cfparents this is another asinine DR story-VENTING

May 10, 2003

Hey All my 19 yr old called me Wednesday night crying telling me that

a Doctor ( not his) was going to send him home on Antibotics.He said Mama You

taught me to stand up for myself by You always standing up for me.This Dr

(turns out he is not well liked by his peers (off the record)and Head of the

dept.Of Asinine Dr's I suspect)He never once asked how Josh was feeling or if

he felt capable of taking care of himself SHAME on that Dr!!! I told Josh to

put a sign on his door he did not want THAT DR to come into his room.I then

told him to call the Head Nurse and lodge a complaint about the disrepectful

attitude.I don't care if you are a medical student(who seem to be a lot

nicer) or Head of the hospital you still owe the patient the right to be

heard. This Dr looked down on Josh and acted as if he was the expert and he

was GOD UUUGGGGHHHHHHHHH!!!! I like to teach Dr's to leave their GOD complex

in their pockets and to be Human for a little while. called me Thursday

10 pm saying he still had not seen His Dr.and he was having severe chestpain

he was breathing rapidly and shallow I could hear him struggling over the

phone to breath( I hate being so far away when he is sick. He called me to

ask how he could get his Dr to come to see him.I gave him my secret as a Mama

I told him to call the office and tell them he was having an Emergency and

needed to be seen by Dr ----- his Dr was there within 30 minutes and Josh was

put on Morphine and given some sleeping pills put Back on oxygen at night

last I heard he was feeling better.Now for the Dr. he DIDN " T approve of my

way of getting a doctor to treat him that knew him and his medical history He

said Josh your Mom is smart (I think he meant I am a smart ass I learned to

go to the top a long time ago) for getting his attention to the problem.By

the way I told Josh to talk to the Head nurse and tell her he wanted to file

a formal complaint.I am such a very Nice person until it comes to my kids

then I become like a Mama Bear protecting her young.I am NOT a diplomat but I

try very hard not to be a Jerk parent (I have seen a lot of them) I Love my

kids and I stand up for them that is my Job until they can do it themselves.I

told Josh I have specialized in this disease for 19-1/2 years probably before

that doctor ever crossed the doors of a medical school and I learned mine

thru having todeal with life and death experiences not by having the help of

professors or anyone but ME. Thanks for listening I do feel better.Becky B.

May 10, 2003

Way to go Becky...I think you were great...........

Rosemary in NY with 3 children (12, 10 and 6)

with CF. I have a dog named TOBI and

coined the phrase " BREATHE DAMMIT "

May 10, 2003

YEAH...........You did it. That was very well done. Now , his regular doc

should also speak to the resident student --??) whatever OR his supervisor.

It sounds like he might need a class /lesson in patient care.........one who

has had 19 years training & living it.

HAPPY MOTHERS DAY !!

Now, I know all aren't like this one was, BUT I am so glad your instructions

worked & JOSH is doing better .That is the bottom line is all you did

...........Bless you for your great care.

LOVE & HUGS< GRASNDMOMBEV

cfparents this is another asinine DR story-VENTING

Hey All my 19 yr old called me Wednesday night crying telling me

that

a Doctor ( not his) was going to send him home on Antibotics.He said Mama

You

taught me to stand up for myself by You always standing up for me.This Dr

(turns out he is not well liked by his peers (off the record)and Head of the

dept.Of Asinine Dr's I suspect)He never once asked how Josh was feeling or

if

he felt capable of taking care of himself SHAME on that Dr!!! I told Josh to

put a sign on his door he did not want THAT DR to come into his room.I then

told him to call the Head Nurse and lodge a complaint about the

disrepectful

attitude.I don't care if you are a medical student(who seem to be a lot

nicer) or Head of the hospital you still owe the patient the right to be

heard. This Dr looked down on Josh and acted as if he was the expert and he

was GOD UUUGGGGHHHHHHHHH!!!! I like to teach Dr's to leave their GOD complex

in their pockets and to be Human for a little while. called me

Thursday

10 pm saying he still had not seen His Dr.and he was having severe chestpain

he was breathing rapidly and shallow I could hear him struggling over the

phone to breath( I hate being so far away when he is sick. He called me to

ask how he could get his Dr to come to see him.I gave him my secret as a

Mama

I told him to call the office and tell them he was having an Emergency and

needed to be seen by Dr ----- his Dr was there within 30 minutes and Josh

was

put on Morphine and given some sleeping pills put Back on oxygen at night

last I heard he was feeling better.Now for the Dr. he DIDN " T approve of my

way of getting a doctor to treat him that knew him and his medical history

He

said Josh your Mom is smart (I think he meant I am a smart ass I learned to

go to the top a long time ago) for getting his attention to the problem.By

the way I told Josh to talk to the Head nurse and tell her he wanted to file

a formal complaint.I am such a very Nice person until it comes to my kids

then I become like a Mama Bear protecting her young.I am NOT a diplomat but

I

try very hard not to be a Jerk parent (I have seen a lot of them) I Love my

kids and I stand up for them that is my Job until they can do it

themselves.I

told Josh I have specialized in this disease for 19-1/2 years probably

before

that doctor ever crossed the doors of a medical school and I learned mine

thru having todeal with life and death experiences not by having the help of

professors or anyone but ME. Thanks for listening I do feel better.Becky B.

