Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 I have a son entering kindergarten in the fall of 2003. Does anyone have an IEP that has any treatment not on Amber's list below? I will put together a list of accomodations that CF children often require if people send what they have asked the school to provide their children. Thank you. > >, what state do you live in? > > > >In California we have what is called an IEP or individual education plan. > >Also a section 504, that under state laws our kids fall into this category of > >other health impaired. i have had an IEP in place for Nick before he entered > >Kindergarten, and stipulated in it that the school was responsible for > >enzymes, breathing treatments during school hours, as well as an immediate > >home teacher, if Nick was ever hospitalized or at home on iv's, even if only > >for a couple of days. Since he entered jr. High last year, we put this all > >under a section 504. I also mandate in this plan the school is to change the > >air filters in his classrooms on a monthly basis, as well as giving Nick > >unlimited restroom priveleges, unlimited access to water, and he is allowed > >to set his own limits in Physical Education. I hold them to this written > >agreement by being quite assertive with them. They are all nice as long as > >things are going smoothly and they don't have to go out of their way, but the > >first little hiccup, and they try to back out. DON " T LET THEM! It is your > >childs right to receive an education, a full education at that. If anyone is > >not familiar with these laws, please contact the social Worker at your local > >CF Center. They are familiar with these laws and will often times attend the > >meetings with you when writing the IEP or 504 plans. Besides, they are > >cheaper than lawyers, but do what ever you must to insure your child is not > >denied his/her education. > > > >Amber, > >Nick's mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Your child may not need an IEP. In New York children can only have an IEP if they qualify for one of 13 identifications. CF is not one of them. PWCF may qualify for a 504 plan. I am a special education teacher and if I can be of any help with developing goals and objectives for your child just let me know. Thanks - Kathy G. Mom to , 8 w / CF land IEP > I have a son entering kindergarten in the fall of 2003. Does anyone > have an IEP that has any treatment not on Amber's list below? > > I will put together a list of accomodations that CF children often > require if people send what they have asked the school to provide > their children. > > Thank you. > > > > >, what state do you live in? > > > > > >In California we have what is called an IEP or individual > education plan. > > >Also a section 504, that under state laws our kids fall into this > category of > > >other health impaired. i have had an IEP in place for Nick > before he entered > > >Kindergarten, and stipulated in it that the school was > responsible for > > >enzymes, breathing treatments during school hours, as well as an > immediate > > >home teacher, if Nick was ever hospitalized or at home on iv's, > even if only > > >for a couple of days. Since he entered jr. High last year, we > put this all > > >under a section 504. I also mandate in this plan the school is > to change the > > >air filters in his classrooms on a monthly basis, as well as > giving Nick > > >unlimited restroom priveleges, unlimited access to water, and he > is allowed > > >to set his own limits in Physical Education. I hold them to this > written > > >agreement by being quite assertive with them. They are all nice > as long as > > >things are going smoothly and they don't have to go out of their > way, but the > > >first little hiccup, and they try to back out. DON " T LET THEM! > It is your > > >childs right to receive an education, a full education at that. > If anyone is > > >not familiar with these laws, please contact the social Worker at > your local > > >CF Center. They are familiar with these laws and will often > times attend the > > >meetings with you when writing the IEP or 504 plans. Besides, > they are > > >cheaper than lawyers, but do what ever you must to insure your > child is not > > >denied his/her education. > > > > > >Amber, > > >Nick's mom > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 In a message dated 3/24/2003 11:32:49 PM Eastern Standard Time, kajegood@... writes: > In New York children can only have an IEP > if they qualify for one of 13 identifications. CF is not one of them. Kids with CF can be OHI - other health impairments - something like that. Rosemary from New York with 3 children with CF - they are 12.5, 10, 6...... I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready for this - TOBI after their medication!!! At least it wasn't albuterol or Coly... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 We arranged with the school that my son would always be in a classrooom in the main school building and NOT in a separate portable classroom (due to poorer air quality, poorer ventilation, less convenient access to a bathroom and more dust in portables). cfcured wrote: >I have a son entering kindergarten in the fall of 2003. Does anyone >have an IEP that has any treatment not on Amber's list below? > >I will put together a list of accomodations that CF children often >require if people send what they have asked the school to provide >their children. > >Thank you. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Rosemary - I suppose you are right. At this time my daughter does not have an IEP. I suppose the committee would have to look at each case on a reporet by report basis. Kathy G. Mom to 8 w/ CF Re: land IEP > In a message dated 3/24/2003 11:32:49 PM Eastern Standard Time, > kajegood@... writes: > > > In New York children can only have an IEP > > if they qualify for one of 13 identifications. CF is not one of them. > > Kids with CF can be OHI - other health impairments - something like that. > > > Rosemary from New York with 3 children with CF - > they are 12.5, 10, 6...... > I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready > for this - TOBI after their medication!!! At least it wasn't albuterol or > Coly... > > > Quote Link to comment Share on other sites More sharing options...
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