Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 I have had bouts with pancreatitis for a few years now and can't find a doctor to do anything for me. All they want to do is wait until the pain is so bad that I need to go to the ER and be admitted. I need to do my own research because it's very hard to go to work every day and have these overwhelming waves of pain and nausea. I am also a diabetic so my doctors just think I'm doing this to myself or something. What makes it more difficult is that I work for the attending physicians in a teaching hospital as their secretary. They even say to just come into the ER when the pain is unbearable and they will admit me to the hospital. So that's their treatment, wait until I can't stand the pain any more and then go to the ER. I want to know what to do before the pain gets that bad. I have been in the hospital 4 times this year and all they do is give me pain killers and don't feed me while I'm in the hospital. If I ask 12 doctors what's causing my pancreatitis the give me 12 different answers. How do I go about finding a doctor who can help me a little more? Thanks for any help, Denice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Dear Denice, To the best of my knowledge, there aren't too many comprehensive books on pancreatitis available. I've learned to do all my research right here on the internet and I've collected hundreds of pages of good information that I'd be happy to share with you. Also, one of the best sources for general information is at our library website: http://www.top5plus5.com/ , You're really caught between a rock and a hard place with your present situation. Working in a hospital for doctors who won't treat you, except by waiting until the pain is so bad that you need to be admitted, is, IMHO, reverse psychology and ridiculous medical treatment. Is there any chance you can find a gastroenterology specialist outside of this sphere of medical stumbletons? If they are attending physicians, I doubt whether there's a GI specialist among them, it certainly doesn't sound like it. You need a gastroenterology specialist, not a general physician. That's probably why you're getting 12 different answers to the same question, because they just don't have the specialized experience to know the answer. I'm sorry to be so negative, but I personally feel they're going about this in a totally backward manner. You need to be on regular treatment with pancreatic enzymes and pain medication as needed, by a specialist. It should be designed to help you AVOID having to go to the ER whenever possible. Your treatment should be designed to keep your pain at a minimum and avoid any acute pain activity, because it's the acute episodes that cause all the irrepairable damage to your pancreas. Some testing; such as ultrasounds or CT-scans, should be done to determine the cause of your pancreatitis. Sometimes if there is a particular cause, surgery can be done to remedy this and lessen the pain. Has any diagnostic testing been done? Are you in an area where you can go elsewhere to find a competent specialist? If you'll let us know where you are, it may be that we could recommend a specialist in your area who you could consult. Is going to the ER when the pain is unbearable your only " treatment " , as such? Write again and let us know the answers to these questions, and maybe we can come up with some more solutions for you. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SE & SW Regional Rep. PAI, Intl. Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. > I have had bouts with pancreatitis for a few years now and can't find a doctor to do anything for me. All they want to do is wait until the pain is so bad that I need to go to the ER and be admitted. How do I go about finding a doctor who can help me a little more? Denice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Denice, here's a website for you to check out: http://hopkins-gi.org Do a search on pancreatitis and read all links that come up. Once you get to the acute or chronic pancreatitis sections, there should be a rolldown menu that shows up on the right hand side if you roll your cursor over it near the top. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 > Denice, > here's a website for you to check out: > http://hopkins-gi.org > > Do a search on pancreatitis and read all links that come up. > Once you get to the acute or chronic pancreatitis sections, > there should be a rolldown menu that shows up on the right > hand side if you roll your cursor over it near the top. > Kimber > > -- > Kimber > Vallejo, CA > hominid2@c... > Note: All advice given is personal opinion, not equal to > that of a licensed physician or health care professional. Kimber: Thanks so much for your help. I will try this site. I keep having attacks of pancreatitis and noone can tell me anything about it, even the doctors. Thanks again, Denice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Denice, unfortunately, pancreatitis is one of those more complicated illnesses and not a lot of doctors understand what goes on with it. I certainly hope you find all the information you are looking for here, that is one of the reasons that we are here. I've learned more here in the past two years than I have from any of my doctors over the past sixteen years of pancreatitis. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
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