Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 I just want to mention how stressed I feel of late. I am glad I am not abnormal. Although Eilish is 5 1/2 I feel very , well, sad really. I don't know what exactly triggered it. All I want to do is sleep all day, or cant sleep at all at night. Like you my shoulders, and back are so tense that I feel they are shaking on the inside, but you cant see it on the outside. I just don't feel like doing anything. I am usually ' full of life'. My kids would never know how I feel. I took 7 kids to the park yesterday, so I would never ever let it affect their life. But I feel so anxious. Who ever brought this subject up thank you so much. I would never have mentioned it otherwise. (Australia) Re: trying to cope/life as a parent Does anyone else feel this way? or is it just me? , hi mine name is and i have three daughters ages 4,5, and 6. My 6 and 4 yr old have CF. I know how you feel, it is very depressing at times I have recently been put on medication for stress and musles spasms caused by stress. I guess i have finally let it get to me. I try to be strong but it is hard. My husband doesn't like to talk about it, so I hold it all in. I just want to go to the top of a high mountain and let it all out! Scream to the top of my lungs and maybe i'd feel better. haha! I am here if you ever need anyone to talk to, maybe we can help each other. Does anyone else feel this way? or is it just me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Dear , That is what the lists are for in part----. They are wonderful in that help too. the info is Great. But, the being able to share other parts of CF life & world, is also a really important point. many have felt as you have. I cant even give a number how many. I speak with & write with Hundreds & it comes up with most , sooner or later. I think the world of Cf & the world at large feel others stress & we just react ---each of us , even us ole grandmoms.......As you said though, the wee ones will never know, or other adults around us either. sooooooooooooo, come to the lists & let it all hang out. We are here for you....... LOVE & HUGS, grandmomBEV Re: trying to cope/life as a parent Does anyone else feel this way? or is it just me? , hi mine name is and i have three daughters ages 4,5, and 6. My 6 and 4 yr old have CF. I know how you feel, it is very depressing at times I have recently been put on medication for stress and musles spasms caused by stress. I guess i have finally let it get to me. I try to be strong but it is hard. My husband doesn't like to talk about it, so I hold it all in. I just want to go to the top of a high mountain and let it all out! Scream to the top of my lungs and maybe i'd feel better. haha! I am here if you ever need anyone to talk to, maybe we can help each other. Does anyone else feel this way? or is it just me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 , Maybe you could talk w/ your doctor about your feelings and see if he/she can help you out. Maybe refer you to a psychologist to go talk to once a week/month whatever helps. Or maybe if you aren't against it, medication. Christmas of 2001 I had a major breakdown and went in to my doctor. She gave me a low dose of Celexa and I took that and then started therapy. I used both until November of 2002 and my mood was just so much better. It's the best I'd felt in about 5 years! I decided to stop going to therapy and stop the medicine but if I ever feel myself sliding back down I won't hesitate to ask for help again. If you don't wish to go that far I'm just glad you have us here to come to and talk. Always know there are others out here that have a pretty good idea what you are going through Christy Mom of Wyatt 7wcf and Hunter 3wocf -- In cfparents , " Baxter " <scottie@a...> wrote: > I just want to mention how stressed I feel of late. I am glad I am not > abnormal. Although Eilish is 5 1/2 I feel very , well, sad really. I > don't know what exactly triggered it. All I want to do is sleep all > day, or cant sleep at all at night. Like you my shoulders, and back are > so tense that I feel they are shaking on the inside, but you cant see it > on the outside. I just don't feel like doing anything. I am usually ' > full of life'. My kids would never know how I feel. I took 7 kids to > the park yesterday, so I would never ever let it affect their life. But > I feel so anxious. Who ever brought this subject up thank you so much. > I would never have mentioned it otherwise. > > (Australia) > > Re: trying to cope/life as a parent > > > Does anyone else feel this way? or is it just me? > > , hi mine name is and i have three daughters ages 4,5, and 6. > My 6 > and 4 yr old have CF. I know how you feel, it is very depressing at > times I > have recently been put on medication for stress and musles spasms caused > by > stress. I guess i have finally let it get to me. I try to be strong but > it > is hard. My husband doesn't like to talk about it, so I hold it all in. > I > just want to go to the top of a high mountain and let it all out! Scream > to > the top of my lungs and maybe i'd feel better. haha! I am here if you > ever > need anyone to talk to, maybe we can help each other. > Does anyone else feel this way? or is it just me? