NON—CFTR-RELATED CYSTIC FIBROSIS?

[Guest guest]

Hi There,

This is a very interesting article and proves the

point that there is still so much to learn about CF

and CF-like/related diseases and syndromes.

NON—CFTR-RELATED CYSTIC FIBROSIS?

http://www.pulmonaryreviews.com/oct02/pr_oct02_CFTR.html

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

In a message dated 03/06/2003 6:42:48 AM Pacific Standard Time,

MissGooberGirl@... writes:

> http://www.pulmonaryreviews.com/oct02/pr_oct02_CFTR.html

>

Thank you for the address for this very interesting article. I have always

enjoyed your emails that contain medical articles. I find them highly

fascinating. this one in particular strikes a chord with me, as I was tested

for CF many, many years ago, sweat test, not DNA genotyping, and I was just

under the cut-off for having CF. I think I will bring this subject up at

Nick's dr. appt next week, and see if they will do the genotyping on me.

Nick has double DeltaF508 deletion, and his older brother has one copy and is

a carrier.

I have always had very bad sinus problems and allergies and asthma.

Thank you once again for all the insight you have provided.

Amber

Nick's mom