RE: Mick and Alli at preschool (long)

[Guest guest]

In a message dated 2/2/2003 8:03:26 PM Eastern Standard Time,

grosehsd@... writes:

> Mick and Allie's new school sounds great! The class is amazingly small! 4

> kids....wow.....Are you enjoying them in school?

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...

[Guest guest]

,

So glad they are enjoying pre-school. Mine started their new school

year today. Yippee, the house is quiet.

(Australia)

Mick and Alli at preschool (long)

Hi all,

I just wanted to share Mick and Alli's update

and preschool experiences.

First, they both are culturing their own little

bugs - Mick is currently on TOBI and Septra for

psuedomonas and Staph A. Alli is on Septra for

S. Maltophilia and Staph A. We got a letter in

the mail saying that Alli needs to wear a mask

when she comes into clinic because the S. Maltophilia

has a tendency to be antibiotic resistant. Ugh.

I hope we can keep it on her - it won't be easy

to keep a mask on a 3 year old - anyone have any

advice here? Super glue maybe? LOL

Their first day of preschool was Thursday and

went well. Friday's class was great, because I could

enjoy it more, since I didn't have to spend the

whole time with the school nurse going over

paperwork and procedures.

Mick and Alli were of course running rings around

the other child, who has Down's. It was sweet to

watch Alli interact with Marcus, the other student

in the class. She fed him Goldfish crackers, and

checked in on him once in a while. Mick was more into

doing his own thing, and was very interested in the

computer. The highlight was when the teacher pulled

out the parachute. Mick and Alli had the best time

running around under it as the teacher and aid waved

it over their heads, and let it drop around them.

The laughter was enchanting and infectious.

The preschool is an excellent one for the twins,

because it is a very small class - just two other

students besides Mick and Alli. Marcus, who I

mentioned before has Down's syndrome and Byron,

who has seizure disorder, but is more advanced.

Byron has been out sick with a cold. There are so

many positive things about this class, besides the

small class size. Since the other students are

also medically fragile, the parents are all very

careful about keeping their kids home when they are

sick, and everything is kept very clean. The teacher

makes sure all infection control guidelines are

met, and is willing to train for special needs, like

tube-feeding Alli and administering her enzymes.

Also, because the teacher, Cathy Riviera, has many

allergies, she is a stickler for keeping things clean

and not using powder or other substances that may

be bad for the lungs.

Although Mick and Alli are speech-delayed, their

cognitive abilities are very good, and they have

excellent gross and fine motor skills. This is a

huge blessing since they were born at 25.5 weeks

gestation and so it could have been much worse for

them (i.e. cerebral palsy and retinopathy of

prematurity to name just two common conditions

for micro-preemies).

Other than that we've been busy having our house

torn apart and put back together. Roof leaks forced

us to treat for mold in the dining room, so we had

to tear out the lathe and plaster, treat the wood

members with foul-smelling cleaning solutions and

then suffer through construction dust as they put

up new wallboard. Then, just before Christmas a

very large tree fell on the corner of our house, and

we had to have it removed. We're still waiting for

the damage to the stucco, roof shingles and drainpipe

to be repaired.

I hope everyone else's 2003 is going more smoothly and

stress-free than ours.

hugs,

C

Mommy to Mick and Alli, 3 yo twins wcf

[Guest guest]

Thanks so much for sharing about Mick and Allie's new school. It sounds like it

will be great for them (and them for it!).

At our clinic, everyone (with CF) has to wear a mask. They keep a box

downstairs so everyone can put one on before they even go up to the clinic. If

someone forgets, they are handed a mask. It seems like it would be easier for

Allie if everyone wore a mask, but maybe especially if MIck did. I'm not sure

how you could change the policy at your clinic, but I wonder how many clinics

now don't require everyone to wear masks. I would think most do require it now.

Again, thanks, and be sure and keep us posted as to how Marcus and Byron are

doing too!

Lori in Florida

Mick and Alli at preschool (long)

Hi all,

I just wanted to share Mick and Alli's update

and preschool experiences.

