opinions on her treatment. She is in

the 90th percentile in her wt. and is the picture of health right

now. She's had only one little cough since Feb 1st that Augmentin

and Tobi cleared completely in less than a week, although we

completed the course of Tobi. She just finished it 3 weeks ago.

Please let me know your opinions. Thanks.

Joe Reams

Father of Kelsi 6 wo/cf, Chloe 2 wo/cf and Abby 9mos.w/cf

grosehsd@...