Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hello everyone, I have a few Questions. First- My son is ALWAYS retracting even when he is very clear.All day long he breathes like he just finished running a marathon. Thats what has my local ped. dr. puzzled and also the pulm. we were seeing before he refered us to a cf clinic. They say how concerned the are w/ how hard hes working to breath. When I asked what could cause this they dont really give me an awnser, Does anyone have similar situations? In the past when he gets pnemonia I can understand the struggle but why when hes so clear? They ruled out asthma, if it is cf and he has some built up mucus is it poss. for him to still sound clear? Im confused! I asked if breathing so hard can hurt his heart and so they checked w/ EKG and said it was fine, but when the checked the gases in him he said he actully had to much which means hes overbreathing- Well DUH! That only obvious by watching him. Anyhow we go to our first cf appt. tommorow and I was wondering what type of Questions I should ask and is there any other advice for when I get there? Also, the nurse called genezymes and asked about the test res. and they said it was still out at the 2nd lab and it will be in early next week, today is 3 weeks since they drew his blood. On another note -j has started to let go and take one step-only one but thats 2 mo. earlier than my daughter. Thanks- Kari mom of 2-1 may have cf- 1 known copy of d-f508 2nd test pending Quote Link to comment Share on other sites More sharing options...
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