(No subject)

[Guest guest]

Hi everyone,

Whilst at MD Cancer Center the past 10 days for evalutation

of the Desmoid Tumours that have been said the cause for my

pancreatitis is that scar tissue

on my pancreas after my second op, is the cause for

my pancreatic duct to keep closing, not the Tumours they have told

me I have. A Whipple is the

best procedure to deal with this, but if I have

another operation, it is obvious to me and the doctors I have seen

that more

scar tissue will just grow on the remaining part of

the pancreas causing the exact same problem...their

option at the moment (GI's I saw at MDACC) say to

just go in and have an ERCP every 2 months..but

that's easy to say when they don't have a

pancreatitis attack everytime and then have to go

through withdrawal of pain and nausea meds after

each time also *L*..what to do, what to do...

Think I shall have my two best doctors work it out

for me *L*

( at least the good news is that they actually think the Desmoid

Tumours are in fact just balls of scar tissue and won't cause me any

further problems)

Thanks for listening