Re: New here with a question, too/

[Guest guest]

:

Stories like yours always make my day. My daughter Amy is 19 months

and we've been doing speech therapy for about 3 months now and my

speech therapist suspects apraxia. (Amy's official diagnosis at 9

months old was hypotonia as she could not get into a sitting position

and this was what started us doing physical therapy. It has always

seemed to be a trunk based hypotonia. We've since added OT and ST

once a week.

I know this topic is widely discussed but I'm hoping you can answer

my questions about the supplements. I give Amy 1/2 tsp. of Nordic

Naturals Fish Oil (Children's DHA -berry flavored). I do this one

mostly because it's the easiest one for me to find. Do you think it

would be worth my while to find the one you use....the ProEFA (Omega

3-6-9) from Nordic Naturals?

Also, I do not yet give a vitamin E supplement. Do you use a special

brand of the Vitamin E (400 d-alpha/200 gamma)? Is it a liquid or a

pill?

I do give 1/2 dropper of poly-vi-sol multivitams. (It has iron in it

so I'm a bit leery of giving her the full dose. I suppose I should

try to find a formulation that doesn't have iron in it. She's a

pretty good meat eater and cream of wheat is our breakfast staple!)

Is your son pretty good about taking all the supplements (do you have

any tricks for getting him to take them?)

Again, I'm so happy to hear that his speech delays are virtually

unnoticable. You give this mom hope!!!

Kind regards,

Ann & Amy

> >

> > My 26 mo old son just started speech therapy last week. He was

> evaluated by EI and was 11 mos delayed in expressive speech

> (receptive language was not delayed at all). I have read alot

about

> apraxia since joining this group a couple of days ago. He doesn't

> have any kind of diagnosis yet since we only just began the

process.

> My question is about oral apraxia. Should a 26 mo old be able to

> lick his lips and make a kiss face? I know the inability to do so

is

> a sign of oral apraxia, but should he be able to do it this young?

I

> know he can't make a kiss face because when I ask him to give me a

> kiss he just sort of opens his mouth and touches my cheek. So, I

> wanted to see if he can lick his lips. I showed him how and when

he

> tried he just opened his mouth a little and barely stuck out his

> tongue (didn't pass his lips). He couldn't move his tongue back

and

> forth so he moved his whole head back and forth. It's very cute to

> watch, but not if I find out that he should be

> > able to actually lick his lips. (I've never seen his attempt to

> lick food off his lips, he wipes it with the back of his hand). He

> blows, but it's more like a really strong " huff " . His lips don't

> move into a circle, they just stay straight. He can definitely

suck

> a straw with no problem, though.

> >

> > I think verbal apraxia is a possibility, but I'm still reading

> about that. I think my biggest question about that is if he had

> verbal apraxia, would he be able to say any words at all? He does

> have some--baw (ball), daw (dog), nine (mine), mom, dada, iss

(shoes,

> fish), uhoh, uhduh (all done). Some " kind of " words are eeee

> (drink), igh (outside), ahah (airplane and bird). He said mo

(more)

> for the speech therapist on Wednesday, but I can't seem to get him

to

> say it again. He does the sign for more and just makes a vowel

sound

> with it.

> >

> > If he's just a late talker, would the supplements I've seen you

all

> talk about help him?

> >

> > Bridget

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Ann,

I don't know the contents of the NN DHA Liquid, but most kids with

speech issues seem to benefit from a higher ratio of EPA Omega 3 vs

DHA Omega 3. I would definitely try to find the ProEFA (retail

stores usually carry Omega Complete 3-6-9) and experiment with one

bottle to see if it makes a difference. If you decide to use it, on-

line is definitely cheaper than retail. We usually buy 6 bottles at

a time (Our whole family takes it). Try Vitaminshoppe.com,

Vitacost.com, omega-direct.com, or the " shop-in-service " from the

Cherab.org website.

I stick a needle in the end of the capsule (people also use pushpins

or those things that hold corn cobs) and squeeze the oil onto a

teaspoon and then give it to him straight. He takes it with no

problem. I've heard other people giving it in apple or pear sauce,

and in yogurt. The only thing is that you are not supposed to put it

into anything above room temperature.

I've been giving my son " gummi " type vitamins since he was 2. The

best one I've found is Yummi Bears by Hero Nutritionals.(best vitamin

content, least amount of dyes, sugar etc.) The big advantage is that

my son takes them with no problem (1 after each meal). You might try

to find a brand that works for you.

