Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 In a message dated 7/2/2003 2:55:07 AM Eastern Daylight Time, casca@... writes: > > Shirley. You never sent me your story. If you had. I would have placed it > on the top5 website right away. > > I hope this finds you and yours well > > Mark > Hi Mark, I sent it long ago before you were a member of the group. I am an old timer.lololol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 In a message dated 7/2/2003 2:56:19 AM Eastern Daylight Time, casca@... writes: > > I also don't see it on the yahoo site either....hmmm > ----- Original Message ----- > Maybe Karyn might know where it is. It needs some work before the symposium. What are you doing up also. I can hardly keep my eyes open. Couldn't sleep while in bed but put me at the pc and I am so sleepy. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Shirley. You never sent me your story. If you had. I would have placed it on the top5 website right away. I hope this finds you and yours well Mark MY STORY ( MARK) > Hi Mark, would you please help me find my story? I believe it needs some > editing and updating. Thank you, Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 I also don't see it on the yahoo site either....hmmm MY STORY ( MARK) > Hi Mark, would you please help me find my story? I believe it needs some > editing and updating. Thank you, Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Can't sleep......after I went to the ER last week...I basically slept for 3 days and it messed up my sleeping cycle...although, I tend to be a night owl anyway. Hope you can get some sleep Mark Re: MY STORY ( MARK) > In a message dated 7/2/2003 2:56:19 AM Eastern Daylight Time, > casca@... writes: > > > > > I also don't see it on the yahoo site either....hmmm > > ----- Original Message ----- > > > > Maybe Karyn might know where it is. It needs some work before the symposium. > > > What are you doing up also. I can hardly keep my eyes open. Couldn't sleep > while in bed but put me at the pc and I am so sleepy. Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Shirley and Mark, Yuck Mark...ERs. Everytime I have had to go to the ER I ended up getting stuck there for 12-24 hours before a bed would open up and then for sure my sleep pattern would be destroyed. I feel for ya Mark. Shirley, my night owlness comes from the fact that here I am off from work recovering from the surgery. And gradually my laziness has gotten me off my normal sleep schedule cuz I keep staying up late watching moves on cable and surfin the web. And playing games... Its 6AM and time for bed! G'nite! Bert Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 In a message dated 7/2/2003 3:58:55 AM Eastern Daylight Time, casca@... writes: > > Can't sleep......after I went to the ER last week...I basically slept for 3 > days and it messed up my sleeping cycle...although, I tend to be a night owl > anyway. Hope you can get some sleep > > Thanks Mark. I am a night owl also. I like to stay up late and sleep late in the morning. Can't always do that though and then the day after staying up late I am a zombie. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 In a message dated 7/2/2003 6:16:46 AM Eastern Daylight Time, l10nx@... writes: > > Shirley, my night owlness comes from the fact that here I am off from > work recovering from the surgery. And gradually my laziness has gotten > me off my normal sleep schedule cuz I keep staying up late watching > moves on cable and surfin the web. And playing games... > > Its 6AM and time for bed! > > G'nite! > > Bert > Oh Bert, I know your pain!!!!!!!!!!!!!!!! I went off line around 4 or 4:30 AM but then went to bed and couldn't sleep. I finally took ativan and now I am sooooooooooo sleepy. I want to go back to bed so badly but I will try to stay awake so possibly I will be sleepy tonight. I have tried this many times and come night time I am worse off since I lost sleep the night before and stayed awake the next day hoping I could sleep that night but NO couldn't sleep again. My husband falls asleep in his chair watching TV around 9 or 10 and then he goes to bed after the news which he wakes up for to hear the weather. There I am wide awake needing some zzzzzzzzzzzzzz and he is sawing logs. IT'S NOT FAIR!!!!!!!!!!!!!!!! He is so balanced and I am so unraveled. lolololol I need to stay away from my PC at night since that keys me up and then I for sure can't sleep. Oh well, it could be a lot worse. Bert, did you read Staci's e-mail. I am so concerned for her. It doesn't make sense for her to have so much of her pancreas removed. What if she continues to have pain. Staci is such a dear sweet girl. I wish she could talk with Dr. Sutherland. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 In a message dated 7/2/2003 1:37:33 PM Eastern Daylight Time, tull@... writes: > > > The members' stories that have been submitted are maintained on the > main pancassociation.org website. You can find the " Our Stories " > page by clicking on this link: > > http://pancassociation.org/storieshome.html > > Thanks Tull. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi Shirley and all, ~~~Bert, did you read Staci's e-mail. I am so concerned for her. It doesn't make sense for her to have so much of her pancreas removed. What if she continues to have pain. Staci is such a dear sweet girl. I wish she could talk with Dr. Sutherland. Shirley~~~ Shirley I have read Staci's e-mail. I feel the same concern you do. Since you and I have had the total panc. surgery we are biased towards a different kind of surgical approach for the treatment of pancreatitis. The selling point of the surgery we had is based on pointing out the high failure rate of other kinds of pancreas surgeries leaving the patient in a state that requires even more surgery. Our procedure's success is closely related to having as intact a pancreas as possible. If a less invasive surgery really has a high chance of solving the problem forever than that is what someone should do I think. But the problem I see is that huge numbers of people that have a puestow, whipple, distal, this, that, the other surgery, etc, end up within a few years or less having attacks again. We know with the total panc. that your problem is solved. But with the total panc. you put yourself at risk for surgical complications more severe than with the other surgeries, and there is always a chance of the islet cells failing to work. That is why, like you suggested, Staci should really try to talk to Dr. Sutherland, her own doctors, and people that have had the various surgeries in order to really scrutinize her options. I wish everyone out there happiness, Bert Quote Link to comment Share on other sites More sharing options...
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