Re: Why People Have More Than One

[Guest guest]

This lady is an ASSHOLE! Maybe it is good that she is only the child

stepmother! Does she not realize that there is a 1 in 4 chance that a child

is born with CF. Secondly, all know that there are those of us that can truly

handle this and others, like her, that can not. At least she had an option

not to marry her husband due to the CF " issue " (I am sure that is how she

views it). I am glad she is leaving the group. And as for the comment that

some may need the " attention " why is she on this group and not the father.

Sorry I know this is totally out of character for me but I got pissed off!

Meg

Mom of 3; 12yowcf & Crohn's, 7 yowocf, 2yowcf & GERD

[Guest guest]

My parents decided they wanted to have three children. The second one

was born 4 years after the first one with some medical problems.

They still decided to go ahead and have a third child, two years

later which was me. I am glad that I was born.

We just have to love them all equally and do the best we can with

what we are given.

[Guest guest]

Parents don't stop having kids because of obvious familial histories of

cancer....CORRECT?

There is NO reason for ANY members of this list to bash one another. We are

all in the same boat fighting for the same cause, and waiting (impatiently)

for the day when we can all rejoice as one when a cure for CF is found.

Until then, we must all work together, and STAY together.

Why People Have More Than One

> First of all, I have been a member of this group so that I might

> learn something as far as new areas of medical research and what not.

> I also look at the all the different med's everyone takes and

> research them hoping to find something that might benefit my

> stepdaughter. But this morning I am absolutely sick to my stomach

> reading the posts from people regarding why they continue to have

> more children that might be born with Cystic Fibrosis. The following

> responses are three of the most selfish things I have ever read and I

> am completely disgusted to be a part of a group that finds it

> acceptable to have more babies because:

>

> *we felt that he would have someone with whom to share his burden

>

> *I choose to have another because I wanted to hold another baby

>

> *CF is not the END of the WORLD

>

> First of all how nice it is that you feel you have every right to

> have another child so you can impose your firstborn's illness on

> them. What a treat to be born so you can share someone's burden. And

> how completely unselfish that you wanted to hold another baby, that

> is the most pathetic thing I have ever heard. And last time I

> checked, CF is the end of the world for everyone born to it. There is

> NO cure so when you are born with it you will more than likely die

> from it. It's one thing to have more than one child with CF because

> you didn't know, it is quite another to keep having babies with the

> complete knowledge that they could be born with it. Let's not sugar

> coat it, no one wants to be a part of this group, we would all rather

> not know what Cystic Fibrosis is and for anyone to encourage having

> more children that could be born with CF makes me physical ill.

> Cystic Fibrosis doesn't make you special, it is a completely unfair

> kick in the stomach and no one would ever choose to have a Cystic as

> opposed to a healthy child. When you continue to have more Cystics

> there is something wrong with you. I don't know if you need the

> attention or what it is but I do hope you seek professional help.

>

> Obviously I would like to be removed from this group. Post all the

> responses you want to this but they will be for not because I will

> delete them unread.

>

> Becky Accordino

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

Hey Guys. It has taken me awhile to figure out if I should even respond to

this topic. Yes, it is a very touchy one. If the purpose of the reply from

Becky A. was to make me feel awful for having my kids, then it didn't work.

I personally love my boys with all my heart & my entire being. They are my

reason for living. I don't think I am selfish for wanting them. I don't

think that I am wrong for loving them. And I am positive that if you asked

my boys, they don't thimk the are here to share each others burdens. But, I

would like to point out that that is what families are for. Good & bad.

And as for the comment that our children were born with cf, so therefore

they will die of it. Well, on that I disagree. There are so many things

that can happen in life. We can go for a ride in a car and be in a wreck,

so many things. I refuse to sit and dwell on the fact that this disease

will take my child from me. Although thank- you for that " gentle " reminder.

Life is not measured in length of time as much as what you do with that

time. Life is measured in those cherished memories of the time you share.

Which way would I choose to live my life - alone, afraid, because there is a

chance of my children having a disease or Happy, together with a family,

cherishing them everyday, loving them with every breath I take? I choose

the second. Wouldn't it be a miserable life without them?

I just can't imagine someone looking at one of my babies and thinking they

are a mistake, for any reason.

Guys, the cure IS coming. Until then, cherish EVERY moment you have.

Don't waste a moment of it. Love those babies. And while you are at it,

give them an extra big hug from those of us in their extended family that

love them sight unseen.

I guess I'll quit babbling for now.

Vondie

mom of & , both w/cf

Shoot for the moon. Even if you miss it, you will land among the stars.

If we really want to live, we'd better start at once to try.

Our aspirations are our possibilities.

[Guest guest]

Isn't that place awsome! We loved it! I would love to work there someday.

It's a great reality check for what's really important!

G

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[Guest guest]

Meg,

You took " asshole " right out of my mouth, I said it but typed something

totally different,

Take care,

, mommy of 4, 3 wcf, a g-tube and his wonderful personality,

,18, and she now has her own car, Caleb, 8 and getting too old to

fast, and , 7, my little artist.

[Guest guest]

,

You are so right about siblings, my kids take care of wonderfully, and

they dont view him as a burden, or CF as a burden, it is a part of our life

now and they accept it, and him and are patient when things have to wait

because of a treatment or a tube feed, whatever it may be. Kids are great.

Take care,

, mommy of 4, 3 wcf, a g-tube and his wonderful personality,

,18, and she now has her own car, Caleb, 8 and getting too old to

fast, and , 7, my little artist.