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Re: Joint pain in Cody

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My daughter has complained with her knee hurting off and on

since she was 3. Every dr that I had mentioned it to like yours just

past it off. This lst time about 6 weeks ago we thought it was

Leviquin but 2 weeks after being off of it they still hurt.

went intothe hospital 2 weeks ago and at that time the I told the dr

again that they were still hurting . ( I knew that joint pain is

common with cfers to some extent) HE told us that when these kids

have moreof a lung exaserbation(sp?) the infecton with also effect

the joints. After just a few days on IV antibiotics her knees quit

hurting.

Dana 13 w/cf Philip 6 wo/cf

-- In cfparents , " s65roses2002 " <s65roses@c...> wrote:

> Since for some reason I can't send posts or receive them right now

> (HELP Torsten--hope you get that e-mail soon!), I'm posting this

from

> the homepage.

>

> Anybody have any advice for me on this? Cody has complained of

joint

> pain a LOT in the last few weeks--started in early February heavy-

> duty (and mildly before that for a few months). I have mentioned

it

> to his doc before, but it was kind of dismissed--well, not really

> dismissed, but not taken as seriously as I'd like it to be taken.

> I've never gotten any answers about it, and it's getting to the

point

> where he is constantly complaining about his knees and elbows and

> wrists hurting-- " Mom, we REALLY need to get an x-ray of this--I

think

> I'm broken! " My poor guy--he tires out so quickly yet, too. I am

> under the impression that they think it's all caused by the fact

that

> he was so sick, and that he is now so far underweight again, and

that

> once he is " better " , the problem will go away. They don't seem to

> get it when I say that he's complained of his legs hurting and his

> wrists for quite awhile--albeit more mildly and less often--even

when

> we had him up to 45 pounds. It's getting frustrating!! I am going

> to argue with them about this at CF Clinic on the 26th.

>

> Speaking of the 26th--that's CF Clinic all day (usually from 8 am

to

> about 2 pm), and they ended up scheduling my husband's wrist/elbow

> surgery for the same day!! Well, I should say HE scheduled it!

> Grrrr...and they are at different clinics/hospitals, totally across

> town. So I'm going to call the CF Clinic and tell them I need to

> rush Cody through because I'll have to go be with Mark--it's same

> day, so he'll get out that day too. At least he will if they only

> have to do the repair they think--there may be more though,

requiring

> a more major surgery of cutting his ulna in his arm and resecting

it

> to shorten it--OUCH!!!!

>

> Thanks in advance for any help/advice anyone can give me!

> S., mom to a (14, nocf), DJ (8, nocf) and Cody (7,

pwcf)

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In a message dated 3/15/2003 11:38:11 PM Central Standard Time,

s65roses@... writes:

> No, he's not--he had it once several years ago, but that was it.

>

Oh OK I was told that cipro will take calcium away from you bones that is why

they don't like to give it so small child but because of our kids illness it

is better then the alternative. This is what a ped. doctor told me! Just what

I wanted to hear. Deb A

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hi michelle, my son has the same thing and he is 6, soon to be 7. children

with CF sometimes develop athritis.if there is redness or swelling of the

joint ,that's when i would see a rumatologist. i give motrin and i rub

his legs. these are some of the things the doctors don't tell you about. good

luck. janelle,mom of 6wcf. ps. sorry about the spelling

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