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Hereditary pancreatitis

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Hello Everyone,

Before I go on holiday I'd like to thank PAI for helping me find out

more about HP. The message archives were useful (thanks to Diane for

info) as was PAI's own HP section (thanks to Heidi for pointer). I

have also now accessed the Europac info from Alder Hey Children's

Hospital in Liverpool, UK, where I live, which is leading and

coordinating a major European research study into HP. Altogether I

now feel much better informed and will approach my appointment with

the Europac team much more knowledgeably! By the time I see the

pancreatic specialist surgeon again in a few weeks I think I will be

better equipped to make a decision on whether or not to have the

total pancreatectomy. It has been really helpful emotionally as well

to be in touch with other patients and be made aware of their

experiences. It is frightening when one is first diagnosed and this

contact has been so important to me. Thanks Mark, and

everyone! I wish you all well and will keep you up-to-date in case

anyone is interested in this particular type of CP. Best wishes.

Felicity Brown

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