new symptoms?. . .progression?

[Guest guest]

Hi all,

I hope everyone is doing as well as can be expected. I wanted to run by some

new symptoms I am having and would like any and all input as to if anyone knows

or thinks they are a correlation with CP, which I do have.

I do have hypothyroidism, but my blood work was just checked and everything is

the same. No change in medication at this time.

Does anyone know if TMJ is a problem with CP? I have had it for many years, but

lately it has gotten exceptionally bad.

I have been having body aches all over. When I wake up in the night or in the

morning it takes me several minutes just to turn over or try to get up. I hurt

everywhere. My heels have cramps in them and everything hurts?!!!!

I am also having increased pain on a daily basis. I have an attack every

afternoon between 3 and 4 o'clock just like clockwork? I am taking OxyContin 40

mg b.i.d. and Oxycodone 5 mg twice a day. I just been on these meds for 2 1/2

months now. Does this mean that maybe things are progressing? I have always

had the most pain in my upper middle chest area and then around, but lately it

has started in my left side and gone to my back more.

When does one know if things are progressing? Should one have a CAT scan or

some other testing done every so often to check for progression?

Thanks for listening/answering.

Take care, all are in my prayers.

in Ohio

[Guest guest]

,

Hyprothryoidism is also one of my problems. It was just

discovered this year. My recent test in July was 11.9, much

increased from a 5.88 six months ago, so I started on .088 mg.

of Synthroid to combat this. At least this is an explanation for why

I am always cold!!! I don't know that this has a relationship to

chronic pancreatitis or not.

I would suspect that your increased pain indicates more

progression of your CP. That's the way mine progressed. When

I was first diagnosed I could go without problems or pain for

weeks at a time, and then when I had it, it only lasted a few

hours. As the months passed, though, the pain episodes

quickly increased, and lasted longer each time. By the start of

my second year I was experiencing daily annoying pain with bad

episodes lasting 5-7 days.

In less than 2 years since diagnosis, I've had 12 CT-scans, but

these were done mainly to monitor the status of my two

pseudocysts. I don't think CT-scans are done on a regular basis

for CP patients without pseudocysts unless the doctor suspects

some new damaging development.

I hope this information is of some help to you.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments and advice are personal opinion only, and

should not be substituted for professional medical consultation.

" What lies behind us and what lies before us are tiny matters

compared to what lies within us. " - Ralph Waldo Emerson