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Hi ,

Yes! I do think we talked before. I live in Springfield, not real

far from you! Thats cool! I'm so sorry that you are feeling this

way too. And for you to have to care for such small children, I

remember those days! When I was about 2 yrs into this illness (got

sick in 93) I had to go to the ER one summer day & my mom kept my

kids, Amy was 7 & the twins were 4 (I think) and Amy was just getting

over the chicken pox and that day my mom had them the twins broke out

with them! Well, she has never had ANY patience with us kids growing

up, and she didn't have the tolorance for sick kids either! When I

finally made it back home, I think like 8 or 9 hours later she

threatened, really, seriously threatened to " I am going to take your

kids away from you! You are nothing but a drug addict & you just go

to the hospital for drugs! There isn't anything wrong with you! Its

all in your head! You had better get your act together or you will

loose your kids! I'm really not able to care for the girls, but I

will if you don't get yourself together! " I cried & cried & cried!

I was furious! A part of me will never, ever forgive her for saying

that! It hurt so much! Don't know why I'm telling you this story,

but it just came back to me when I read how old your boys are. Do

you have a good support system? I don't. The only real support I

have is Lily. My kids are better now then when they were smaller.

But I still need adult support, ya know? My mom finally believed

that I was sick when I went to see Dr. Lehman later in 95. And just

last month she went with me to the ear nose & throat doctor because I

was born with this rare hearing loss & I had trouble understanding

people talk, expecially men. This doctor told me my sinus cavatity

was completely blocked, he would usually offer surgery to open it

back up, but with my health history, the CP expecially & depressed

immune system, that if he did I could die if he did do the surgery.

Lily explained it to me something like there are vessels or something

that is connected to the sinuses & goes to the brain & the infection

could go to the brain & kill me. I don't know now, I really listened

good, didn't I? lol Anyways my mom just about fell out of her chair

when he said that! Now I have to call her everyday, her exact

words... " Now that I know JUST how sick you really are, I'm so worried

about you! You have to call me everyday so I can see that you are ok

& if you don't I'll just sit over here & worry all the time!

Please! Don't go 4 or 5 days without calling! I didn't realize how

sick you really was! " Duh! I've been telling her that for 10

years! AAGGHH!!

How are you doing today? I sure do hope you are feeling alot

better! When does your hubby come back? I know it will be a relief

to have some help with the boys. Take care of YOU & get lots of

rest, ok? I'm taking the girls to the pool today. I'm not really in

the mood, but hey, it will get them away from me for the day! Only

have to put up with me during the 15 min. rest breaks! Talk to you

again soon, ok? If you ever need anything, just holler!

Lots of Hugs,

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Hi ,

>

> This is , I think we have spoke before. I know exactly how

you are feeling right now because I feel exactly the same way!!

Depression, etc. I live in Dayton, where do you live? I have had an

acute attack since last Tuesday, should have been in the hospital,

but my husband was out of town and my two boys (4 and 6) were sick

with the intestinal flu!!!!!!!!!!!!! When it rains, it pours!!!!!

Anyway, just thought I would tell you that I feel exactly how you do

this week. I have felt like I will beat this also, but this week

just took me down.

>

> Here's to a better week.

>

>

]

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