Feeling guilty question & sponsor form thanks

[Guest guest]

In a message dated 3/25/2003 12:11:52 PM Central Standard Time,

JKDORA@... writes:

> Kari

>

How can you feel guilty you are only doing what you think is right if you

child has CF I would do the same thing!! Besides you can tell them you are

doing it for the people on this group that definitely know there kids have

CF. Coming from a Mom that has 2 with CF I would greatly appreciate the help

to find a cure for my girls!! Deb A

[Guest guest]

In a message dated 3/25/2003 12:11:45 PM Central Standard Time,

JKDORA@... writes:

> Do you think all the people who

> sponcer $$$ will be upset if it turns out he dont have it and they

> donated thinking he did. Im walking no matter what- weve went this

> long thinking he does have it and even if he dont

i dont know exactly what your talkin about but..

are you walking for just him? or is a cf related cause?

if it is just a cf related cause ( thank you) and you could explain this to

the people who donate. If it is just for the boy you are talking about, if it

turns out he doesnt have CF you could always turn the donations in to the CF

foundation anyways....

Good luck- hoping for a negative test to come your way

Jenn

ef

reading " The Stand " by King

[Guest guest]

Hi- I am walking for a CURE not for just ( my boy), but for everyone who has

this awful disease. I know it sounds bad -but when you really dont know much

about something and its not directly affecting you- you dont useally get

involved! Intill I went on the internet to find info on cf I really didnt

know much, or how much you can do to help. Now that I do ( like I said in my

orig. post) even if he dont have it, I will always walk and help. Which would

mean Im doing it for everyone w/ CF. Maybe You didnt read all of my post? We

have already ordered CF beanies to raise money for a CURE, and also get

people aware of this disease by including the CF tag on the beanies along w/

a letter including the statistics of cf, because even though its rare to have

cf its not that rare to be a carrier and people dont know that! At least the

ones Ive been talking to. I always intended in giving the $$$ to the cff,

where else would I send it? Sorry if I sound rude I just want to make myself

clear. Thanks Kari

[Guest guest]

In a message dated 3/25/2003 1:01:21 PM Central Standard Time, JKDORA@...

writes:

> Hi- I am walking for a CURE not for just ( my boy), but for everyone who has

>

> this awful disease. I know it sounds bad -but when you really dont know

> much

> about something and its not directly affecting you- you dont useally get

> involved! Intill I went on the internet to find info on cf I really didnt

> know much, or how much you can do to help. Now that I do ( like I said in

> my

> orig. post) even if he dont have it, I will always walk and help. Which

> would

> mean Im doing it for everyone w/ CF. Maybe You didnt read all of my post?

> We

> have already ordered CF beanies to raise money for a CURE, and also get

> people aware of this disease by including the CF tag on the beanies along

> w/

> a letter including the statistics of cf, because even though its rare to

> have

> cf its not that rare to be a carrier and people dont know that! At least

> the

> ones Ive been talking to. I always intended in giving the $$$ to the cff,

> where else would I send it? Sorry if I sound rude I just want to make

> myself

> clear. Thanks Kari

as i stated.. i didnt read the original post.

We are both clear now

i like your ideas about beanies-- how do I get one? I collect bears...

i was very shocked the other day to read that one in 25 people is a carrier!

thats crazy!!

Keep up the good work, and thank you so very much for all you are doing.

Jenn

ef

reading " The Stand " by King

[Guest guest]

Thanks everone for the help- You were right I had to down load the

adobe acrobat then I was able to print out LOTS of sponsor forms for

all our walkers on Team Baby Jay!!! You know we dont even know for

sure if he has cf., the drs are just saying their sure he does. we

know hes a carrier and 2nd test results are not in yet. We go to the

cfclinic friday, my question is- Do you think all the people who

sponcer $$$ will be upset if it turns out he dont have it and they

donated thinking he did. Im walking no matter what- weve went this

long thinking he does have it and even if he dont,after learning all

about this awful disease and hearing all your stories I definitly

think there should be a cure very SOON!!! So even if theres a miricle

out there and they tell me his problems are not from cf, we will

always participate and get the word out there! Should I feel guilty,

like I lied to them if he dont have it? Thanks Kari