First, they both are culturing their own little

bugs - Mick is currently on TOBI and Septra for

psuedomonas and Staph A. Alli is on Septra for

S. Maltophilia and Staph A. We got a letter in

the mail saying that Alli needs to wear a mask

when she comes into clinic because the S. Maltophilia

has a tendency to be antibiotic resistant. Ugh.

I hope we can keep it on her - it won't be easy

to keep a mask on a 3 year old - anyone have any

advice here? Super glue maybe? LOL

Their first day of preschool was Thursday and

went well. Friday's class was great, because I could

enjoy it more, since I didn't have to spend the

whole time with the school nurse going over

paperwork and procedures.

Mick and Alli were of course running rings around

the other child, who has Down's. It was sweet to

watch Alli interact with Marcus, the other student

in the class. She fed him Goldfish crackers, and

checked in on him once in a while. Mick was more into

doing his own thing, and was very interested in the

computer. The highlight was when the teacher pulled

out the parachute. Mick and Alli had the best time

running around under it as the teacher and aid waved

it over their heads, and let it drop around them.

The laughter was enchanting and infectious.

The preschool is an excellent one for the twins,

because it is a very small class - just two other

students besides Mick and Alli. Marcus, who I

mentioned before has Down's syndrome and Byron,

who has seizure disorder, but is more advanced.

Byron has been out sick with a cold. There are so

many positive things about this class, besides the

small class size. Since the other students are

also medically fragile, the parents are all very

careful about keeping their kids home when they are

sick, and everything is kept very clean. The teacher

makes sure all infection control guidelines are

met, and is willing to train for special needs, like

tube-feeding Alli and administering her enzymes.

Also, because the teacher, Cathy Riviera, has many

allergies, she is a stickler for keeping things clean

and not using powder or other substances that may

be bad for the lungs.

Although Mick and Alli are speech-delayed, their

cognitive abilities are very good, and they have

excellent gross and fine motor skills. This is a

huge blessing since they were born at 25.5 weeks

gestation and so it could have been much worse for

them (i.e. cerebral palsy and retinopathy of

prematurity to name just two common conditions

for micro-preemies).

Other than that we've been busy having our house

torn apart and put back together. Roof leaks forced

us to treat for mold in the dining room, so we had

to tear out the lathe and plaster, treat the wood

members with foul-smelling cleaning solutions and

then suffer through construction dust as they put

up new wallboard. Then, just before Christmas a

very large tree fell on the corner of our house, and

we had to have it removed. We're still waiting for

the damage to the stucco, roof shingles and drainpipe

to be repaired.

I hope everyone else's 2003 is going more smoothly and

stress-free than ours.

hugs,

C

Mommy to Mick and Alli, 3 yo twins wcf

[Guest guest]

C.

I don't know if you can do this to masks but if you can...can you

decorate it w/ something Alli likes? If you're a good artist one of

her faveorite characters or flowers/tye die looking or something that

would make it " pretty " so she wouldn't mind so much to wear it? Just

a thought.. Christy Mom of Wyatt 7wcf and Hunter 2.5wocf

> the mail saying that Alli needs to wear a mask

> when she comes into clinic because the S. Maltophilia

> has a tendency to be antibiotic resistant. Ugh.

> I hope we can keep it on her - it won't be easy

> to keep a mask on a 3 year old - anyone have any

> advice here? Super glue maybe? LOL

[Guest guest]

Lori,

No one at our clinic wears a mask and the PA kids are not separated. It

really frustrates me as I've asked about these policies, but of course

its all down to funding.

(Australia)

Re: Mick and Alli at preschool (long)

Thanks so much for sharing about Mick and Allie's new school. It sounds

like it will be great for them (and them for it!).

At our clinic, everyone (with CF) has to wear a mask. They keep a box

downstairs so everyone can put one on before they even go up to the

clinic. If someone forgets, they are handed a mask. It seems like it

would be easier for Allie if everyone wore a mask, but maybe especially

if MIck did. I'm not sure how you could change the policy at your

clinic, but I wonder how many clinics now don't require everyone to wear

masks. I would think most do require it now.

