Cassie's Pain

[Guest guest]

Dear Patty,

My heart just breaks for you and Cassie. I think it's easier for us,

as parents, to carry the burden of pain than to see our babies

suffer. What a miracle you experienced on your return trip to the

ER! Isn't there a saying about it being darkest before the dawn? To

find a med. care worker with CP AND an informed PA . . . it must be

your pot of gold. My sister was a PA and I know how knowledgeable

and compassionate some can be. Not the same " attitude " as an MD.

Can I ask an ignorant question please? What is a PCP? Is it

Cassie's pediatric physician? Where I live, it can mean Pain Care

Professional. Has Cassie ever seen a pain specialist? My cp/ap pain

is managed by a wonderful pain doctor. She keeps me educated on the

latest info. Write me if you want to discuss my experience with the

pain clinic.

I hope you found some relief when you first wrote on Saturday. I am

so grateful to have a site like this. No one judges our rantings and

ravings. And we can trust that no one will disbelieve our

experiences.

I will continue to pray for you both. You have my support.

Hang in there,

[Guest guest]

Thank you for your support. It really meant alot to me. PCP is Priimary Care

Physician. I have been tyring for six month to find her a pain specialist

here in our area that will treat a child. It's so weird, we have a childrens

cancer treatment center her yet no pain specialist for kids. We are going to

Portalnd in June to see her GI, soonest he could see her. will see if her

can refer he to someone there. It's so hard because she also has ADHD and a

non-verbal learning disorder. With havingf CP Dr's

don't want her on any meds for that. Says her stomach doesn't need anymore

to iritate it. So a day off from school for Dr's appointment really takes

it's toll on her schooling as she already misses enough. Yes, they do supply

her with a tutor for time she misses 2 hours for each day she loses due to CP

but they only care about get here work caught up. No whether she understands

the work presented.

Cassie is doing much better this week though I know that she is pretending

not to hurt so she can go to school during the day.

Thanks again so much for your concern. and god bless

Patty Hurst

Bangor, ME

Maine State Rep

PAI