Re: Sweat Chloride Question (I should know this by now!)

[Guest guest]

I don't mean to sound harsh, but could you tell me why you choose to keep

having children, when you know you and your spouse are carriers? This has

alway s peeked my interest.

Thank you,

and again I am not judging you or trying to be hateful, I am just curious.

Amber

[Guest guest]

Jen,

First, let me say that I just adore the names you have chosen for

your children!

The CFF has info on the sweat test on their site at

http://www.cff.org/living_with_cf/sweat_testing.cfm

According to them, it can be done at any age. Some small babies

don't make enough sweat, but I think this is the exception rather

than the rule. (My son had the sweat test when he was 4 days old and

it clearly indicated cf.) Values between 40 and 60 are borderline.

Anything under 40 is negative for cf. This has not changed as far as

I know.

I don't know why they don't just do the genetic test, maybe expense,

maybe because it takes longer to get the results, maybe nobody

thought of it, maybe because it's slightly more invasive, maybe

because the equipment they purchased to perform the sweat tests

hasn't paid for itself yet. Your guess is as good as mine.

Good luck with the new baby!

~

mommy of 3, 1 with cf

Mannatech Associate

>

> Anyone else have the problem that they know so much about something

and when

> you need to recall the knollage you sound like an idiot? It could

be

> pregnauncy brain too, lol.

[Guest guest]

Not a problem. We didn't find out the girls had CF untill was 1 1/2

and Yoli was 4 months old. Since the military won't do genetic screening we

figured that it wouldn't happen again? Majority of it ignorance on our part

I guess. We both kinda figured lighting couldn't strike the same place 3

times right? We were really wrong. This last preg was a complete accident.

Phynix was only 4 months old. Since I could never justify and abortion to

my kids, I figure we'll take what ever is thrown. I've come to look at life

differently because of this. It could be ALOT worse, at least they can see,

hear and walk around. No one's gauranteed a certain amount of time on

earth, it's what you do with the time you have that is important. I'm only

23 years old and will be having my tubes tied after Orion is born. It's

just another cold hard fact of life that we are having to deal with.

Jen A, mom to 4, Yoli 3 and Phynix 10 months and running all w/cf.

Orion due April 14th??

>From: misybailey1@...

>Reply-To: cfparents

>To: cfparents

>Subject: Re: Sweat Chloride Question (I should know this by

>now!)

>Date: Thu, 27 Feb 2003 23:20:43 EST

>

>I don't mean to sound harsh, but could you tell me why you choose to keep

>having children, when you know you and your spouse are carriers? This has

>alway s peeked my interest.

>

>Thank you,

>and again I am not judging you or trying to be hateful, I am just curious.

>

>Amber

>

>

>

[Guest guest]

I'm kinda lucky. I have two other children besides my daughter. The two

boys don't have CF, but guess why, because they're from different fathers.

But I didn't know she had CF until she was 10. Had Iknown and still been

with her father, would i have had more children?! I don't know. I know I

would have had more still, if they hadn't told me I couldn't, but I do think

its a very PERSONAL decision and also we have to take into consideration the

major improvements they have made in treating CF and how the life expectancy

has become greater. Maybe some of still hold out for that cure that will

give our kids the same chance as everyone else! I don't know!...just a

thought!

G

mom of Sammy 14 w/cf, mom of bobby and matt no/cf

Re: Sweat Chloride Question (I should know this by

now!)

> I don't mean to sound harsh, but could you tell me why you choose to keep

> having children, when you know you and your spouse are carriers? This has

> alway s peeked my interest.

>

> Thank you,

> and again I am not judging you or trying to be hateful, I am just curious.

>

> Amber

>

>

>

[Guest guest]

My daughter is 4 months old and they are going to test her. My cf dr. didn't

say whether is was going to be harder on her than her brother, just that she

needed to have it done soon.

Christal

MOm of Tristan 6ncf, Zack 2wcf, Ki'a 4monthscf?

[Guest guest]

I am unsure who this message was addressing. But in my case my husband and I

had no idea we were carriers. Our son was not diagnosed until after we had

our daughter. I have to honestly say that if we knew that he had it and

there was a rick that she could, she probably would not exist. It would have

taken a lot of praying and heart-searching. But you have to remember, these

children, our children, need normalacy. They need brothers and sisters and

people who care for them. It's like saying " oh- my mother has bipolar

(which is also hereditary) that means me child could so even though I want a

child I am not going to have one. " If you are a carrier and you want a

child, theres no reason not to have one. We just need to remember the odd s,

1 in 4, to me that is good odds that my children would be ok.

Christal

Mom of Tristan 6ncf, Zack 2wcf, Ki'a 4monthscf?

[Guest guest]

In a message dated 2/28/2003 12:14:21 AM Central Standard Time,

cfkids2@... writes:

> No one's gauranteed a certain amount of time on

> earth, it's what you do with the time you have that is important.

VERY WELL SAID!!! Deb A