Again, thanks, and be sure and keep us posted as to how Marcus and Byron

are doing too!

Lori in Florida

Mick and Alli at preschool (long)

Hi all,

I just wanted to share Mick and Alli's update

and preschool experiences.

First, they both are culturing their own little

bugs - Mick is currently on TOBI and Septra for

psuedomonas and Staph A. Alli is on Septra for

S. Maltophilia and Staph A. We got a letter in

the mail saying that Alli needs to wear a mask

when she comes into clinic because the S. Maltophilia

has a tendency to be antibiotic resistant. Ugh.

I hope we can keep it on her - it won't be easy

to keep a mask on a 3 year old - anyone have any

advice here? Super glue maybe? LOL

Their first day of preschool was Thursday and

went well. Friday's class was great, because I could

enjoy it more, since I didn't have to spend the

whole time with the school nurse going over

paperwork and procedures.

Mick and Alli were of course running rings around

the other child, who has Down's. It was sweet to

watch Alli interact with Marcus, the other student

in the class. She fed him Goldfish crackers, and

checked in on him once in a while. Mick was more into

doing his own thing, and was very interested in the

computer. The highlight was when the teacher pulled

out the parachute. Mick and Alli had the best time

running around under it as the teacher and aid waved

it over their heads, and let it drop around them.

The laughter was enchanting and infectious.

The preschool is an excellent one for the twins,

because it is a very small class - just two other

students besides Mick and Alli. Marcus, who I

mentioned before has Down's syndrome and Byron,

who has seizure disorder, but is more advanced.

Byron has been out sick with a cold. There are so

many positive things about this class, besides the

small class size. Since the other students are

also medically fragile, the parents are all very

careful about keeping their kids home when they are

sick, and everything is kept very clean. The teacher

makes sure all infection control guidelines are

met, and is willing to train for special needs, like

tube-feeding Alli and administering her enzymes.

Also, because the teacher, Cathy Riviera, has many

allergies, she is a stickler for keeping things clean

and not using powder or other substances that may

be bad for the lungs.

Although Mick and Alli are speech-delayed, their

cognitive abilities are very good, and they have

excellent gross and fine motor skills. This is a

huge blessing since they were born at 25.5 weeks

gestation and so it could have been much worse for

them (i.e. cerebral palsy and retinopathy of

prematurity to name just two common conditions

for micro-preemies).

Other than that we've been busy having our house

torn apart and put back together. Roof leaks forced

us to treat for mold in the dining room, so we had

to tear out the lathe and plaster, treat the wood

members with foul-smelling cleaning solutions and

then suffer through construction dust as they put

up new wallboard. Then, just before Christmas a

very large tree fell on the corner of our house, and

we had to have it removed. We're still waiting for

the damage to the stucco, roof shingles and drainpipe

to be repaired.

I hope everyone else's 2003 is going more smoothly and

stress-free than ours.

hugs,

C

Mommy to Mick and Alli, 3 yo twins wcf

[Guest guest]

, Gosh, it seems like a mask is a really good way to keep cross-infections

down and at a pretty minimal cost. Maybe you should buy some masks and have

Elish wear them and that would give the clinic a hint!

Lori in Florida

Mick and Alli at preschool (long)

Hi all,

I just wanted to share Mick and Alli's update

and preschool experiences.

First, they both are culturing their own little

bugs - Mick is currently on TOBI and Septra for

psuedomonas and Staph A. Alli is on Septra for

S. Maltophilia and Staph A. We got a letter in

the mail saying that Alli needs to wear a mask

when she comes into clinic because the S. Maltophilia

has a tendency to be antibiotic resistant. Ugh.

I hope we can keep it on her - it won't be easy

to keep a mask on a 3 year old - anyone have any

advice here? Super glue maybe? LOL

Their first day of preschool was Thursday and

went well. Friday's class was great, because I could

enjoy it more, since I didn't have to spend the

whole time with the school nurse going over

paperwork and procedures.

