Re: Vitamin E levels too high

August 20, 2007

What were the levels? My son's levels are a little higher than

the " normal " reference values that are provided from the lab.

His last Vit E plasma levels I had done were 28.2mg/L (alpha

tocopherol). Normal reference from the lab sheet is 2.4 - 20 mg/L.

I'm not about to take him off it.

>

> Hi everyone,

>

> We just got results from our DAN doctor, who told us to stop giving

our

> daughter Vitamin E, because her levels were too high. We saw good

> results from increased Vitamin E, so I don't want to take her off

it.

>

> What does it mean if her levels are too high? Could this be a sign

of

> malabsorption? Our DAN doctor doesn't think that she has a problem

with

> malabsorption. I'm confused. I'm thinking about just lowering the

> dosage. Any suggestions?

>

> Take care,

>

> Becky McFarland

>

August 20, 2007

Her levels were 29.1 mg. The lab had 3.0 - 15.8 as the reference range.

Have other people had reports of high levels, but still continued to use

Vitamin E?

Thanks,

Becky

August 21, 2007

Have you also been doing supplements/therapy for gut healing?

Perhaps as the gut heals, he's absorbing more E than he was before

and now no longer needs the high dose.

>

> Hi everyone,

>

> We just got results from our DAN doctor, who told us to stop giving

our

> daughter Vitamin E, because her levels were too high. We saw good

> results from increased Vitamin E, so I don't want to take her off

it.

>

> What does it mean if her levels are too high? Could this be a sign

of

> malabsorption? Our DAN doctor doesn't think that she has a problem

with

> malabsorption. I'm confused. I'm thinking about just lowering the

> dosage. Any suggestions?

>

> Take care,

>

> Becky McFarland

>

August 21, 2007

Wow. What an interesting theory. Would the plasma level help confirm or

deny this?

bigcheech91 wrote:

>Have you also been doing supplements/therapy for gut healing?

>Perhaps as the gut heals, he's absorbing more E than he was before

>and now no longer needs the high dose.

>

>>Hi everyone,

>>

>>We just got results from our DAN doctor, who told us to stop giving

>>

>our

>

>>daughter Vitamin E, because her levels were too high. We saw good

>>results from increased Vitamin E, so I don't want to take her off

>>

>it.

>

>>

>>What does it mean if her levels are too high? Could this be a sign

>>

>of

>

>>malabsorption? Our DAN doctor doesn't think that she has a problem

>>

>with

>

>>malabsorption. I'm confused. I'm thinking about just lowering the

>>dosage. Any suggestions?

>>

>>Take care,

>>

>>Becky McFarland

>>

August 21, 2007

For Becky - why does the doctor believe she is not malabsorbing?

Maybe she is, maybe she isn't, but it's hard to tell unless you do a

stool test (pH, reducing substances & fecal fat (sudan stain) for a

start). My son's stool usually floats & smells terrible. He is very

tall for his age but is skinny as a rail without an ounce of fat on

him, despite the fact that I have never decreased his fat intake.

For Liz - Yes, plasma levels would tell you. If the gut heals and

absorption increased, then you would see higher levels of plasma Vit

E.

I never got baseline plasma levels, but my son's levels barely

changed just one point from when he was on 200IUs vs 1200IUs (24.7

and 25.8 respectively). But the change in the kid neurologically was

astounding. Same with 's son - his plasma levels stayed

almost the same no matter what level of Vit E he was on, but as she

went higher he healed neurologically.

> >

> >>Hi everyone,

> >>

> >>We just got results from our DAN doctor, who told us to stop

giving

> >>

> >our

> >

> >>daughter Vitamin E, because her levels were too high. We saw good

> >>results from increased Vitamin E, so I don't want to take her off

> >>

> >it.

> >

> >>

> >>What does it mean if her levels are too high? Could this be a

sign

> >>

> >of

> >

> >>malabsorption? Our DAN doctor doesn't think that she has a

problem

> >>

> >with

> >

> >>malabsorption. I'm confused. I'm thinking about just lowering the

> >>dosage. Any suggestions?

