RE: WHIPPLE TO PAGET

[Guest guest]

HI JUST WANTED TO LET YOU KNOW THAT I HAVE HAD SIMILIAR PROBLEMS, I

HAVE HAD THE WHIPPLE DONE TWICE. AFTER THE FIRST SURGERY I KEPT

TELLING THE DOCS THAT I WAS IN A LOT OF PAIN AGAIN---5 MO AFTER

SURGERY--AND THEY KEPT TELLING ME EVERYTHING WAS GREAT WITH THE

REMAIDNDER OF MY PANCREAS AND THE DUCT WAS DRAINING GOOD. I HAD THE

SURGERY BECAUSE THE DUCT WAS COMPLTETLY CLOSED OFF. SO I PUT UP WITH

THE PAIN UNTIL I WAS JUST IN MISERY, WENT BACK HAD AN ERCP AND THE

DUCT HAD COMPLETELY SCARRED CLOSED. I WAS SO THIN THAT I HAD TO HAVE

FEEDING TUBE IN FOR 7 WKS BEFORE I WEIGHED ENOUGH FOR THEM TO DO THE

SURGERY AGAIN. NOW 9 MO AFTER THE 2ND SURGERY IM IN A LOT OF PAIN

AGAIN AND AM SCHEDULED TO HAVE A CELIAC BLOCK THIS MON THE 18TH. I M

NOT MAD THAT I HAD THE SURGERIES BECAUSE I REALLY HAD NO OTHER

CHOICE. BUT UNFORTUNATELY IT DIDNT SLOW DOWN THE CP, I DIDN T REALLZE

THAT THE SURGERY COULD BE A SUCESS YET THE CP COULD JUST GO ON!! I M

AT THE POINT WHERE I GUESS THERE ISNT ANYTHNG MORE THEY CAN DO,

EXCEPT REMOVE THE PANCREAS, AND MY REMAINING PANCREAS STILL PRODUCES

INSULIN. THIS HAS REALLY BEEN DEPRESSING FOR ME, ACCEPTING THE FACT

THAT I WILL ALWAYS BE IN PAIN AND HAVE MALABSORPTION. IM NOT ABLE TO

TELL YOU ANYTHNG HELPFUL, JUST THAT YOU ARE NOT ALONE WITH YOUR

PROBLEM. NANCY