Re: Vitamin E levels too high

[Guest guest]

Thanks

Liz <lizlaw@...> wrote: You have to go to a GI. It is

tricky. Both my kids pooped daily and the

disrrhea and the constipation were not always present or obvious. Since

kids eat different on different days it is tough to see. The

malabsorption folder may be helpful to you.

Luce wrote:

>How is it determined that a child has gut issues, what are the symptoms?

>

>Janice <jscott@...> wrote: Becky,

>

>While I know that my son has gut issues, I don't believe that he has extensive

malabsorbtion issues. Why? Because he is growing and is about the same size as

his peers (even if a little skinny but not crazy skinny)!

>

>Is your daughter average height and weight for her age? If so, that could be a

reason why Dr. Usman is ruling out malabsorption. Of course, this does not mean

that she does not need 'more' of some things and less of others.... I was under

the impression that the kids with severe malabsorption issues looked like the

'starving children poster kids'.

>

>Just a thought...

>

>Janice

>

> [sPAM] [ ] Re: Vitamin E levels too high

>

>I will talk with Dr. Usman again about the malabsorption issue. We

>talked about so much during the 90 minutes and I don't remember why

>she didn't think it was an issue for . She really is a great

>doctor and I don't want anyone to get the wrong impression from my

>comments.

>

>Becky

>

>

>>>>>

>>>>>

>>>>>

>>>>>>Have you also been doing supplements/therapy for gut

>>>>>>

>>>>>>

>healing?

>

>

>>>>>>Perhaps as the gut heals, he's absorbing more E than he

>>>>>>

>>>>>>

>was

>

>

>>>before

>>>

>>>

>>>>>>and now no longer needs the high dose.

>>>>>>

>>>>>>

>>>

>>>

>>>

>>>

[Guest guest]

Not Janice but I think you pay them and then try with your insurance. If

not you can write it off I think, if in excess of $2000 paid toward

medical total. That used to be the rule. I am sure, like all of us, you

are in excess of the $200 with copays, etc.

Gene and Aggie Birocco wrote:

>Janice...

>Do you do private speech and ot in addition to nacd? The fees are very

reasonable by comparison to what we are paying in co-pays now. Do they take

insurance? I guess not if it is non profit. Aggie

> [sPAM] Re: [ ] Re: Vitamin E levels too high

>

> Don't get me started on NACD. I want to be on their team but the cds

> never showed up and I ordered them forever ago and inquired and no response!

>

> bscmommy wrote:

>

> >Liz - I agree with you - there is a gut/brain connection. Remember

> >the old addage " you are what you eat? " well, we are all proving

> >that saying on this board. Just look at how our kids act/react when

> >they are fed something they don't tolerate. Then add in

> >preservatives, pesticides, growth hormones, antibiotics via food,

> >ect, and we wonder why so many kids have so many labels now days?

> >

> >Hang in there Janice, you can heal your son's gut - look at

> >everything else you've done!! Thanks to you, we have an appt. for

> >our initial eval with NACD in September. I have high hopes.

> >Stephanee

> >

> >

>

>

[Guest guest]

,

Firstly, I would try an elimination diet to see if your child is a 'responder'.

Eliminate milk products and see if your child's appraxic symptoms, general

health, and especially hearing improves. In order to find out whether casien

(milk) is an issue, you need to eliminate ALL milk products (including milk in

breads, and other foods) for a minimum of 3 weeks. After 3 weeks, go on a major

milk binge and see what happens. Does your child get dopey, hard of hearing,

bleary eyed (or a glazed look), clumsy, ill-tempered, etc. Note that you should

not use Soy as a substitute to milk products as it often affects the system in

the same way.

I did approximately 9 years of therapy that did not really take hold until we

removed casien. It was only when we did this with my son that he began to

respond to therapy. Little did I know that he was allergic to milk products and

these were congesting his ears, creating foul smelling breath, disrupting his

balance and affecting his fine and gross motor skills and development as well as

chronic diarhea/constipation.

There is an opoid response in kids who are not digesting milk/gluten correctly.

For kids who lack digestive enzymes DPP IV, the milk acts like morphine to the

system. Basicly, your kid is stoned. They call it the casio-morphine response

or the gluta-morphine response (spelling may not be correct). As I understand

it the milk is not being digested in the stomach and after a time, intestinal

permeability is created allowing for the peptides to be released into the system

and thus affect the brain with neurological outcomes. If you think about how

alcohol affects our abilities, this is not such a stretch because the proteins

in milk and gluten are very similiar to those of morphine and thus the brain is

responding in the same way.

Because casien is easier to remove from the system and the response is easier to

see, it is generally recommended that you remove casien first and then see how

the child performs/responds. Gluten takes anywhere from 3 to 6 months to be

completely eliminated from the system so it takes quite a long while to see

results and realize whether or not your child is a diet responder. We are only

in month 2 of gluten free so I will defer to the old-timers to give you advice

here.

