RE: Please put be back on e-group.........I am back from vacation

[Guest guest]

Well, the print is better on this one--poor you, all of you, and poor kid!

Love to all of you,

n

[Guest guest]

Welcome back. I am sorry is feeling so poorly. I hope you can find out

what is going on and get her well soon.

Dawn mom of 4, 7 and under, the youngest wcf

Please put be back on e-group.........I am back from

vacation

Hey...the Disney Cruise was great! The people there incredible. Everyone

was " Have a Magical Day! " not one mean cranky person in Disney....present

company excluded. Kids had a great time..loved it.

The day before we left I took to Dr. - she had virus/fever. The

entire time she NEVER stopped coughing. A few workers on the Ship said SARS

to her...she had no clue what they meant.. A man on the plane changed

seats...it was awful..

She had back pain all week I was worried. We cut our trip short by 3 days.

We got back and took her to CF Center. Of course, our CF Dr. on

VACATION................ so we had a replacement.....Dr. Arthur

DeLuca...anyone know him in PA??

He was going to do IV but didn't as she was hysterical crying at the mention

of steriods. He told my husband her xray was " not normal " tell me what the

hell that means? I am still trying to get a verbal on the

xray.....apparently EVERYONE is on vacation !!!!!!!!

She's on cipro/coly/etc..increased vest....the whole 9 yards and

MISERABLE.....is she crying because she is coughing or vice versa - its hard

to tell at times!

When I went in the Ocean at Nassau I swear I heard someone scream

SHAMU.......................just kidding.........

Missed you all.................

Rosemary in NY with 3 children (12, 10 and 6)

with CF. I have a dog named TOBI and

coined the phrase " BREATHE DAMMIT "

[Guest guest]

WELL --At first start of reading , I was saying --wow-great........But as

you continued , I was sad that the cough had to mess some of it up for

...I do hop SARS was explained to her & she wasn't in that situation

at all. Bless her heart ! ! I know that had to bug you as well.--Except for

the fact that it wouldn't have been the best for her-I would had told all

those around why she was coughing & to sit back & relax in the friendly

skies OR------ it wouldn't be so friendly :)

Is she feeling better now? I sure do hope so. Also I wonder how come the

docs all take vacation at same times.-I know they do take vacations with

their families too, but ----they could check with you first,-right ??. It

sure isn't the same as with ole Dr G. is it......?I wish you had called me

when you moored & I would have taken you to our center right here in

Orlando.Dr Weatherly , Geller, or Livingston know CF really

well..........They are right downtown, easy access to parks ,etc too. Its

called the NEMOURS CF Center .......

You didn't mention this-- , so I am hoping the other half enjoyed trip & was

human with all.........

You'll still have to get some time to sit back & relax.........hopefully,

you got some aboard ship .....Just remember , I will still keep my light

on...........

It is great your all back -----

LOVE & HUGS,

GRANDMOMBEV

Please put be back on e-group.........I am back

from vacation

Hey...the Disney Cruise was great! The people there incredible. Everyone

was " Have a Magical Day! " not one mean cranky person in Disney....present

company excluded. Kids had a great time..loved it.

The day before we left I took to Dr. - she had virus/fever. The

entire time she NEVER stopped coughing. A few workers on the Ship said SARS

to her...she had no clue what they meant.. A man on the plane changed

seats...it was awful..

She had back pain all week I was worried. We cut our trip short by 3 days.

We got back and took her to CF Center. Of course, our CF Dr. on

VACATION................ so we had a replacement.....Dr. Arthur

DeLuca...anyone know him in PA??

He was going to do IV but didn't as she was hysterical crying at the mention

of steriods. He told my husband her xray was " not normal " tell me what the

hell that means? I am still trying to get a verbal on the

xray.....apparently EVERYONE is on vacation !!!!!!!!

She's on cipro/coly/etc..increased vest....the whole 9 yards and

MISERABLE.....is she crying because she is coughing or vice versa - its hard

to tell at times!

When I went in the Ocean at Nassau I swear I heard someone scream

SHAMU.......................just kidding.........

Missed you all.................

Rosemary in NY with 3 children (12, 10 and 6)

with CF. I have a dog named TOBI and

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Great to have you back, Rosemary. So sorry is sick. Hope she's

better soon.

Angie P. (Ma to JC, 3yo, wcf)

Please put be back on e-group.........I am back from

vacation

> Hey...the Disney Cruise was great! The people there incredible. Everyone

> was " Have a Magical Day! " not one mean cranky person in Disney....present

> company excluded. Kids had a great time..loved it.

>

> The day before we left I took to Dr. - she had virus/fever. The

> entire time she NEVER stopped coughing. A few workers on the Ship said

SARS

> to her...she had no clue what they meant.. A man on the plane changed

> seats...it was awful..

>

> She had back pain all week I was worried. We cut our trip short by 3

days.

> We got back and took her to CF Center. Of course, our CF Dr. on

> VACATION................ so we had a replacement.....Dr. Arthur

> DeLuca...anyone know him in PA??

>

> He was going to do IV but didn't as she was hysterical crying at the

mention

> of steriods. He told my husband her xray was " not normal " tell me what

the

> hell that means? I am still trying to get a verbal on the

> xray.....apparently EVERYONE is on vacation !!!!!!!!

>

> She's on cipro/coly/etc..increased vest....the whole 9 yards and

> MISERABLE.....is she crying because she is coughing or vice versa - its

hard

> to tell at times!

>

> When I went in the Ocean at Nassau I swear I heard someone scream

> SHAMU.......................just kidding.........

>

> Missed you all.................

>

> Rosemary in NY with 3 children (12, 10 and 6)

> with CF. I have a dog named TOBI and

> coined the phrase " BREATHE DAMMIT "

>

>

>

[Guest guest]

I'm glad you are back ) Tell I hope she gets to feeling better!!!

People can be so cruel sometimes, when they just don't understand.

Take care,

Deana

Mom to 12 ncf and 6 wcf

Please put be back on e-group.........I am back from

vacation

Hey...the Disney Cruise was great! The people there incredible. Everyone

was " Have a Magical Day! " not one mean cranky person in Disney....present

company excluded. Kids had a great time..loved it.

The day before we left I took to Dr. - she had virus/fever. The

entire time she NEVER stopped coughing. A few workers on the Ship said SARS

to her...she had no clue what they meant.. A man on the plane changed

seats...it was awful..