I'm not the only one am I?

March 2, 2003

Hi

This question is more for parents of older cf sons/daughters although I have a

feeling it will be more for sons than daughters. (sorry guys)

Are there any parents that have their older cf " child " still living at home

relying on mom and dad to take care of them even though you know they could be

doing more for themselves. I am so impressed with so many of you that are on

your own and taking complete control of your life but I can't help but wonder if

I am the only one that over protected my son and did so much for him when he was

younger that it is now almost " expected " of me to carry this on even though his

health has not deteriorated to the extent of needing someone to take care of

him. Oh how I wish I could turn the clock back and have the knowledge that I

have now about raising a " cf child "

March 4, 2003

Shell, I have an 18 year old son, and he is very responsible, I had a

wonderful doctor at the time of his diagnosis who told us to make sure to

treat him no different than his other sibling and we never did. That was the

best advice we were ever given, since now he has grown into a very

independent and confident young man. He will be heading off to Ohio State

University in the fall and I have no fears of his being there. Yes,, I have

the normal fears of his compliance but that is normal for all teenagers,

they all think they are invincible, but let him get sick once and I bet he

doesnt do it again. He has a 3.75 grade point average, plays sports and

holds down a part time job. I really believe the more that he does the

healthier he stays. His attitude toward cf is that he has cf, cf doesnt

have him. It is a part of who he is it is not WHO he is. We have never

made a big deal out of his disease, we dont hide it and we are not ashamed

of it. We embrace it, explain it to others and go on with our lives. He

tells us he would rather live a normal day than 5 days in a bubble so thats