Mick and Alli were of course running rings around

the other child, who has Down's. It was sweet to

watch Alli interact with Marcus, the other student

in the class. She fed him Goldfish crackers, and

checked in on him once in a while. Mick was more into

doing his own thing, and was very interested in the

computer. The highlight was when the teacher pulled

out the parachute. Mick and Alli had the best time

running around under it as the teacher and aid waved

it over their heads, and let it drop around them.

The laughter was enchanting and infectious.

The preschool is an excellent one for the twins,

because it is a very small class - just two other

students besides Mick and Alli. Marcus, who I

mentioned before has Down's syndrome and Byron,

who has seizure disorder, but is more advanced.

Byron has been out sick with a cold. There are so

many positive things about this class, besides the

small class size. Since the other students are

also medically fragile, the parents are all very

careful about keeping their kids home when they are

sick, and everything is kept very clean. The teacher

makes sure all infection control guidelines are

met, and is willing to train for special needs, like

tube-feeding Alli and administering her enzymes.

Also, because the teacher, Cathy Riviera, has many

allergies, she is a stickler for keeping things clean

and not using powder or other substances that may

be bad for the lungs.

Although Mick and Alli are speech-delayed, their

cognitive abilities are very good, and they have

excellent gross and fine motor skills. This is a

huge blessing since they were born at 25.5 weeks

gestation and so it could have been much worse for

them (i.e. cerebral palsy and retinopathy of

prematurity to name just two common conditions

for micro-preemies).

Other than that we've been busy having our house

torn apart and put back together. Roof leaks forced

us to treat for mold in the dining room, so we had

to tear out the lathe and plaster, treat the wood

members with foul-smelling cleaning solutions and

then suffer through construction dust as they put

up new wallboard. Then, just before Christmas a

very large tree fell on the corner of our house, and

we had to have it removed. We're still waiting for

the damage to the stucco, roof shingles and drainpipe

to be repaired.

I hope everyone else's 2003 is going more smoothly and

stress-free than ours.

hugs,

C

Mommy to Mick and Alli, 3 yo twins wcf

[Guest guest]

-

Can you bring your own mask? I am thinking of doing that for Wyatt

so even if the other kids are breathing stuff everywhere he'll have a

mask on to filter most of it out. I wish I would've known to do this

years ago and maybe could've prolonged him getting PA's. Christy Mom

of Wyatt 7 wcf and Hunter 2.5 wocf first day of daycare but we are

calling it " school "

> Lori,

>

> No one at our clinic wears a mask and the PA kids are not

separated. It

> really frustrates me as I've asked about these policies, but of

course

> its all down to funding.

>

> (Australia)

>

> Re: Mick and Alli at preschool (long)

>

>

> Thanks so much for sharing about Mick and Allie's new school. It

sounds

> like it will be great for them (and them for it!).

>

> At our clinic, everyone (with CF) has to wear a mask. They keep a

box

> downstairs so everyone can put one on before they even go up to the

> clinic. If someone forgets, they are handed a mask. It seems like

it

> would be easier for Allie if everyone wore a mask, but maybe

especially

> if MIck did. I'm not sure how you could change the policy at your

> clinic, but I wonder how many clinics now don't require everyone to

wear

> masks. I would think most do require it now.

>

> Again, thanks, and be sure and keep us posted as to how Marcus and

Byron

> are doing too!

>

> Lori in Florida

> Mick and Alli at preschool (long)

>

>

> Hi all,

>

> I just wanted to share Mick and Alli's update

> and preschool experiences.

>

> First, they both are culturing their own little

> bugs - Mick is currently on TOBI and Septra for

> psuedomonas and Staph A. Alli is on Septra for

> S. Maltophilia and Staph A. We got a letter in

> the mail saying that Alli needs to wear a mask

> when she comes into clinic because the S. Maltophilia

> has a tendency to be antibiotic resistant. Ugh.

> I hope we can keep it on her - it won't be easy

> to keep a mask on a 3 year old - anyone have any

> advice here? Super glue maybe? LOL

>

> Their first day of preschool was Thursday and

> went well. Friday's class was great, because I could

> enjoy it more, since I didn't have to spend the

> whole time with the school nurse going over

> paperwork and procedures.

