ita - trying to help but no reply to private email

[Guest guest]

I sent the following email to ita some time ago but have had no

reply so assume I made a mistake with the email address and will post

the info here.

The ACFA email address is www.cysticfibrosisaustralia.org.au hope this

is of some help. Also Leon if I am incorrect in my assumptions could

you please furnish ita with the correct info.

Terri.

Date:

Fri, 21 Mar 2003 09:24:28 +1100

From:

Therese Fox

Reply-To:

tmfox@...

To:

needa_benny@...

Hi there

I am Terri I live in Hobart - how much further away from you could I be

- I have A daughter Ainslie who is 10 1/2 wcf and a son Connor 6 1/2

nocf.

I got your email address from the CF parents list so thought I would

write and say hello. Having a child with cf is " interesting " but it

isn't the end of the world, just life changing. How is Brodie? 2 is

such a gorgeous age, I do miss those baby times but I wont be having

another.sighhhhhh. Two kids is enough.

Knowing what your entitlements are is a tough question. I would

recommend contacting the ACFA- I can get you their contact details but I

have a meeting to go to shortly so will send them soon. I did a stint

on the board a while back and I seem to recollect that you can go to a

SA cf clinic - I may be totally wrong on that one. I know that here in

Tassie if there is not a specialist here for a particular problem then

you are sent to Melb. Have you approached the main hospital admin in

Darwin - they may be able to give you some info, or even the health

dept.

I must go hope I've helped a little, will write again soon.