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 , A big hug to you. I remember twice in my life I felt this way. But the time that stands out most was when my marriage was ending. We first started talking about divorce in Nov. '96 -- I'd already been sleeping on the sofa since July. So here it was a year later and it looked like he was never going to move out of the house. Day by day I felt like I was shrinking more into an airless, black shell, just going through the daily motions with no emotion. There was no more joy in anything I did. Every night as I tucked the blankets around me on the sofa, I'd lie there in the dark, staring at the ceiling waiting for sleep. And every night, soon those hot tears would come, spilling down my face, sliding into my ears. I'd try to fight them but they always came. And crying just made me feel worse, because then it might lead to sobbing if it got out of control, and I'd want to sob but was afraid of waking everyone. So I'd turn my head to the side, burrowing into the pillow and fold the pillow over my face so no one could hear me. I'd worked at a counseling center for 7 years so sure, I knew all the right things to try battling this: I went to gym every day to work off the stress and keep hormones and neurotransmitters running like clockwork and feel good about my body. I accepted substitute teaching assignments so I could mentally focus on something besides my situation. I stayed on routine with my children and spent time with close friends (one of whom is a counselor at my former employment and the best listener in the world), but still I just couldn't shake this feeling that I was being swallowed up in a dark void and one day would disappear altogether. Finally, when I went to my OB-GYN for my annual exam, I told him what was going on. I fought hard to keep from crying while telling him, and I succeeded (I hate crying in public, you know the swollen eyes, mascara streaks and red nose). My OB-GYN is just the greatest guy; he spent longer time than usual with me that day, listening patiently and intently. I'll never forget the conversation because I learned his perception of me: he said flat out that I'm strong, able to handle anything that comes along, staying on top of CF care and research, working and managing the farm, finishing school while working and raising the kids. It was like he had been a fly on the wall inside my head all these years, knowing what I was going through more than my husband. All the work and accomplishments I achieved as farm wife, mom, student and employee I took in stride -- I didn't think twice about it: you have a job to do, so do it well and move on to the next task. Just keep moving, doing, thinking, growing. As a 19 1/2-year old bride, it was imprinted upon me that " Larry does the farmwork so you do everything else and when he needs an extra farmhand, you do that too. " And to this day I still think " Big deal, what have I done that's special? Lots of women accomplish so much more, juggle more and have greater burdens, I can do more, I need to try harder, if I was smarter, prettier, thinner then I'd be worthy enough to be loved. But I'm just not good enough. " Funny that none of that was attached to CF because 's CF care was just one more thing I did, and if it's worth doing then well, you do it well without expecting praise or validation. Seriously, that's what I believe -- always taking for granted that I'm nothing special and not good enough to be special at anything. But this doctor whom I saw once, maybe twice a year saw more than that. He said out of all of his patients, I was the strongest person he knew -- something my friends and even my parents' friends always said about me -- but I'd shrug it off thinking oh, they're just talking. He listed numerous CF and non-CF related events in my life -- important, life-altering events that I was surprised he remembered, because after all, I only saw him maybe a couple times a year, but he always asked about home and and what's knew in the world of CF. And again, I thought how does he remember these things when after nearly 21 years of marriage, my husband doesn't he remember my birth date (which is a no-brainer because the numbers coincide with his mother's telephone number!). The doctor said (rather sternly) that being too strong isn't a good thing, even pointing out how hard I'd been trying not to cry while telling him about the divorce and depression. To humor him, I told him not to worry, I did plenty of crying in private every night! I told him my greatest worry was that this situational depression might result in a need for an anti-depressant -- and that worry was adding to my depressive state. I told him