>

> Mick and Alli were of course running rings around

> the other child, who has Down's. It was sweet to

> watch Alli interact with Marcus, the other student

> in the class. She fed him Goldfish crackers, and

> checked in on him once in a while. Mick was more into

> doing his own thing, and was very interested in the

> computer. The highlight was when the teacher pulled

> out the parachute. Mick and Alli had the best time

> running around under it as the teacher and aid waved

> it over their heads, and let it drop around them.

> The laughter was enchanting and infectious.

>

> The preschool is an excellent one for the twins,

> because it is a very small class - just two other

> students besides Mick and Alli. Marcus, who I

> mentioned before has Down's syndrome and Byron,

> who has seizure disorder, but is more advanced.

> Byron has been out sick with a cold. There are so

> many positive things about this class, besides the

> small class size. Since the other students are

> also medically fragile, the parents are all very

> careful about keeping their kids home when they are

> sick, and everything is kept very clean. The teacher

> makes sure all infection control guidelines are

> met, and is willing to train for special needs, like

> tube-feeding Alli and administering her enzymes.

>

> Also, because the teacher, Cathy Riviera, has many

> allergies, she is a stickler for keeping things clean

> and not using powder or other substances that may

> be bad for the lungs.

>

> Although Mick and Alli are speech-delayed, their

> cognitive abilities are very good, and they have

> excellent gross and fine motor skills. This is a

> huge blessing since they were born at 25.5 weeks

> gestation and so it could have been much worse for

> them (i.e. cerebral palsy and retinopathy of

> prematurity to name just two common conditions

> for micro-preemies).

>

> Other than that we've been busy having our house

> torn apart and put back together. Roof leaks forced

> us to treat for mold in the dining room, so we had

> to tear out the lathe and plaster, treat the wood

> members with foul-smelling cleaning solutions and

> then suffer through construction dust as they put

> up new wallboard. Then, just before Christmas a

> very large tree fell on the corner of our house, and

> we had to have it removed. We're still waiting for

> the damage to the stucco, roof shingles and drainpipe

> to be repaired.

>

> I hope everyone else's 2003 is going more smoothly and

> stress-free than ours.

>

> hugs,

>

> C

> Mommy to Mick and Alli, 3 yo twins wcf

>

>

>

>

[Guest guest]

Where would I get one from? A pharmacy maybe? I think I may try it,

even if its to just show the Dr's that I am not happy with the

situation. Eilish would keep it on as when I tell her to cover her

mouth she does.

Re: Mick and Alli at preschool (long)

>

>

> Thanks so much for sharing about Mick and Allie's new school. It

sounds

> like it will be great for them (and them for it!).

>

> At our clinic, everyone (with CF) has to wear a mask. They keep a

box

> downstairs so everyone can put one on before they even go up to the

> clinic. If someone forgets, they are handed a mask. It seems like

it

> would be easier for Allie if everyone wore a mask, but maybe

especially

> if MIck did. I'm not sure how you could change the policy at your

> clinic, but I wonder how many clinics now don't require everyone to

wear

> masks. I would think most do require it now.

>

> Again, thanks, and be sure and keep us posted as to how Marcus and

Byron

> are doing too!

>

> Lori in Florida

> Mick and Alli at preschool (long)

>

>

> Hi all,

>

> I just wanted to share Mick and Alli's update

> and preschool experiences.

>

> First, they both are culturing their own little

> bugs - Mick is currently on TOBI and Septra for

> psuedomonas and Staph A. Alli is on Septra for

> S. Maltophilia and Staph A. We got a letter in

> the mail saying that Alli needs to wear a mask

> when she comes into clinic because the S. Maltophilia

> has a tendency to be antibiotic resistant. Ugh.

