update on william and a few late responses

[Guest guest]

hello all hope all is well william has been doing great we went to

disney about a wk ago for the day he had a ball i got sick and this

past thursday my gramma passed she was 84 she had a series of strokes

then pick up something like mrsa a staph that they couldnt treat so i

couldnt see her or my family for a while her drs told my folks that

it would really knock a cf child for a loop so to stay away so

instead of going to jersey for a service i stayed here now for the

late responses in florida if you cant get ssi or medicaid you can

get cms(childrens medical services) no matter the income a cf

diagnosis automatically gets it and #2 we have a hand percusser its

on a pole w/wheels it works great as a massager for the back but for

cpt i use the vest or manual cpt for william#3 and will starts

kindergarten this fall also can every one please send me some plan

ideas ive never done this before and never would have known about a

504 if not for this list i love this list even though i havent been

here for a month sorry

jeannie mom to william 5yowcf,asthma & a g-tube & hannah 141/2 mos nocf