My son had a truck-load of regular diarhea which was only alleviated by removing

dairy products from his system. He also suffers from chronic constipation which

remains a work in progress but seems to be disappearing with the elimination of

gluten. We have not finished our gluten free trial yet so I cannot accurately

comment on what gluten does to him.

So many of these kids have issues with casien that the norm is casien free at

the very minimum. In particular if your child has speech and auditory

processing issues. That milk can really congest those ears and our kids are

simply not hearing acurately for much of the time even though they often pass

auditory testing; the hearing is often coming/going to very hard to catch on a

diagnostic. The results have been so worth it for my son! The ability to hear

lends to the ability to speak, process and communicate effeciently with others.

If the ears are all plugged up, balance is affected. If balance is affected,

then gross motor abilities become delayed. If gross motor abilities become

delayed in development, then fine motor abilities become delayed as fine motor

does not really come in until after gross motor. Unknown to me, my sons lips,

tongue, hands and arms were all 'numbed' by milk products. For him, this was

just 'normal' until he was free of it and could tell me the difference. First

thing to 'go' for my child when consuming milk is his ability to hear and his

articulation in speech. Everything gets really slurry and saliva like. It's

astonishing to witness. (and somewhat horrifying)

Hope this helps you to understand why everyone is discussing food and poop for

our kids with speech issues! We do talk therapy too so if you have therapy

questions, don't hesitate to ask. I've been doing therapy with my son for many,

many years!

Janice

[sPAM] Re: [ ] Re: Vitamin E levels too high

You have to go to a GI. It is tricky. Both my kids pooped daily and the

disrrhea and the constipation were not always present or obvious. Since

kids eat different on different days it is tough to see. The

malabsorption folder may be helpful to you.

Luce wrote:

>How is it determined that a child has gut issues, what are the symptoms?

>

[Guest guest]

ooooh, interesting....

I wonder what I will discover with Mark. Our doctor appointment is in

September. I'm almost frightened about what I'll find out but I need to

know....

Janice

[sPAM] [ ] Re: Vitamin E levels too high

My son has lab confirmed malabsorption and is in the 95% for both

height and weight. He's thin, but no thinner than some of the other

kids in his class. He is taller than most of the kids. Looks can be

deceiving.

> > > > >

> > > > > >Have you also been doing supplements/therapy for gut

> healing?

> > > > > >Perhaps as the gut heals, he's absorbing more E than he

> was

> > > before

> > > > > >and now no longer needs the high dose.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Considering what you have dealt with in the past twelve years...think of

it this way....whatever they learned is not a new diagnosis but rather a

newly recognized part of a problem you have already been solving

blindly. It will be a good thing in the end.

Janice wrote:

>ooooh, interesting....

>

>I wonder what I will discover with Mark. Our doctor appointment is in

September. I'm almost frightened about what I'll find out but I need to

know....

>

>Janice

>

>

> [sPAM] [ ] Re: Vitamin E levels too high

>

>

> My son has lab confirmed malabsorption and is in the 95% for both

> height and weight. He's thin, but no thinner than some of the other

> kids in his class. He is taller than most of the kids. Looks can be

> deceiving.

>

>

> > > > > >

> > > > > > >Have you also been doing supplements/therapy for gut

> > healing?

> > > > > > >Perhaps as the gut heals, he's absorbing more E than he

> > was

> > > > before

> > > > > > >and now no longer needs the high dose.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks again Janice...you answered them. We are seriously considering it. I

think the east coast would be better for us since it will mean going there 4

times a year. Aggie

[sPAM] Re: [ ] Re: Vitamin E levels too high

Don't get me started on NACD. I want to be on their team but the cds

never showed up and I ordered them forever ago and inquired and no response!

bscmommy wrote:

>Liz - I agree with you - there is a gut/brain connection. Remember

>the old addage " you are what you eat? " well, we are all proving

>that saying on this board. Just look at how our kids act/react when

>they are fed something they don't tolerate. Then add in

>preservatives, pesticides, growth hormones, antibiotics via food,

>ect, and we wonder why so many kids have so many labels now days?

>

>Hang in there Janice, you can heal your son's gut - look at

>everything else you've done!! Thanks to you, we have an appt. for

>our initial eval with NACD in September. I have high hopes.

>Stephanee

>

>

[Guest guest]

At the Institutes, you go for a week of training and then design your own

program. I needed more structure and assistance than that. NACD holds my hand

every time we run into real trouble. If I don't like a part of my program, I

just call and they make adjustments. It takes self-discipline to carry out a

home program, I certainly would not have had the expertise to design it as well!

NACD is a family. When we went to the Rendezvous this spring, there was an

outpouring of tenderness for our kids that I have never seen in any of the

therapists or specialists that we have gone to in the past. By the time we

left, I was confident that Mark could be a brain surgeon someday if that was

what he wanted! There was no money charged for any of the workshops or

seminars.... everything was free and for the children.