> I hope we can keep it on her - it won't be easy

> to keep a mask on a 3 year old - anyone have any

> advice here? Super glue maybe? LOL

>

> Their first day of preschool was Thursday and

> went well. Friday's class was great, because I could

> enjoy it more, since I didn't have to spend the

> whole time with the school nurse going over

> paperwork and procedures.

>

> Mick and Alli were of course running rings around

> the other child, who has Down's. It was sweet to

> watch Alli interact with Marcus, the other student

> in the class. She fed him Goldfish crackers, and

> checked in on him once in a while. Mick was more into

> doing his own thing, and was very interested in the

> computer. The highlight was when the teacher pulled

> out the parachute. Mick and Alli had the best time

> running around under it as the teacher and aid waved

> it over their heads, and let it drop around them.

> The laughter was enchanting and infectious.

>

> The preschool is an excellent one for the twins,

> because it is a very small class - just two other

> students besides Mick and Alli. Marcus, who I

> mentioned before has Down's syndrome and Byron,

> who has seizure disorder, but is more advanced.

> Byron has been out sick with a cold. There are so

> many positive things about this class, besides the

> small class size. Since the other students are

> also medically fragile, the parents are all very

> careful about keeping their kids home when they are

> sick, and everything is kept very clean. The teacher

> makes sure all infection control guidelines are

> met, and is willing to train for special needs, like

> tube-feeding Alli and administering her enzymes.

>

> Also, because the teacher, Cathy Riviera, has many

> allergies, she is a stickler for keeping things clean

> and not using powder or other substances that may

> be bad for the lungs.

>

> Although Mick and Alli are speech-delayed, their

> cognitive abilities are very good, and they have

> excellent gross and fine motor skills. This is a

> huge blessing since they were born at 25.5 weeks

> gestation and so it could have been much worse for

> them (i.e. cerebral palsy and retinopathy of

> prematurity to name just two common conditions

> for micro-preemies).

>

> Other than that we've been busy having our house

> torn apart and put back together. Roof leaks forced

> us to treat for mold in the dining room, so we had

> to tear out the lathe and plaster, treat the wood

> members with foul-smelling cleaning solutions and

> then suffer through construction dust as they put

> up new wallboard. Then, just before Christmas a

> very large tree fell on the corner of our house, and

> we had to have it removed. We're still waiting for

> the damage to the stucco, roof shingles and drainpipe

> to be repaired.

>

> I hope everyone else's 2003 is going more smoothly and

> stress-free than ours.

>

> hugs,

>

> C

> Mommy to Mick and Alli, 3 yo twins wcf

>

>

>

>

[Guest guest]

I'm not sure. Maybe check w/ your local pharmacy/drugstore or even

ask next time you go to clinic if they can get you some. Maybe even a

medical supply store online? Christy

-- In cfparents , " Baxter " <scottie@a...> wrote:

> Where would I get one from? A pharmacy maybe? I think I may try

it,

> even if its to just show the Dr's that I am not happy with the

> situation. Eilish would keep it on as when I tell her to cover her

> mouth she does.

>

>

>

> Re: Mick and Alli at preschool (long)

> >

> >

> > Thanks so much for sharing about Mick and Allie's new school. It

> sounds

> > like it will be great for them (and them for it!).

> >

> > At our clinic, everyone (with CF) has to wear a mask. They keep

a

> box

> > downstairs so everyone can put one on before they even go up to

the

> > clinic. If someone forgets, they are handed a mask. It seems

like

> it

> > would be easier for Allie if everyone wore a mask, but maybe

> especially

> > if MIck did. I'm not sure how you could change the policy at your

> > clinic, but I wonder how many clinics now don't require everyone

to

> wear

> > masks. I would think most do require it now.

> >

> > Again, thanks, and be sure and keep us posted as to how Marcus

and

> Byron

> > are doing too!

> >

> > Lori in Florida

> > Mick and Alli at preschool (long)

> >

> >

> > Hi all,

> >

> > I just wanted to share Mick and Alli's update

> > and preschool experiences.

