Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Have you all considered adoption? There alot of kids in this world who need some great parents to love them. I for one speak from experience. My adoption was prearranged before my birth mother ever delivered me, and I went home with my parents straight from the hopsital. I always knew I was adopted. My folks told me I was special because they chose me! I know there are many other children who would love to have the opportunity of growing up in a loving home surrounded by folks who truly adore them. It is the most wonderful feeling in the world to know you are wanted and cherished by someone else. Amber Nick's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Hey, hey now, chin up. ) Read the post a few back from n, 65 years old and others from her family in their 70's. Think positive!!! You never know what the future holds. When I get t feeling down, I always try and think of n, she is our inspiration. Take care, Deana Mom to 12 ncf and 6 wcf onlies I would like to hear from parents who only have one child, and that child has cf, particularly if you have no plans to or cannot have another child. I'm feeling really heartbroken today that the only baby I'll ever have is going to leave me. ~Steph, mom to Iain, 6, wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 You are so right. Also I have a dear friend who is 76yrs.... . Shores. Donny , her son writes here sometimes too. She lives up near my granddaughter in NC.........She used to do TV fund raisers for CF..Now she attends the center at Chapel Hill... Writes beautifully & has won many ribbons, recognition for her writings of POEMS. These OLE gals really give us a big hope & great smiles always LOVE & HUGS, GrandmomBEV Re: onlies Hey, hey now, chin up. ) Read the post a few back from n, 65 years old and others from her family in their 70's. Think positive!!! You never know what the future holds. When I get t feeling down, I always try and think of n, she is our inspiration. Take care, Deana Mom to 12 ncf and 6 wcf onlies I would like to hear from parents who only have one child, and that child has cf, particularly if you have no plans to or cannot have another child. I'm feeling really heartbroken today that the only baby I'll ever have is going to leave me. ~Steph, mom to Iain, 6, wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Hi Steph, My son Zach is an only and we do not have plans to have any other children. My first pregnancy was really rough and I delivered him 9 weeks early. No one could figure out what caused his prematurity and I couldn't bear the thought having another preemie so I had my tubes tied 9/02. Zach was diagnosed a month ago. I wonder if his cf had anything to do with the difficult pregnancy. I guess we will never know. I am sad in some ways that Zach is an only and glad in other ways. I hope to have lots of time to give him all the attention he needs, but I also am sad knowing that my motherhood my not last the rest of my lifetime. I understand how you feel and I hope that knowing that you are not alone helps a little. Sara Mommy of Zachary 14 months wcf > I would like to hear from parents who only have one child, and that > child has cf, particularly if you have no plans to or cannot have > another child. > > I'm feeling really heartbroken today that the only baby I'll ever > have is going to leave me. > > ~Steph, mom to Iain, 6, wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Hi Steph, we had similar thoughts and since Fiona not only had no sibling but no cousins too we finally decided to have another child. Don't know why you can't have another one, but I understand how you feel about it. I hadn't realized how much it depressed my wife then and she became so much happier after we started to work on our second child. Is adoption an option for you? Peace Torsten, dad of Fiona 6wcf e-mail: torstenkrafft@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 My daughter is an only child, and I've had thoughts much like yours in the past. However, I have come to a realization that if ever there was a generation to find a cure -- it is this one. That is one hope I have, the other is in the medical advancements that have been coming at an exponential rate. They are extending the median life expectancy much more rapidly than our own life expectancy has been extended. There is hope!!! Yes it is hard to have the thought that you may outlive your only child, and there are many other things we cannot take for granted. Personally, we may foster children or adopt later on (when Joy is able to care for herself more), and there are other ways to give to others so that part of us carries on once we're gone(big brothers, and other organizations -- I think there's even an organization of foster grandparents). Now, however, we are grateful she is an only child. We are more than pleased to " spoil " her with our undivided attention and our ability to somewhat-easily arrange meetings with her friends. There are advantages and disadvantages to having more than one child. I hope you will come up with a plan or perspective that will not be as heart-breaking! Ann, Mommy of a 3 year old " Joy " with CF > I would like to hear from parents who only have one child, and that > child has cf, particularly if you have no plans to or cannot have > another child. > > I'm feeling really heartbroken today that the only baby I'll ever > have is going to leave me. > > ~Steph, mom to Iain, 6, wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 As for me, I was not an only; nor was my own child who also has cf, BUT I was the only child in the family, and the last, my sibblings being much older, so I think that for my mother that I was almost as much her " only " as was the first child, and I was the one wcf. She was terrified of losing me, and fortunately, I have outlived her. My child wcf is also the youngest and her siblings and I are afraid of losing her as she is the " only, " one as was I in each family, to have cf. It IS different for both parent and child if there are siblings, but an only cf child is perceived and worried about more by the parents, and I feel, is aware of that. All children with cf are so fortunate to have the loving parents we hear from on this list! Love to all parents of children wcf and all " onlies! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 aww Steph , I know how you feel, Billie is an only child and I had my tubes tied when i was 26 she was 3. It scares me to death to think I may lose my only child. But the way I keep my spirit up is. One I chose not to have any other children because I would not and could not take the chance of putting another child through what Billie jean has been through with her cf. She is almost 9yrs old. She has done very well and in many sports but, this year has been hard on her and I know that with only having her i can pull my full attention to her and her health. There is nothing wrong with just having one child. Even better because with them having cafe it is a full time job, you have little or no time for other things. It is very scary I know to watch your children being but I learned to take a step back and see what she sees. Looking through the eyes of a child can be amazing. I have learned so much by doing this. So when you feel down just hug your baby.and everything you do that day try and look at it as he sees the world , it can be really fun. mommy to 1 w/cf -- onlies I would like to hear from parents who only have one child, and that child has cf, particularly if you have no plans to or cannot have another child. I'm feeling really heartbroken today that the only baby I'll ever have is going to leave me. ~Steph, mom to Iain, 6, wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 In a message dated 4/4/2003 2:53:16 PM Central Daylight Time, dwson2@... writes: > Hi Steph, > My son Zach is an only and we do not have plans to have any other > children. My first pregnancy was really rough and I delivered him 9 > weeks early. No one could figure out what caused his prematurity > and I couldn't bear the thought having another preemie so I had my > tubes tied 9/02. Zach was diagnosed a month ago. I wonder if his > cf had anything to do with the difficult pregnancy. I guess we will > never know. I am sad in some ways that Zach is an only and glad in > other ways. I hope to have lots of time to give him all the > attention he needs, but I also am sad knowing that my motherhood my > not last the rest of my lifetime. > I understand how you feel and I hope that knowing that you are not > alone helps a little. > Sara > Mommy of Zachary 14 months wcf > I have 3 kids and two of them have CF and the two with CF were my worst deliveries they were long and hard but my middle kid came out with know problems. My oldest was only two days early (that has CF) my youngest with CF was 10 days late, and my middle kid was 1 day early. So I don't know if having your child early had anything to do with CF but I do wonder if CF makes the pregnancy a hard delivery. Deb A Quote Link to comment Share on other sites More sharing options...
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