Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 Hello again! I live in England so I think Heidi's experience will be more relevant here. Once he'd diagnosed my CP, and knowing that my mother had the disease, my gastroenterologist referred me to the " pancreatic team " at the Royal Liverpool Hospital. The team includes surgeons but also geneticists. Liverpool is the centre for " Europac " , a project which includes keeping the database for European families with hereditary pancreatitis. They are funded to do a lot of the research into this. In the US I know that Pittsburgh is a big centre of research and testing. I do know of people who have had the tests done there. I'm sure your docs will tell you if testing is advised in your particular case; it might or might not be. Heidi would know far more how to go about the testing in the US. Good luck and best wishes again! Fliss Quote Link to comment Share on other sites More sharing options...
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