> >

> > First, they both are culturing their own little

> > bugs - Mick is currently on TOBI and Septra for

> > psuedomonas and Staph A. Alli is on Septra for

> > S. Maltophilia and Staph A. We got a letter in

> > the mail saying that Alli needs to wear a mask

> > when she comes into clinic because the S. Maltophilia

> > has a tendency to be antibiotic resistant. Ugh.

> > I hope we can keep it on her - it won't be easy

> > to keep a mask on a 3 year old - anyone have any

> > advice here? Super glue maybe? LOL

> >

> > Their first day of preschool was Thursday and

> > went well. Friday's class was great, because I could

> > enjoy it more, since I didn't have to spend the

> > whole time with the school nurse going over

> > paperwork and procedures.

> >

> > Mick and Alli were of course running rings around

> > the other child, who has Down's. It was sweet to

> > watch Alli interact with Marcus, the other student

> > in the class. She fed him Goldfish crackers, and

> > checked in on him once in a while. Mick was more into

> > doing his own thing, and was very interested in the

> > computer. The highlight was when the teacher pulled

> > out the parachute. Mick and Alli had the best time

> > running around under it as the teacher and aid waved

> > it over their heads, and let it drop around them.

> > The laughter was enchanting and infectious.

> >

> > The preschool is an excellent one for the twins,

> > because it is a very small class - just two other

> > students besides Mick and Alli. Marcus, who I

> > mentioned before has Down's syndrome and Byron,

> > who has seizure disorder, but is more advanced.

> > Byron has been out sick with a cold. There are so

> > many positive things about this class, besides the

> > small class size. Since the other students are

> > also medically fragile, the parents are all very

> > careful about keeping their kids home when they are

> > sick, and everything is kept very clean. The teacher

> > makes sure all infection control guidelines are

> > met, and is willing to train for special needs, like

> > tube-feeding Alli and administering her enzymes.

> >

> > Also, because the teacher, Cathy Riviera, has many

> > allergies, she is a stickler for keeping things clean

> > and not using powder or other substances that may

> > be bad for the lungs.

> >

> > Although Mick and Alli are speech-delayed, their

> > cognitive abilities are very good, and they have

> > excellent gross and fine motor skills. This is a

> > huge blessing since they were born at 25.5 weeks

> > gestation and so it could have been much worse for

> > them (i.e. cerebral palsy and retinopathy of

> > prematurity to name just two common conditions

> > for micro-preemies).

> >

> > Other than that we've been busy having our house

> > torn apart and put back together. Roof leaks forced

> > us to treat for mold in the dining room, so we had

> > to tear out the lathe and plaster, treat the wood

> > members with foul-smelling cleaning solutions and

> > then suffer through construction dust as they put

> > up new wallboard. Then, just before Christmas a

> > very large tree fell on the corner of our house, and

> > we had to have it removed. We're still waiting for

> > the damage to the stucco, roof shingles and drainpipe

> > to be repaired.

> >

> > I hope everyone else's 2003 is going more smoothly and

> > stress-free than ours.

> >

> > hugs,

> >

> > C

> > Mommy to Mick and Alli, 3 yo twins wcf

> >

> >

> >

> >

[Guest guest]

Hi Christy,

That's a good suggestion. I'll try it. She loves

Barney, so we might bring Barney stickers that she

can stick on the mask when we get to clinic.

Thanks!

C

Mommy to Mick and Alli, 3 yo twins wcf

--- " Christy "

wrote:

> C.

> I don't know if you can do this to masks but if you

> can...can you

> decorate it w/ something Alli likes? If you're a

> good artist one of

> her faveorite characters or flowers/tye die looking

> or something that

> would make it " pretty " so she wouldn't mind so much

> to wear it? Just

> a thought.. Christy Mom of Wyatt 7wcf and Hunter

> 2.5wocf

>

>

>

>

>

> > the mail saying that Alli needs to wear a mask

> > when she comes into clinic because the S.

> Maltophilia

> > has a tendency to be antibiotic resistant. Ugh.

> > I hope we can keep it on her - it won't be easy

> > to keep a mask on a 3 year old - anyone have any

> > advice here? Super glue maybe? LOL

>

>

>