Father of boy with lung disease fights damage to his own

[Guest guest]

OMG - that is so awful! I cried reading it. It seems as though people

either have tons of problems or NONE.....

I am praying for them, especially she will need so much strenghth to go

on and be CAREGIVER to both husband and son........

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...

[Guest guest]

Hi,

I just saw this article from the Boston Herald. Stein was a very active

member of this list for a while. I anyone still in contact with her? I am

sending good thoughts for .

Peace

Torsten, dad of Fiona 6wcf

e-mail: torstenkrafft@...

This article appeared in the Boston Herald regarding a father injured in

the RI nightclub tragedy. Very sad.

------------------------------------------------

Father of boy with lung disease fights damage to his own

by Lasalandra

Friday, February 28, 2003

For two years, Stein has been hoping for a miracle that would save

his son from dying of cystic fibrosis, a terminal lung disease.

Now, Stein, a 31-year-old cell phone salesman from Berkley, is fighting his

own life-and-death battle with a potentially fatal lung injury suffered in

the Rhode Island nightclub fire.

``Now, he's fighting for his own life,'' said Valderrama of Berkely,

the sister of Stein's wife, .

``Their life has been turned upside down again,'' she said.

Stein was upgraded to good condition yesterday in the intensive care

unit at Brigham and Women's Hospital with lung injuries, as well as

burns over 20 percent of his body, including his face, arms, hands,

fingers and back.

In addition to their 2-year-old son with CF, the Steins have a healthy

5-year-old daughter.

Valderrama said ``it was devastating'' to see the condition that her

brother-in-law was in when she visited him in the hospital.

``He doesn't look like ,''

she said.

The main problem the doctors are paying attention to is his lungs, she

said. ``They aren't even focusing on the burns,'' she said.

Stein is on a respirator and unconscious, she said.

His wife, , ``is not good,'' Valderrama said. ``It's an ongoing

battle. Their son has treatments every day. Now, is going through

this tragedy. She has two people in her life that she loves dearly that

are very ill.''

Stein, who has owned several cell phone stores, including ones in Fall

River, Seekonk, and West Bridgewater, was to have started a new job this

week selling phones.

``He's trying to provide for his family,'' she said, noting the medical

bills for CF treatments are high. ``(The two-year-old) takes 40 pills a

day.''

Although Stein's burns may not be as bad as some, doctors say lung

injuries are one of the three killers of burn victims and patients can't

be deemed out of the woods for two weeks.

``He has a long road to go,'' said his mother, Sheila Stein of Norton.

But the first thing he told the nurses and doctors at Kent Hospital in

Rhode Island, where he was initially taken, was: ``I want to live.''

When his mother saw him for the first time, wrapped in bandages and on a

respirator, ``it was horrible,'' she said. ``All we want him to do is

get better. He's a wonderful kid.''

Sheila Stein said saved his own life by breaking through a window

to get out of the nightclub. He had been standing right up front when

the blaze ignited.

``He broke a window and he and two girls got out,'' she said.

[Guest guest]

Torsten,

Is there anyway to get an address for these people to send cards to them? Thanks

Father of boy with lung disease fights damage to his own

Hi,

I just saw this article from the Boston Herald. Stein was a very active

member of this list for a while. I anyone still in contact with her? I am

sending good thoughts for .

Peace

Torsten, dad of Fiona 6wcf

e-mail: torstenkrafft@...

This article appeared in the Boston Herald regarding a father injured in

the RI nightclub tragedy. Very sad.

------------------------------------------------

Father of boy with lung disease fights damage to his own

by Lasalandra

Friday, February 28, 2003

For two years, Stein has been hoping for a miracle that would save

his son from dying of cystic fibrosis, a terminal lung disease.

Now, Stein, a 31-year-old cell phone salesman from Berkley, is fighting his

own life-and-death battle with a potentially fatal lung injury suffered in

the Rhode Island nightclub fire.

``Now, he's fighting for his own life,'' said Valderrama of Berkely,

the sister of Stein's wife, .

``Their life has been turned upside down again,'' she said.

Stein was upgraded to good condition yesterday in the intensive care

unit at Brigham and Women's Hospital with lung injuries, as well as

burns over 20 percent of his body, including his face, arms, hands,

fingers and back.

In addition to their 2-year-old son with CF, the Steins have a healthy

5-year-old daughter.

Valderrama said ``it was devastating'' to see the condition that her

brother-in-law was in when she visited him in the hospital.

``He doesn't look like ,''

she said.

The main problem the doctors are paying attention to is his lungs, she

said. ``They aren't even focusing on the burns,'' she said.

Stein is on a respirator and unconscious, she said.

His wife, , ``is not good,'' Valderrama said. ``It's an ongoing

battle. Their son has treatments every day. Now, is going through

this tragedy. She has two people in her life that she loves dearly that

are very ill.''

Stein, who has owned several cell phone stores, including ones in Fall

River, Seekonk, and West Bridgewater, was to have started a new job this

week selling phones.

``He's trying to provide for his family,'' she said, noting the medical

bills for CF treatments are high. ``(The two-year-old) takes 40 pills a

day.''

Although Stein's burns may not be as bad as some, doctors say lung

injuries are one of the three killers of burn victims and patients can't

be deemed out of the woods for two weeks.

``He has a long road to go,'' said his mother, Sheila Stein of Norton.

But the first thing he told the nurses and doctors at Kent Hospital in

Rhode Island, where he was initially taken, was: ``I want to live.''

When his mother saw him for the first time, wrapped in bandages and on a

respirator, ``it was horrible,'' she said. ``All we want him to do is

get better. He's a wonderful kid.''

Sheila Stein said saved his own life by breaking through a window

to get out of the nightclub. He had been standing right up front when

the blaze ignited.

``He broke a window and he and two girls got out,'' she said.