kayla

[Guest guest]

In a message dated 4/30/2003 9:46:54 AM Central Daylight Time,

jenny_mav@... writes:

> I know i don't post alot, but i do lurk and read

> everyday. I need some advise though and I'm hoping

> another CF parent has experienced this. Kayla is 13

> and 68lbs and has missed about 60 days of school so

> far this term. She has massive bowel problems and has

> been hospitalized constantly as they are still trying

> to figure out why. We haven't been in hospital since

> March due to SARS but they do have her on a waiting

> list for a biopsy of her colon in Toronto. Still, as

> we are home now she still can't make it through a

> school day without severe pain and coming home.

>

> Last night poor Kayla taped paper on her door saying

> she wished she was dead and never had CF. It is

> getting hard on her not to be like other kids. How

> could I possibly comfort her at such a terrible time

> in her life. She hates to miss school. She says she

> just wants to be normal. My heart breaks for her.

> Thanks for listening

> Jen

>

> =====

>

> Jen & dh Mike

> Kayla 13, 12, 9

>

I don't have any advise because my girls don't have problems with there

bowels but I just want you to know I feel for you. It is really hard for and

for her! I hope they can figure out soon what is going on with Kayla. Deb A

[Guest guest]

Has she been tested for Crones(sp?)I think there is an h in that word but I

couldn't figure where to put it.I know a few other kids who have cf on this

list were dx'd with it.BeckyB

[Guest guest]

Best of luck to Kayla; please do let us all know what the results are and

how she does get through it--maybe you will finally have some help for

her!

Love to you and to Kayla,

n Rojas, the endoscopy/colonoscopy test pilot!