I don't see the 2 organizations as completing with each other but I guess

technically they are. But, there is a relationship since The Institutes was

founded by Bob Doman's (NACD) Uncle and his dad and is currently being run by

the children of Glen Doman. The Institutes is much older than NACD being

founded way back in the 60's. You may find a lot of negative press on the

internet with regard to the Institutes since they have been around since the

60's and were the first to try to rehabilitate children rather than

institutionalize them. Standard medicine didn't like that and took pains to try

to dubunk their methods. But.... the original research on this actually comes

from Stroke patients and recovering the brain and neural pathways for our

children is done in the same way. Many sensory programs out there today use the

same approach/principles that these early pioneers developed.

NACD will have you use all different types of therapy products. I used

Talktools program, the writing CLAW (awesome item for Mark), and all sorts of

stuff.... most of which did not cost money but was 'homemade' therapy items that

are easy to do. They will encourage the use of typing programs, school programs

and are always on the 'hunt' for the most innovative products and ideas out

there that help our kids with therapy.

I need that.... especially since I spend so much time talking on this board!!!

Hope this answers your questions,

Janice

[sPAM] Re: [ ] Re: Vitamin E levels too high

Don't get me started on NACD. I want to be on their team but the cds

never showed up and I ordered them forever ago and inquired and no response!

bscmommy wrote:

>Liz - I agree with you - there is a gut/brain connection. Remember

>the old addage " you are what you eat? " well, we are all proving

>that saying on this board. Just look at how our kids act/react when

>they are fed something they don't tolerate. Then add in

>preservatives, pesticides, growth hormones, antibiotics via food,

>ect, and we wonder why so many kids have so many labels now days?

>

>Hang in there Janice, you can heal your son's gut - look at

>everything else you've done!! Thanks to you, we have an appt. for

>our initial eval with NACD in September. I have high hopes.

>Stephanee

>

>

[Guest guest]

>

> >ooooh, interesting....

> >

> >I wonder what I will discover with Mark. Our doctor appointment

is in September. I'm almost frightened about what I'll find out but

I need to know....

> >

> >Janice

> >

[Guest guest]

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>>Hi everyone,

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>We just got results from our DAN doctor, who told us

to

> > >>>>

> > >>>>

> > >stop

> > >

> > >

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >giving

> > >>>> >

> > >>>> >

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>our

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>>daughter Vitamin E, because her levels were too high.

We

> > >>>>

> > >>>>

> > >saw

> > >

> > >

> > >>>>

> > >>>>

> > >>>>

> > >>>>

> > >>>good

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>> >>>>results from increased Vitamin E, so I don't want to

take

> > >>>>

> > >>>>

> > >her

> > >

> > >

> > >>>>

> > >>>>

> > >>>>

> > >>>>

> > >>>off

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>it.

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>>What does it mean if her levels are too high? Could

this

> be

> > >>>>

> > >>>>

> > >a

> > >

> > >

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >sign

> > >>>> >

> > >>>> >

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>of

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>>malabsorption? Our DAN doctor doesn't think that she

has a

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >problem

> > >>>> >

> > >>>> >

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>with

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>

> > >>>> >>>>malabsorption. I'm confused. I'm thinking about just

> > >>>>

> > >>>>

> > >lowering

> > >

> > >

> > >>>>

> > >>>>

> > >>>>

> > >>>>

> > >>>the

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>> >>>>dosage. Any suggestions?

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>Take care,

> > >>>> >>>>

> > >>>> >>>>Becky McFarland

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

> > >>>> >>>>

[Guest guest]

I womder if new labs will show inflammation or if something else is at

play as articulation is the last of our deal.

claudia.morris wrote:

>

>> >>>

>> >>>

>> >>>

>> >>>

>> >>>>Hi everyone,

>> >>>>

>> >>>>

>> >>>>

>> >>>>We just got results from our DAN doctor, who told us to stop

>> >>>>

>> >>>>

>> >giving

>> >

>> >

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>our

>> >>>

>> >>>

>> >>>

>> >>>

>> >>>>daughter Vitamin E, because her levels were too high. We saw

>>

>>

>good

>

>

>> >>>>results from increased Vitamin E, so I don't want to take her

>>

>>

>off

>

>

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>it.

>> >>>

>> >>>

>> >>>

>> >>>

>> >>>>What does it mean if her levels are too high? Could this be a

>> >>>>

>> >>>>

>> >sign

>> >

>> >

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>of

>> >>>

>> >>>

>> >>>

>> >>>

>> >>>>malabsorption? Our DAN doctor doesn't think that she has a

>> >>>>

>> >>>>

>> >problem

>> >

>> >

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>with

>> >>>

>> >>>

>> >>>

>> >>>

>> >>>>malabsorption. I'm confused. I'm thinking about just lowering

>>

>>

>the

>

>

>> >>>>dosage. Any suggestions?

>> >>>>

>> >>>>

>> >>>>

>> >>>>Take care,

>> >>>>

>> >>>>Becky McFarland

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>>

>> >>>>