Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 To any of you who come to this site often, you already know the story of my daughter, . I have been cleaning house today and as I was cleaning, all that was going thru my mind was her. I have been trying to get her to go to the symposium next week to hear Dr.Sutherland and to meet some of you nice people also. Time is running out and as of yet, I have not gotten a yes from her. My thinking at this time is that she is thinking that I am interfering in her life and is rejecting the idea because I am the one who brought it up to start with. This is not my intent and I would never tell her what to do or what decision to make concerning the transplant, but now time is almost up and what more can I do to get her to go there? That is what keeps going thru my mind. And believe me it is hard for me to ask for help unless it is where my kids are involved. I am asking any of you that will to please write a letter thru my email address telling her your feeling on attending this meeting and what you have been thru and hope to gain by attending it. I do understand that all of you effected by CP have a lot on your own minds and are in great pain most of the time. And truly, I will understand if none of you respond to this, but as I was working around the house today, this idea came to me, and it wont let go of me, so I had to ask it of you. I thank each of you for listening to me in the past and thank any of you in advance that feels like writing to . My thoughts are with each of you as I read the posts in this room. Sincerely, Jean, Indiana Daughters name: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2003 Report Share Posted August 23, 2003 Jean, I wanted you to know that Karyn and Tull will be making a video of the conference available sometime after the Symposium occurs and that even if you can't get your daughter to go, maybe you could get a copy of the tape for her to view when she is more amenable to doing so (if that occurs, which I hope it will). Just wanted to let you know that even if you can't attend in person, you can get some benefit from viewing the video. I believe that copies of the handouts will also be available with the video. The cost will be for the cost of the materials. You can also get videos of the tapes of the past symposiums as well if you want, though I don't think Karyn and Tull had time to actually process the video material from last year's, but the videos from the first two Symposiums are available through Karyn or Tull ( karynwms@... and tull@...). This year's is the fourth annual Symposium. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
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