Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Judy and Gloria, There is a great CF chat room, where patients, parents, and others gather to talk about CF. The age range of the CF folks are 10-somewhere in the 50's and then we have parents of kids and adults. I would guess at the average about 10 people show up per session, and also the non scheduled times, you can find people there chatting. Great friends have been made and everyone enjoys when new people join in and we get more to chat with. Yesterday a mom of a 3 year old and 12 year old were there and they became addicted to the chat immediately. They said " I love this chat " . We also have a group of 19-25 year old and then another bunch who are in their 30-50's. We all gather at the same time and share all the going ons. So please stop by and check it out, and tell your kids to stop by, I think they will enjoy it. Below is the site address and there is also an email support list, pictures and the site was just begun in November I believe and there is about 300 members so far!! Enjoy and hope to see you at chat soon. ~~~~CF CHAT~~~CF CHAT~~~EVERY DAY NOW~~~CF CHAT~~~CF CHAT Cystic Fibosis 2 Chat Welcome to patients, siblings, parents, support persons. Discuss all that concerns you. New medicines, new therapies, doctors, CF centers, lung involvement, weight issues, lung transplant, working, parenting etc. Now we can chat everyday!!! Here are the MSN CF2 CHAT TIMES: EVERYDAY: 2 PM Central, 3PM Eastern EVERYDAY: 8 PM Central, 9 PM Eastern How to get there: MSN Groups> Health & Wellness> Support Groups> Heart & Lungs> Cystic Fibrosis 2 Chat or http://groups.msn.com/CysticFibrosis2chat/homepage Hosted by Berrie, 19ywcf Joanne M. Schum Cystic Fibrosis Bi-lateral Lung Recipient September 12, 1997 University of North Carolina Hospitals Chapel Hill Residence: Upstate New York email: luckylungsforjo@... " Taking Flight - Inspirational Stories of Lung Transplantation " Compiled by Joanne Schum Authored by lung recipients around the world http://www.trafford.com/robots/02-0497.html http://www.trafford.com/ Joanne Schum twoluckylungs@... Bi- lateral Lung Tx 9/12/97 > Gloria, > I live in Delaware and my daughter is 191/2 years old and would love > to talk on line or in person with your son. She grow up in a support > group with other CF children and now misses that part of her life. If > you want to e-mail me at blueyejud@... I will see that she > gets it. > judy in Wilmington, DE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Gloria, I live in Delaware and my daughter is 191/2 years old and would love to talk on line or in person with your son. She grow up in a support group with other CF children and now misses that part of her life. If you want to e-mail me at blueyejud@... I will see that she gets it. judy in Wilmington, DE Quote Link to comment Share on other sites More sharing options...
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