> >>

> >>Take care,

> >>

> >>Becky McFarland

> >>

August 21, 2007

See, that is just the thing. I think the progression is...gut damage,

then neurological deficits. As the gut heals you get more neuro gains

(gross motor first, then fine motor, then language and planning I think

that is the way it goes???) then by the time the gut is totally healed

so is the neuro stuff as long as nothing was gone too long, in some way

permenently harmed or genetically affected. This is a sweeping theory I

put together from GI and OT conversations and lots of reading. I am not

even close to knowing if it is true and probably never will. This is a

guess by an interested mom and that is all. If I did I am sure I could

afford to give the $ for that study we need. Anywho, if anyone

knows if this is right or wrong or patly both, please chime in.

L

wrote:

>For Becky - why does the doctor believe she is not malabsorbing?

>Maybe she is, maybe she isn't, but it's hard to tell unless you do a

>stool test (pH, reducing substances & fecal fat (sudan stain) for a

>start). My son's stool usually floats & smells terrible. He is very

>tall for his age but is skinny as a rail without an ounce of fat on

>him, despite the fact that I have never decreased his fat intake.

>

>For Liz - Yes, plasma levels would tell you. If the gut heals and

>absorption increased, then you would see higher levels of plasma Vit

>E.

>

>I never got baseline plasma levels, but my son's levels barely

>changed just one point from when he was on 200IUs vs 1200IUs (24.7

>and 25.8 respectively). But the change in the kid neurologically was

>astounding. Same with 's son - his plasma levels stayed

>almost the same no matter what level of Vit E he was on, but as she

>went higher he healed neurologically.

>

>>>

>>>>Hi everyone,

>>>>

>>>>We just got results from our DAN doctor, who told us to stop

>>>>

>giving

>

>>>>

>>>our

>>>

>>>>daughter Vitamin E, because her levels were too high. We saw good

>>>>results from increased Vitamin E, so I don't want to take her off

>>>>

>>>it.

>>>

>>>>What does it mean if her levels are too high? Could this be a

>>>>

>sign

>

>>>>

>>>of

>>>

>>>>malabsorption? Our DAN doctor doesn't think that she has a

>>>>

>problem

>

>>>>

>>>with

>>>

>>>>malabsorption. I'm confused. I'm thinking about just lowering the

>>>>dosage. Any suggestions?

>>>>

>>>>Take care,

>>>>

>>>>Becky McFarland

>>>>

August 21, 2007

That isn't far fetched at all - that is exactly what happens with

Celiac Disease. Remove the gluten, heal the gut and the nutrients

that weren't getting through before are able to get through. The key

is to catch it early so that permanent damage due to malnutrition

doesn't occur.

Only, with some of the apraxia children, it isn't that simple.

's ph has been GF his whole life. Something else is

causing the malabsorption, and no one knows what that " something

else " is. And even though he is malabsorbing, there may still be a

malfunctioning Vit E transport mechanism that hasn't even been

discovered yet. That is what I'm sure is happening with Elliott.

> >>>

> >>>>Hi everyone,

> >>>>

> >>>>We just got results from our DAN doctor, who told us to stop

> >>>>

> >giving

> >

> >>>>

> >>>our

> >>>

> >>>>daughter Vitamin E, because her levels were too high. We saw

good

> >>>>results from increased Vitamin E, so I don't want to take her

off

> >>>>

> >>>it.

> >>>

> >>>>What does it mean if her levels are too high? Could this be a

> >>>>

> >sign

> >

> >>>>

> >>>of

> >>>

> >>>>malabsorption? Our DAN doctor doesn't think that she has a

> >>>>

> >problem

> >

> >>>>

> >>>with

> >>>

> >>>>malabsorption. I'm confused. I'm thinking about just lowering

the

> >>>>dosage. Any suggestions?

> >>>>

> >>>>Take care,

> >>>>

> >>>>Becky McFarland

> >>>>

August 21, 2007

See, that malfunctioning transport is not what I think is happening with

my guy. His fish oil, what little he gets, never seems to wear off. We

may just have celiac (genetic test is Friday) and a milk issue and a gut

in the process of healing that never got enough E and got less after

GFCF. I also wonder if soy in the E supplements can help my guy which I

did not think before and is why I never supplemented E. does not

have a soy issue from my diet studies. From what Vicky says about

estrogen " saving " some of the girls from worse fates, trace soy and soy

in the E supplement, should we find we have to supplement, is no longer

a huge deal for me.

wrote:

>That isn't far fetched at all - that is exactly what happens with

>Celiac Disease. Remove the gluten, heal the gut and the nutrients

>that weren't getting through before are able to get through. The key

>is to catch it early so that permanent damage due to malnutrition

>doesn't occur.

