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hopeless today

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Dear Robin this must have been the weekend for feeling hopeless. I am so

tired of this disease. What bugs me the most is my support people that love

me and support me get to take vacations from and the disease. Woould I lov e

to take a vacation from the disease myself. I am 3 days off rom having some

major work done on my dorsal duct, in the mean time I have to deal with the

pain, being tired, spacey and throwing up. I am back in the fighting ring

again and am going to fight hard to get some relief from this disease. I

guess what I am trhying to say is I hear you,been there all weekend and am

back on the horse again to fighting this disease. Hang in there good days do

happen..............lots of hope Paget

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Robin,

I am so glad that you knew you could reach out to us. It is so frustrating to

get the guts up to seek out mental health just to feel like the door is shut

in your face. It seems that there should be more sensitivity when the

receptionists handle referrals. I forgot where you live. If you do find some

good resources for depression, please let me know so we can use that in the

future. In the meantime, call the PAI toll free number sometime, keep

posting, and if you feel like chatting, send out a post that you will be

there.

I know the best way for me to get out of depression is to help someone else,

even if it eludes my depression for that time. For Easter, Tull and I went

over to the hospital and visited patients with Pancreatitis. We had a really

good time. For a couple of the patients, they had never met anyone with

Pancreatitis before. I said, " Do I have a place for you! " LOL, as I handed

them my business card with the message board address.

And, staying close to the group helps. I find that I get more depressed when

my pain pulls me away and I am not able to stay in touch. Everybody is

different. There are some people who pull away from the board when they are

depressed and return to the board when they are better, others leave the

board when the are feeling good, and return to the board when they are

depressed. It is hard to keep up with everyone, but it saddens me when I know

someone has been hurting in silence.

I am glad you are posting.

Karyn E. , RN

Exec. Director, PAI

Indianapolis, IN

The PAI serves as a means of support, information, and advocacy. The PAI

cannot offer medical advice or direction nor substitute for your health care

provider.

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