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Hi everyone,

I am fairly new to this list. I have three children ages 6, 4 and

1 1/2. My youngest has CF and was diagnosed when she was 14 days old.

Currently she does nebulizer treatments twice a day and cpt twice a

day seven days a week. She is 32 inches and just weighed in at 24

pounds. She has two copies of delta f508 genes.

My question is, her coloring is always pasty looking, her stomach is

always extremely distended. Does anyone else have this problem.

Thanks,

Jenna

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