Re: Re: Symposium to Tull & Karyn

[Guest guest]

Hi,

It certainly sounds like the symposium was great. I am very sorry that I

had to miss it. I had certainly hope to attend it, but something come up

with my daughter and her husband, a family event , that I couldn't miss. I

would very muck like to order that handouts and a tape, when they become

available, so please add my name to your list of interested people who want

the tape. It certainly sound like you all did a great job with the

symposium and my Congratulations all those people who help with it. I do

know that it took alot of time and hard work to put it together. A special

Thank you goes out to Karyn and Tull for their great efforts in a job well

done. Thanks for caring so much about us all and get some rest and keep up

the good work. Thanks again.

Take Care,

Louie in WV Re: Symposium

>

> > Hello everyone!

> > Hope the symposium was excellent. Congratulations on having

> > organised it all. I so much would have liked to be there.

> > You probably need to rest for a while after all the efforts of

> > organising, travelling etc. etc. but please let us know how to go

> > about buying documents or tapes from the symposium.

>

> Hi Felicity, all

>

> Yes, this year's Symposium was a great success. I had to leave to go

> out of town for 3 days right after it finished, so I am just now

> getting back to wading through all the e-mail that built up over the

> past 5 days. The attendance hit its " peak " during Dr. Sutherland's

> sessions on Friday morning - 48 were present, about 20 of which were

> various doctors and other health care professionals from several of

> the local hospitals here in Indianapolis. They seemed quite excited

> by the information Dr. Sutherland had to share with them.

>

> There were 28 patients/caregivers present at some point during the 2-

> day SYmposium. Not everyone was able to attend all the sessions, but

> they were all very worthwhile. It was good to see many of the folks

> from this board, including Kimber, Keri, Heidi, Lilly, ,

> Shirley, Sue R., Gail M., Peg B., Jean, , Jackie ... who am I

> forgetting? Also a number of others who don't have computer access,

> but who found out about the Symposium through other means (one of the

> GI doctors at IU had taken it upon himself to mail flyers about the

> Symposium directly to a number of his patients!).

>

> In addition to Dr. Sutherland's 3 sessions, we had 2 sessions led by

> GI doctors; one by a pain management specialist; one by an

> RN/diabetes management specialist; a panel on dealing

> with " spirituality issues " led by an RN, a therapist, and a hospital

> chaplain; and one by an opthalmologist who specializes in vision

> problems caused by diabetes. We also had a panel of 4 of Dr.

> Sutherland's former patients who have had the Total Pancreatectomy

> and Auto Islet Cell Transfer who shared their experiences with that

> procedure. In addition, we had time for a number of the patients

> present to " share their stories " in dealing with this disease.

>

> Gail W. did a marvelous job in creating " notebooks " for all the

> attendees, with pertinent excerpts from the PAI, along with all the

> handouts from the speakers. And Peg designed and provided special

> pins with a golden rose and green ribbon to mark the event. Kristy's

> wonderful arrangement of flowers (proteas?) from Hawaii made the

> journey safely, and was prominently on display at every session.

>

> We were able to video tape all the sessions, and I think the quality

> of the recording this year will be excellent, since we had the use of

> the university's " professional " video equipment, and the sound was

> fed directly from the speakers' lapel mics into the recorder. WIth

> over 16 hours of presentations, it will take us some time to go

> through it all, edit it, and get it ready for distribution to any/all

> who are interested. Once again, we will make those copies available

> for " cost " , including copies of all the handouts. I don't know

> exactly what that cost will be yet - depends on how many video tapes

> are required to hold all the sessions. We may look into the

> possibility of putting this year's Symposium procedings on DVD as

> well as VHS, depending on the cost.

>

> It will probably take at least a month for us to get that ready.

> When the copies are available, it will be announced on the message

> board.

>

> Thanks to all who helped make this event possible, and especially to

> Karyn for her " blood, sweat, and tears " ... and the vision she has

> held for the PAI. It always takes quite a bit out of her, but

> hopefully she'll be able to get back to posting on the board herself

> soon. In the meantime, I know she would appreciate hearing any/all

> words of encouragement that any of you would care to send her. It's

> a huge undertaking, and sometimes seems somewhat " thankless " . But

> all who were able to attend this year know how important this event

> has become.

>

> Plan now to attend next year's Symposium!

>

> Cheers,

> --Tull

>

> Assistant Moderator

> Pancreatitis Association, Int'l

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