Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 I'm new to the group. Gdattig5 told me about the group. My son, age 7, has been tested for CF and has been found to be a carrier of G551D. No other CF mutations were found with the Genzyme test. His two sweat tests were both high indeterminates. He has had two surgeries in the past year for nasal polyps. I think he has been on antibiotics more than off this past year. I am waiting for a refferal to a CF doctor because there are some symptoms that need to be addressed and I don't think my general pediatrician will be able to handle them. Do any of you live around the Boston area and if so which doctor do you use? Also, do any of your children experience reoccurring nasal polyps? Even after the surgery, my son fills up with gunk so badly he needs to go to the ENT every 2 weeks for cleaning. Anyone else have a " later in life diagnosis " ? Thank you for letting me join. Quote Link to comment Share on other sites More sharing options...
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