I really, really did not want an anti-depressant because I feel they're often over-prescribed, and I honestly thought my mood would lift when my situation changed (i.e., when the kids' dad would move out and divorce was final). He agreed saying he thinks anti-depressants are over-prescribed these days and agreed that he didn't think I needed them (I felt such a huge rush of relief!) -- BUT he said he was keeping the door open about it and if I changed my mind by the end of the week, then call him back and he'd write a 'script. I'll always remember the sad look on his face as he shook my hand good bye, like he failed his job -- he couldn't magically fix me before leaving the exam room. The following week, everything changed in a flash. You see, when I saw my doctor, I'd been taking St. 's Wort for about two weeks. I had hoped it would help lift my mood but so far I was just swallowing the pill waiting for results. In fact, I don't even remember if I mentioned taking it to my doctor, which is odd because the nurse always asks for a list of meds, supplements and herbs. But the week after seeing my doctor, I had an appointment with our attorney (my husband and I used the same attorney for our divorce). My husband forgot to show up for the appointment -- I knew he'd forget and I knew he'd later chastize me for not reminding him but I purposely didn't remind him because I decided that wasn't my job anymore. So I met with the attorney and as I left the office and stepped out on the sidewalk, something weird happened. It was like someone had reached up and turned this huge 1,500 watt lightbulb on over my head. Remember the scene in Dicken's A Christmas Carol, when Scrooge wakes up and realizes it's Christmas Day and it's not too late to redeem himself and enjoy the day? That's how I felt! Standing there on the sidewalk, I suddenly realized, hey it's not too late; it's still early December and I feel like baking Christmas cookies and singing carols and shopping! So I drove to the grocery store and bought everything I needed for our favorite seasonal recipes -- especially cookie supplies. As I was unpacking groceries at home, I looked at the bottle of St. 's Wort and in small letters it said that it may take three weeks to see results. I was stunned. That day marked exactly three weeks that I'd been taking it! I've read other literature that says it often takes six weeks to feel effects. I guess God knew I'd hit my limit so decided to speed things up for me! Anyway, this worked for me at a really low point. I was doing everything right that I knew to do: exercise, proper diet, rest, talking things out -- but the St. 's Wort was a life saver. And knowing even more now then I did back then about the importance of diet and proper nutrition, I would make even more changes. I know many of you are probably sick to death of hearing me extol the virtues of magnesium, but I absolutely cannot emphasize enough its necessity. Some of you have mentioned not only depression and stress but muscle aches from stress, and that's sending up red flags to me. Women raising young children are often the worst about taking care of self. We're usually sleep deprived and eat on the run, and often we're caught up in dieting fads to get that baby fat off our bodies, so we live on diet soft drinks, Slim Fast and meal-on-the-go bars (and leftovers from our children's plates). But even with a perfect diet, you can have nutritional deficiencies, and if you're physically and mentally stressed then you're depleting your body more. I want to encourage you to try two things right now, first, get a good magnesium like Solgar's magnesium glycinate and start taking it -- at least 100 mg. every morning; add another 100 mg. in the afternoon. Give the magnesium some time (though I wasn't depressed when I started taking it last year, it sure helped energize me and it squelched my insomnia!). Then try some St. 's Wort, make sure the type you get says it's standardized. If you can afford to get one that says it's made in Germany, then even better for you're assured of it's standardization. Also, never overlook the importance of water, lots of water. I still don't get enough but it's so important. Lack of water can cause sluggishness, fuzzy thinking, fatigue and headaches. I'm so sorry that many of you are going through these feelings right now but I'm glad we have each other. CF is our common bond, but it's important to acknowledge that CF is only a part of our lives. You have to really soulsearch where your greatest concerns, anxieties lie -- sometimes it's too easy to point the finger at CF. I think we forget that if CF wasn't in our lives, life still wouldn't be a bed or roses. Just take it a step at a time, do your best, and don't be afraid to tell people what you need from them in that moment. Kim I just want to mention how stressed I feel of late. I am glad I am not abnormal. Although Eilish is 5 1/2 I feel very, well, sad really. I don't know what exactly