Re: Orion's genetics are in/Hang in there....

May 14, 2003

I guess b/c he is so little the docs did the DNA test first. When

our boys were tested I thought I was going to go crazy while we

waited for the results.

Easier said than done, but hang in there, my thoughts are with you.

mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf

> Well we got his genetic results back and he's at least a carrier.

Since the

> other gene is unidentifed we're going to have to go get his sweat

chloride

> test done the 22nd. I was so hoping they'd call us and say " Mrs.

Arnold no

> genes were detected, so he doesn't have cf but could still be a

carrier "

> BUT nothing can be that simple with us. On the plus side, he's

growing just

> fine but on that note so did Phynix untill he was 6 months old.

It's so

> hard not to get my hopes up, someone please tell me there is hope

out there?

> I feel like throwing in the towel and saying screw it! WE shall

see what

> we shall see. Really need some low numbers vibes.

>

> Jen A. mom to 4, Yoli 3, Phynix 1 all w/cf and Orion 1 month

pending

> results.

>

> _________________________________________________________________

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