May 11, 2003

GREAT. Good for you & your precious . When you brave/strong moms( &

dads) do this it proves " one more time " that they NEED to listen to the

parents who are with them 24/7 .. It does not mean WE don't listen to

them.......It is what we expect from them...to keep up with all the things

that improve OR they find out they aren't so great for us(our precious ones)

..then . when both are working for the person with CF ......then the patient

and all around will do better

TEAM work always does the job better. But again, Thanks for pushing the

families cause for respect in our loved ones care.........

Have a wonderful Mothers day!!.......AND week:)

LOVE & HUGS, GRDMBEV

Re: cfparents this is another asinine DR

story-VENTING

Hi

I have to say that you are right to stand up for your kids and teach them to

do the same.

When was first diagnosed we had a young doc (a fellow) in the

hospital who was trying to follow the nutritionist's guidelines by insisting

on an NG tube feed for all of one oz of formula. yes, one ounce.

who had not been eating well for a very long time had been slowly improving

her intake. because the nutritionist had left in her chart that she wanted

to be up to 28 oz by Saturday, the doc thought since she had had only

27 he should just shove a tube down her nose for the last oz. I told him

" no way, look at the chart and you can see that every day she is eating a

bit more and by Monday she will probably be up to 28 oz. a day " I told him

that I would not agree to it. Well, he wrote for it in her chart for the

night and at 11:30 pm the nurse came in to take her away to the " treatment

room " to do the NG tube. Again I put my foot down. Long story short

was up to 28 oz by Monday with no tube feed and the nutritionist had

no problem with that. I complained to every other doc I saw about young

doctor know-it-all. I don't know what exactly was said to him about it but

I know that when we have to deal with him now, he really does listen to me.

cfparents this is another asinine DR story-VENTING

Hey All my 19 yr old called me Wednesday night crying telling me

that

a Doctor ( not his) was going to send him home on Antibotics.He said Mama

You

taught me to stand up for myself by You always standing up for me.This Dr

(turns out he is not well liked by his peers (off the record)and Head of

the

dept.Of Asinine Dr's I suspect)He never once asked how Josh was feeling or

if

he felt capable of taking care of himself SHAME on that Dr!!! I told Josh

to

put a sign on his door he did not want THAT DR to come into his room.I

then

told him to call the Head Nurse and lodge a complaint about the

disrepectful

attitude.I don't care if you are a medical student(who seem to be a lot

nicer) or Head of the hospital you still owe the patient the right to be

heard. This Dr looked down on Josh and acted as if he was the expert and

he

was GOD UUUGGGGHHHHHHHHH!!!! I like to teach Dr's to leave their GOD

complex

in their pockets and to be Human for a little while. called me

Thursday

10 pm saying he still had not seen His Dr.and he was having severe

chestpain

he was breathing rapidly and shallow I could hear him struggling over the

phone to breath( I hate being so far away when he is sick. He called me to

ask how he could get his Dr to come to see him.I gave him my secret as a

Mama

I told him to call the office and tell them he was having an Emergency and

needed to be seen by Dr ----- his Dr was there within 30 minutes and Josh

was

put on Morphine and given some sleeping pills put Back on oxygen at night

last I heard he was feeling better.Now for the Dr. he DIDN " T approve of my

way of getting a doctor to treat him that knew him and his medical history

He

said Josh your Mom is smart (I think he meant I am a smart ass I learned

to

go to the top a long time ago) for getting his attention to the problem.By

the way I told Josh to talk to the Head nurse and tell her he wanted to

file

a formal complaint.I am such a very Nice person until it comes to my kids

then I become like a Mama Bear protecting her young.I am NOT a diplomat

but I

try very hard not to be a Jerk parent (I have seen a lot of them) I Love

my

kids and I stand up for them that is my Job until they can do it

themselves.I

told Josh I have specialized in this disease for 19-1/2 years probably

before

that doctor ever crossed the doors of a medical school and I learned mine

thru having todeal with life and death experiences not by having the help

of

professors or anyone but ME. Thanks for listening I do feel better.Becky

B.

May 11, 2003

GREAT. Good for you & your precious . When you brave/strong moms( &

dads) do this it proves " one more time " that they NEED to listen to the

parents who are with them 24/7 .. It does not mean WE don't listen to

them.......It is what we expect from them...to keep up with all the things

that improve OR they find out they aren't so great for us(our precious ones)

then . when both are working for the person with CF ......then the patient