I feel so all alone

[Guest guest]

Hi my name is a,

I have been ill for many yrs. now--I was dx'd with S.L.E.

(lupus) and fibromyalgia when I was 40ish. I also had G.I. troubles

right off the bat, had many tests--conclusion I.B.S.-- I would

continue to tell my specialists, over and over, No, something else

is wrong. I would point to my liver area, the pain can be awful at

times, so blood work ups, colonoscopies, endosopy's were done-

nothing showed up---UNTIL-- last Sept. I woke from a solid sleep,

vomiting green, and out the other end too. Went to E.r., after tests

they found my pancreas was acute---now came the questions, how long

have you been drinking--I never had drank in my life!! But that was

not an easy one to get the Doc.'s to believe! There is such a thing

called lupus pancreatitis--dah--so finally the attitude was better.

I am kinda used to ppl. not understanding my illness's, as with

the lupus, ppl. just do not seem to get it, now the chronic

Pancreatitis-- the added problems with this condition--the same

reactions too. Ppl. just want to see me get well, is it more for

them or for me, at times I really wonder!

Last Sept. my hubbies employer shut their doors, no insurance

to top this all off-- unemployment to much to get help! Hubby has a

job now, waiting for insurance time to kick in--so here I sit,

praying that I do not become acute again--oh, while hospitalized I

also had a heart attack-go figure--had a stent inplant done for that.

This is a bit of my story--hope to get to know a few of you--

hopeful then I may not feel so alone!

Thanks for listening--Peace & Love, a