Re: Possible pacreatitis after distal pancreatectomy? 8 year old

[Guest guest]

Christy,

If there is one thing I have learned it's that ANYTHING is possible with

pancreatitis. I Have been diagnose with Moderate to Severe Chronic

Pancreatitis. I have been doing well for the last year or so and I just

had a CT Scan done in May. It showed there to be nothing wrong with my

pancreas. I have other documentation stating I have calcification of

the pancreas, but this last CT Scan showed nothing, so this latest

doctor sent me on my way stating that I was well and that there was

nothing wrong with me. I believe all this lastest scan shows is that

there is nothing " going on " with my pancreas now. For sure I know that

I am sick with this disease.

My amylase and lipase levels RARELY ever rise anymore, since I have gone

to the CHronic form of the disease. As far as foods, stay away from

high fat foods, fried foods, high fat dairy etc. I keep to a daily fat

intake of no more than 25-30 grams of fat a day. Stay away from

medicines that contains alcohol. CHeck cough syrups, nyquil and raw

vanilla extract. As for pain meds, if the doctors haven't perscribed

anything for your child yet, I don't know what to tell you. If it is

indeed pancreatitis, OTC meds just don't cut the pain. Try warm to hot

showers with the water cascading over his abdomin area and back when

that hurts. Use a heating pad for the abdomin and back when that hurts.

These 2 items really work. I have a hot tub I keep at 104* or higher

year round as the helps to releave the pain.

I would also seek another pediatric pancreatic specialist. Check with

your health insurance people to see who they have in their network that

you can use. DO not stop seeking an opinion just because you were given

the ones that you were. If your child was in so much pain that he

required morphine to ease it, then there is definatly a problem. Keep

searching, keep looking and good luck!

Sandy

California

mcconroy2002 wrote:

> Hi, my 8 year old son had a distal pancreatectomy due to trauma from

> a bicycle accident last month. Three days ago I took him to the ER

> due to excrutiating pain in his right abdomin and back. Xray's, CT

> scans, blood & urine tests were all normal. Three days in the

> hospital and surgeons, gi specialist and pediatritian can't pinpoint

> cause of pain. We were sent home with enzyme therapy & diet

> restrictions. Is it possible to have pancreatitis with a normal CT

> scan & amylase levels? What about pain relief (at home) for children?

> It took many doses and 4 hours before relief with morphine in the ER.

> Regarding meds and food, what should we avoid? Any help would be

> wonderful! Thank you! Christy

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