Re: To Tameasa (hypertriglyceridemia) Request for help/sharing

[Guest guest]

Hi Tameasa,

I just came on board today and immediately ran a search for

hypertriglyceridemia and your notice came up. I have been diagnosed

(actually suffered much longer) with Type IV (Familial)

Hypertriglyceridemia for around twenty years. My first accurately

diagnosed bout of pancreatitis occurred at same time which resulted

in the the bloodwork that indicated what was causing me so much

pain. Before that it had been called everything from too much gas

to appendicitis. I was in nursing school when I was first

diagnosed. I have a very off the chart case.... my lipid levels

are often unmeasurable when they are out of control. I am an RN

and, while there is no perfection to this disease, I HAVE been able

to get pretty good at staying out of the hospital when I am allowed

to take good care of myself. I do have Type II Diabetes (the kind

that does not require insulin) now and several other chronic health

problems that all tie in...

I am currently trying to retire as a nurse and be approved for

social security disability. I can either spend most of my time

maintaining my health or slowly die taking care of other peoples

health to the detriment of mine. I feel like I've done my bit for

everyone else and I am to the point now where I have to live at

least long enough to meet my grandchildren. I've cared for and

buried a younger sister and a younger brother who ultimately died of

complications of diabetes.

My point is that I have lived on BOTH sides of the fence for over

twenty years. I can speak both languages- and even I still have a

very hard time getting through to many of our so called health care

providers.

If I can be of any help to you in any way, please do not hesitate to

email me. I am online often. I have been hospitalized for this

problem and it's complications probably 7-8 times over the years and

should have been many other times. I have worked out some good ways

to maintain though and have learned many things by way of my nursing

training and trial and error as well. Much has to do with nutrition

(as well as knowing the reasonable limits of how much nutrition can

help) and exercise. Get in touch-

Lawrence Beebe, RN

alwaysgoldenrule@...