Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 My name is and my daughter Irma, age 16, has chronic pancreatitis since age 9 years. She has a rare genetic disorder called WAGR Syndrome as well. This is chromosome deletion 11p11.2 thru 11p13. Irma has had good success with enzymes. She's been on pancrease mt 16 since age 9 and they have controlled the " runs " . They are taken during each meal. (we are lucky they don't work for everyone) Irma has a lipid disorder which they attribute her pancreatitis to. I'm not quite sure I agree with the docs. This maybe a familial situation. With lipid lowering medication, gemfibrozil, her numbers look good yet she still has attacks that require percoset for pain management. She had a post surgical pancreatic attack that landed her in the ICU with multiple organ failure as well. That was two years ago. Her gallbladder was removed last year and it did help relieve her pancreatitis. It seems her gallbladder was in a weird position and was not draining properly. I'd like to mention she is overweight. I've seen her go without eating for long periods of time and not lose an oz. No one can explain this to me. I have a question about stress. Does anyone find that stress can trigger their pancreatitis? This maybe a silly question but my daughter seems to get worse during times of extreme stress. Not many people understand this disease. I find myself explaining it over and over to no avail. Its nice to know you all understand it. Thanks for letting me share. Sincerely, New Jersey, USA Quote Link to comment Share on other sites More sharing options...
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