Vitamin E: People use all sorts of brand here. You just need to get

one that is d-alpha (natural) and NOT " dl " alpha which is

artificial. Also, most people are seeing better results with a

mixture of the d-alpha and gamma (mixed tocopherols). However, I

would try one thing at a time, just to make sure how your daughter

reacts to them.

Hope this helps

(Max's Mom)

> > >

> > > My 26 mo old son just started speech therapy last week. He was

> > evaluated by EI and was 11 mos delayed in expressive speech

> > (receptive language was not delayed at all). I have read alot

> about

> > apraxia since joining this group a couple of days ago. He

doesn't

> > have any kind of diagnosis yet since we only just began the

> process.

> > My question is about oral apraxia. Should a 26 mo old be able to

> > lick his lips and make a kiss face? I know the inability to do

so

> is

> > a sign of oral apraxia, but should he be able to do it this

young?

> I

> > know he can't make a kiss face because when I ask him to give me

a

> > kiss he just sort of opens his mouth and touches my cheek. So, I

> > wanted to see if he can lick his lips. I showed him how and when

> he

> > tried he just opened his mouth a little and barely stuck out his

> > tongue (didn't pass his lips). He couldn't move his tongue back

> and

> > forth so he moved his whole head back and forth. It's very cute

to

> > watch, but not if I find out that he should be

> > > able to actually lick his lips. (I've never seen his attempt

to

> > lick food off his lips, he wipes it with the back of his hand).

He

> > blows, but it's more like a really strong " huff " . His lips don't

> > move into a circle, they just stay straight. He can definitely

> suck

> > a straw with no problem, though.

> > >

> > > I think verbal apraxia is a possibility, but I'm still reading

> > about that. I think my biggest question about that is if he had

> > verbal apraxia, would he be able to say any words at all? He

does

> > have some--baw (ball), daw (dog), nine (mine), mom, dada, iss

> (shoes,

> > fish), uhoh, uhduh (all done). Some " kind of " words are eeee

> > (drink), igh (outside), ahah (airplane and bird). He said mo

> (more)

> > for the speech therapist on Wednesday, but I can't seem to get

him

> to

> > say it again. He does the sign for more and just makes a vowel

> sound

> > with it.

> > >

> > > If he's just a late talker, would the supplements I've seen you

> all

> > talk about help him?

> > >

> > > Bridget

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Thanks . The info is helpful.

> > > >

> > > > My 26 mo old son just started speech therapy last week. He

was

> > > evaluated by EI and was 11 mos delayed in expressive speech

> > > (receptive language was not delayed at all). I have read alot

> > about

> > > apraxia since joining this group a couple of days ago. He

> doesn't

> > > have any kind of diagnosis yet since we only just began the

> > process.

> > > My question is about oral apraxia. Should a 26 mo old be able

to

> > > lick his lips and make a kiss face? I know the inability to do

> so

> > is

> > > a sign of oral apraxia, but should he be able to do it this

> young?

> > I

> > > know he can't make a kiss face because when I ask him to give

me

> a

> > > kiss he just sort of opens his mouth and touches my cheek. So,

I

> > > wanted to see if he can lick his lips. I showed him how and

when

> > he

> > > tried he just opened his mouth a little and barely stuck out

his

> > > tongue (didn't pass his lips). He couldn't move his tongue

back

> > and

> > > forth so he moved his whole head back and forth. It's very

cute

> to

> > > watch, but not if I find out that he should be

> > > > able to actually lick his lips. (I've never seen his attempt

> to

> > > lick food off his lips, he wipes it with the back of his

hand).

> He

> > > blows, but it's more like a really strong " huff " . His lips

don't

> > > move into a circle, they just stay straight. He can definitely

> > suck

> > > a straw with no problem, though.

> > > >

> > > > I think verbal apraxia is a possibility, but I'm still

reading

> > > about that. I think my biggest question about that is if he

had

> > > verbal apraxia, would he be able to say any words at all? He

> does

> > > have some--baw (ball), daw (dog), nine (mine), mom, dada, iss

> > (shoes,

> > > fish), uhoh, uhduh (all done). Some " kind of " words are eeee

> > > (drink), igh (outside), ahah (airplane and bird). He said mo

> > (more)

> > > for the speech therapist on Wednesday, but I can't seem to get

> him

> > to

> > > say it again. He does the sign for more and just makes a vowel

> > sound

> > > with it.

> > > >

> > > > If he's just a late talker, would the supplements I've seen

you

> > all

> > > talk about help him?

> > > >

> > > > Bridget

> > > >

> > > >

> > > >

> > > > __________________________________________________

> > > >