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Re: from Lily to Kimber

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Kimber,

Hello ! How are you doing ? Thanks for asking about me.I try to get on the

computer about once a week and lurk around. Sometimes I can and sometimes I just

can't. I am still trying to work full time and usually call in sick 2-4 days a

month. Thank God I am in a union, in the private sector I would probably be

fired by now, nursing shortage or no nursing shortage. I am grateful that I have

a desk/sedentary job or I would never make it.

My pain is tolerable. Some days worse than others. Had my yearly CT scan a few

weeks ago. I meet with my GI doc this tuesday. I think my CT is stable or I

would be having an increase in my pain and it is just about steady now. My

period really seem to flair it up,but things could be worse.

I am still caring for my dad who contnues to be a non compliant patient wiht

his Congestive Heart Failure. As you know my sister lost her husband to cancer a

few months ago and I am busy being an aunt to her kids. My heart breaks every

day for those 2 kids but I promised him that I would be there for them so I am

active in their lives. And of course I have my supportive husband and nine year

old that keep me going. Some days I just need to take an xtra pill, to get thru

the pain. I find the more I do, the more I hurt. And then about every 3 weeks

the fatique catches up to me and I am asleep all weekend. Nothing like a good

snooze !. Things could be worse so I am not going to complain. I remember right

after my surgery, being in sooooo much pain, being on disability, wondering if I

would ever feel well enough to work and be productive again. It has taken me two

long years to get to this point, for that I am thankful. But more so I am

thankful to Karyn for starting this site and for the support and friends that I

have gotten here. It has been a struggle but I keep trying to plug away.

I talk with every week. I haven't talked with her much this week but I see

on this site where her doctor gave her a rough way to go. Looks like I will have

to get my broom out again and help along. We are each others support

system and it is nice that we both live in the same town. In a wierd way, it is

ironic that we met this way, but it has been a blessing that we help each other

out emotionally. I didn't know her doc gave her a hard time, I will have to help

her find a new physician. The docs in this town are so stale, they drive me

crazy. Well enough about that, I feel myself going off on a tangent soon !

How are things with you, any news on your diability? Was it approved ? I can't

stay current on what is going on with everyone.

Better go for now, getting late and my husband has a stress test tomorrow. I

need to change professions, this is getting to stressful,,, my brain needs a

vacation !

Take Care,

Lily

Lily

Lily,

hey, how are you doing? I haven't heard from you in a long

time? Let me know how you are doing. I talked to the

other day on AOL IM.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to

that of a licensed physician or health care professional.

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Lily,

I'm doing okay. Had a decent amount of good days, though

yesterday was not one of them. I had really bad nausea and

spent the day in bed. I know how hard it can be and still be

working. I just couldn't take it anywhere and since i was

not in a union, i came really close to getting fired because

of it. I had already started seeing my psychologist and he

agreed that I needed to go on disability. He was surprised

that I was still working. I have anemia and malnutrition,

which my OB/GYN has said was why my periods stopped. I must

say, I don't miss them. I'm sorry your dad is being

non-compliant, that must be hard on you. I know is

very happy that you found each other. I'm going to be

shipping my desktop computer sometime in the next

month. I have to buy my new laptop and then figure out how

to ship the desktop to Ohio. It's a Pentium III, but still

good enough to go on the internet and it has a bunch of neat

programs on it that I'm sure the girls will love to play

around with. It saves me having to figure out what to do

with the system. I'm still waiting for my decision. I had my

appointment with both a internal medicine doctor and a

psychologist for SSD last month. I need to ask my lawyer if

SSD needs anything else. Once SSD has everything they need,

it will take 180 days for them to make a decision. And that,

more than likely, will be no.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to

that of a licensed physician or health care professional.

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