triggered it. All I want to do is sleep all day, or cant sleep at all at night. Like you my shoulders, and back are so tense that I feel they are shaking on the inside, but you cant see it on the outside. I just don't feel like doing anything. I am usually ' full of life'. My kids would never know how I feel. I took 7 kids to the park yesterday, so I would never ever let it affect their life. But I feel so anxious. Who ever brought this subject up thank you so much. I would never have mentioned it otherwise. (Australia) > Re: trying to cope/life as a parent > > > Does anyone else feel this way? or is it just me? > > , hi mine name is and i have three daughters ages 4,5, and 6. > My 6 > and 4 yr old have CF. I know how you feel, it is very depressing at > times I > have recently been put on medication for stress and musles spasms caused > by > stress. I guess i have finally let it get to me. I try to be strong but > it > is hard. My husband doesn't like to talk about it, so I hold it all in. > I > just want to go to the top of a high mountain and let it all out! Scream > to > the top of my lungs and maybe i'd feel better. haha! I am here if you > ever > need anyone to talk to, maybe we can help each other. > Does anyone else feel this way? or is it just me? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 , you are not alone. The stress is unbearable and holding it in to hide it from your kids is good for them, i do that too, but it's hurting me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Kim, I never fail to be impressed by your posts. I save many of them for future reference. Thanks being a part of this group. Gale > I just want to mention how stressed I feel of late. I am glad I am > not abnormal. Although Eilish is 5 1/2 I feel very, well, sad really. > I don't know what exactly triggered it. All I want to do is sleep all > day, or cant sleep at all at night. Like you my shoulders, and back > are so tense that I feel they are shaking on the inside, but you cant > see it on the outside. I just don't feel like doing anything. I am > usually ' full of life'. My kids would never know how I feel. I took > 7 kids to the park yesterday, so I would never ever let it affect > their life. But I feel so anxious. Who ever brought this subject up > thank you so much. I would never have mentioned it otherwise. > > (Australia) > > > Re: trying to cope/life as a parent > > > > > > Does anyone else feel this way? or is it just me? > > > > , hi mine name is and i have three daughters ages 4,5, > and 6. > > My 6 > > and 4 yr old have CF. I know how you feel, it is very depressing at > > times I > > have recently been put on medication for stress and musles spasms > caused > > by > > stress. I guess i have finally let it get to me. I try to be strong > but > > it > > is hard. My husband doesn't like to talk about it, so I hold it all > in. > > I > > just want to go to the top of a high mountain and let it all out! > Scream > > to > > the top of my lungs and maybe i'd feel better. haha! I am here if > you > > ever > > need anyone to talk to, maybe we can help each other. > > Does anyone else feel this way? or is it just me? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Kim, I never fail to be impressed by your posts. I save many of them for future reference. Thanks being a part of this group. Gale > I just want to mention how stressed I feel of late. I am glad I am > not abnormal. Although Eilish is 5 1/2 I feel very, well, sad really. > I don't know what exactly triggered it. All I want to do is sleep all > day, or cant sleep at all at night. Like you my shoulders, and back > are so tense that I feel they are shaking on the inside, but you cant > see it on the outside. I just don't feel like doing anything. I am > usually ' full of life'. My kids would never know how I feel. I took > 7 kids to the park yesterday, so I would never ever let it affect > their life. But I feel so anxious. Who ever brought this subject up > thank you so much. I would never have mentioned it otherwise. > > (Australia) > > > Re: trying to cope/life as a parent > > > > > > Does anyone else feel this way? or is it just me? > > > > , hi mine name is and i have three daughters ages 4,5, > and 6. > > My 6 > > and 4 yr old have CF. I know how you feel, it is very depressing at > > times I > > have recently been put on medication for stress and musles spasms > caused > > by > > stress. I guess i have finally let it get to me. I try to be strong > but > > it > > is hard. My husband doesn't like to talk about it, so I hold it all > in. > > I > > just want to go to the top of a high mountain and let it all out! > Scream > > to > > the top of my lungs and maybe i'd feel better. haha! I am here if > you > > ever > > need anyone to talk to, maybe we can help each other. > > Does anyone else feel this way? or is it just me? > > > > > > Quote Link to comment Share on other sites More sharing options...
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