Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 , My pancreatitis was initially caused by gallstones. Unfortunately I received bad advice from a doctor who steered me away from have a lap. choly when I really needed one. I had two very bad attacks before the ER doctors got me in touch with both a different GI and a general surgeon. Unfortunately like you I continued to have attacks after the lap. choly. A follow up ERCP to figure out why I was still having pain 3 months post-op caused another bad attack. I was then put in touch with the Pancreatic Disease Center at the University of Cincinnati Medical Center where I was diagnosed with SOD and treated. I remained attack free for about 9 months and then resumed attacks at an extremely frequent rate (about every 3 weeks). At this point they believed I had cellular level damage and there was no reason to believe the attacks could be solved with anything short of a total pancreatectomy. I had one and am doing well now. That's my history in a nutshell. I never drank too much and did not smoke. My lipids were in the normal range and so was my calcium. I was pretty much idiopathic. thanks, Bert > I hope ya'll dont think I amn prying but I see so many people on > here that I am very fortunate to become friends with,. However; I > dont know what was the initial causative factor for ya'll CP. Mine > started out as status post lap chole pain for a year before an ercp > was done the the tortuosity was discoverd. I am not trying to pry > and of course nobody has to answer. I am just curious. > Warmly, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 My history is a little less clear than the ones already posted. I was hospitalized from severe dehydration, malnourishment, & unexplained chronic abdominal pain. They fianlly did a lap choly & found a large amount of sludge. Four days later I was back in the hospital with acute panc. I was there a month & my enzyme levels continually increased. After a month, I asked to just go home & if I continued to get worse, I would go back. I ended up going back again, & again, & again....... I was not officially diagnosed with panc until after the choly, but I know that I had it for at least 8 months prior. That's how long I complained of ab pain & feeling sick. They thought I just had gastritis. It took that time to become malnourished & sick enough to be hospitalized & find the sludge & diagnose panc. Now they call it idiopathic. The docs " think " the ducts are too small or spasm or something. I've never been given a difinative diagnosis. D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 , mine started because of a polyp growing and blocking the pancreatic duct. This was removed by surgery and that caused scar tissue to grow and block the pancreatic duct, then a tumor grew inside my pancreatic duct. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 hAVE YOU EVER HAD AN ERCP OR A MRCP? Chrissy > My history is a little less clear than the ones already posted. > > I was hospitalized from severe dehydration, malnourishment, & > unexplained chronic abdominal pain. They fianlly did a lap choly & > found a large amount of sludge. Four days later I was back in the > hospital with acute panc. I was there a month & my enzyme levels > continually increased. After a month, I asked to just go home & if I > continued to get worse, I would go back. I ended up going back > again, & again, & again....... > > I was not officially diagnosed with panc until after the choly, but I > know that I had it for at least 8 months prior. That's how long I > complained of ab pain & feeling sick. They thought I just had > gastritis. It took that time to become malnourished & sick enough to > be hospitalized & find the sludge & diagnose panc. > > Now they call it idiopathic. The docs " think " the ducts are too > small or spasm or something. I've never been given a difinative > diagnosis. > > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 Welcome D., Your beginnings are no less elusive than the beginnings were for many of our members. The largest majority of our members are idiopathic, and went along for years with problems, or mis-diagnosis' before the doctors ever discovered that their problems were pancreatic of nature. I'm glad that you found us and hope that you will be able to learn from the site, and share your questions, or concerns, with us. Please explore all the neat stuff on pancreatitis and related problems at our library at: http://www.top5plus5.com/ This site was developed by one of our member's, Mark Armstrong, and is the most comprehensive compilation of research material on pancreatitis that is available on the web. Mark is continually updating the site to include all the latest known medical material on the disease and the many questions we have about it, about diets, surgery, disability, medications, etc. I also encourage you to use our archive function to look up specific subjects, or browse through our files, links and database sections. All this material is here on the website, available for our research and learning. Lastly, the message board is a great place to post your questions and get a " real time " response. Let us know how we can help you. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI, Intl. Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 > > My history is a little less clear than the ones already posted. > > > > I was hospitalized from severe dehydration, malnourishment, & > > unexplained chronic abdominal pain. They fianlly did a lap choly > & > > found a large amount of sludge. Four days later I was back in the > > hospital with acute panc. I was there a month & my enzyme levels > > continually increased. After a month, I asked to just go home & > if I > > continued to get worse, I would go back. I ended up going back > > again, & again, & again....... > > > > I was not officially diagnosed with panc until after the choly, > but I > > know that I had it for at least 8 months prior. That's how long I > > complained of ab pain & feeling sick. They thought I just had > > gastritis. It took that time to become malnourished & sick enough > to > > be hospitalized & find the sludge & diagnose panc. > > > > Now they call it idiopathic. The docs " think " the ducts are too > > small or spasm or something. I've never been given a difinative > > diagnosis. > > > > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 , I too had my gallbladder out 2 months before I had my 1st pancreatitis attack. The following month I had my 1st ERCP and the doctor said it was caused by heavy alcohol consumption. I have had two more admissions for " Acute Attacks " in one week. I was referred to another GI specialist who did a EUS of the pancreas. His report stated that the most recent attacks were not due to the CP but Acute. Now he wants to do manometry of the Sphincter of Oddi. It seems so odd that so many people have pancreatitis after gallbladder removal. Patty, Louisville, KY Quote Link to comment Share on other sites More sharing options...
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