>

>Only, with some of the apraxia children, it isn't that simple.

>'s ph has been GF his whole life. Something else is

>causing the malabsorption, and no one knows what that " something

>else " is. And even though he is malabsorbing, there may still be a

>malfunctioning Vit E transport mechanism that hasn't even been

>discovered yet. That is what I'm sure is happening with Elliott.

>

>>>>>

>>>>>>Hi everyone,

>>>>>>

>>>>>>We just got results from our DAN doctor, who told us to stop

>>>>>>

>>>giving

>>>

>>>>>>

>>>>>our

>>>>>

>>>>>>daughter Vitamin E, because her levels were too high. We saw

>>>>>>

>good

>

>>>>>>results from increased Vitamin E, so I don't want to take her

>>>>>>

>off

>

>>>>>>

>>>>>it.

>>>>>

>>>>>>What does it mean if her levels are too high? Could this be a

>>>>>>

>>>sign

>>>

>>>>>>

>>>>>of

>>>>>

>>>>>>malabsorption? Our DAN doctor doesn't think that she has a

>>>>>>

>>>problem

>>>

>>>>>>

>>>>>with

>>>>>

>>>>>>malabsorption. I'm confused. I'm thinking about just lowering

>>>>>>

>the

>

>>>>>>dosage. Any suggestions?

>>>>>>

>>>>>>Take care,

>>>>>>

>>>>>>Becky McFarland

>>>>>>

August 21, 2007

Oh Liz...

I'm not so sure. We have done so much to cure the dyspraxia and the therapy has

indeed worked but...

the gut problems were something that we have only just begun to attack so I

think you can make a lot of progress with a sick gut. Now.... what I am seeing

is that even though many of Mark's dyspraxic issues are really, really close to

being resolved, he is semi-ill a lot of the time with the gut issues. So, in

his case, the gut really makes him feel crappy and it is hard for him to do

anything well, never mind work on any type of therapy.

I was really taking a good hard look at my severely dyspraxic boy the other day

and realized that he is now more ADHD than dyspraxic. YEAH! We're moving up

along the spectrum pathway! Though we really need to do our articulation

exercises more strigently, I now feel more worried about ADHD issues than

dyspraxic issues.

It feels really weird NOT to be chronically checking his balance and worrying

about his safety with regard to physical issues.... I've been doing it for so

many years. Of course we still do have some dyspraxic traits re handwriting is

not what I would like but everything else is gone... almost.

But that gut just plagues my life and I feel so disheartened by it! Out at the

lake with another boy the same size and age, I realized how little my boy eats

in comparison. The other child was feeding his muscles and my boy was eating

like a sparrow with little muscle to feed. He should have a 12 year old boys

hunger but he does not. There is something definately wrong with that.

But... out on the lake, you should have seen that kid kneeboard! He was awesome

and really handled some pretty rough water with ease. Everyday, he would hang

on to that rope for 1/2 hour stretches at a time (in fairly cold weather). Mark

does far better than my beau's son who is an allstar quarterback of the football

team, basketball star and generally a 'super-athelete' at both skiing and

kneeboarding. I think it has to do with sensory feedback. He gets a lot of

sensory feedback in both of these sports and can do them well. In addition, I

started Mark skiing when he was 3 and I didn't know about his dyspraxia (thought

he just had speech issues). Sometimes, ignorance pays off! I used to push him

down the bunny hill and run along side him and he would laugh and laugh! So...

we kept on doing it every winter until he finally became a wonderful skier.

Now, I just drop him off at the hill to meet his pals with a cell-phone (it is 5

minutes from our house) and he skiis all day long. I really notice that his

speech is so much clearer and concise after he skiis. Oxygen flow perhaps?

Janice

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