Everyone Please speak out!!!

[Guest guest]

Percy,

you probably have already tried this, but have you a different hospital

you can go through or a different pain clinic you can try who might be

more willing to prescribe breakthrough pain meds? Also, I'd write

written complaints with JCAHO that your pain is not being fully treated

like it should be. http://www.jcaho.com/ Anything that might help. By

JCAHO pain management standards, they should be treating you for any

pain over a 3 on a scale of one to ten. Wish I could be of more help.

Kimber

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Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

I saw a pain management specialist for the first time a couple of

weeks ago, and didn't even get to be introduced to the doctor. He

sat in his office while I saw a nurse practitioner. After going

through everything, she went and spoke with the doctor, came back

and said she couldn't see anything that they could do for me, but

then said she'd go ask the doctor if he could recommend anything

(duhhh..that's what I thought they talked about in the first place).

She then came back and said that he recommended me trying Actiq

lollipops and Avinza, oh and they could give me a celiac plexus

block for 4 hours relief, which wouldn't benefit me because by the

time I drive there, get it done and then drive back, it would be

time to turn around and get it done yet again.

I gave both prescriptions to the pharmacy, and for the actiq, they

said they need preauthorization from my insurance or whatever. That

was last Wednesday, and I finally got hold of the nurse who has the

paper from my insurance and will be getting the doctor to complete

it tomorrow. I just had another attack start a little bit ago, so if

it gets worse, gather that i'll have to go back to the ER just to be

sent home yet again, unless it is a doctor who has treated me many

many times.

Last time I was there, my GI told me to get the ER doc to call him

if I had any problems, as did my Family doctor. He refused to call

them both and refused to give me the pain medicine that works best

for me. I was sent home still in pain. My Family doctor couldn't

believe it. She said she would speak with that doctor, whom she

happened to got to med school with. It is so frustrating.

[Guest guest]

Dear ,

My husband, Randy, has CP. We had our family practice doc, (who is great,

by the way) write a letter of introduction to the ER doctors to take with us

any time he has to go to the ER. We have found, also, that the ER docs don't

always call him, as he has requested, so the letter has worked as an

alternative. He outlined Randy's diagnosis, as well as tests he would like

performed. Just having the letter has been helpful in getting respectful

treatment. You might give it a try.

With Prayers,

Donna McInvale

[Guest guest]

,

if the ER doctors are not giving you enough relief, please, make a

complaint to JCAHO as it is important that they know which hospitals are

not adequately treating pain. http://www.jcaho.com

I hope the letter works (I've got one too , only I haven't had to use

mine yet).

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

You might try giving the ER a copy of JCAHO's pain policy and find

the Pain Patient's Bill of Rights on the web and present that to

them, also! Here's the JCAHO's pain policy:

http://www.jcaho.com/news+room/health+care+issues/jcaho+focuses+on+pa

in+management.htm

Jeannine

Also, I'd write > written complaints with JCAHO that your pain is

not being fully treated > like it should be. http://www.jcaho.com/

Anything that might help. By > JCAHO pain management standards, they

should be treating you for any > pain over a 3 on a scale of one to

ten. Wish I could be of more help.

> Kimber