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Hi ,

I've been a member of this site for only a few short weeks so I hope

I am not repeating what you've heard a million times before.

I was certified disabled in October 2002 after a three year battle.

I had to appear before an " appeals " judge; am I correct in assuming

that you have already been denied at this level? If so, did you have

an attorney? Based on my personal experience, my work record and

recent medical records carried the most weight with the judge. I

even had an associate of my GI put an erroneous statement in my

medical file 2 months before my court date. Thank God my GI wrote a

very specific and strong letter to the judge regarding this

potentially harmful statement. I won't go into details but I am sure

everyone has had to fight erroneous statements in their files also.

The above letter, a very specific letter from my ex-boss (with her

observations of my declining health along with supportive comments

about how hard I tried to continue working) and a report from my ex-

employer reflecting the decline in my hours worked (2 years of

declination) seemed to be the documents that the judge referred to

most. There was also a state rep from (I believe) Occupational

Services attending my hearing. He never said a word, just agreed

that I had tried my hardest to continue working since my

first " official " acute pancreatitis attack (13 years ago).

I did hire an " advocate " . Have you tried this or is it even an

option for you? Let me know if you want more info on the advocate.

He was a big help in court but not much help with the mountains of

paperwork needed for my case. Also, his fee had to paid immediately

from my retroactive first check, so initially, I didn't get alot up

front. But knowing that every month that little bit extra is

available has helped my emotional state enormously.

The most positive result of my court appearance was that I finally

felt validated. We spend years surrounded by medical staff who are

ignorant to pancreatitis and all it entails. If the medical

community would educate their doctors more on this

increasing " popular " diagnosis, we would all benefit.

I am sure you are aware that any information garnered by internet

sources is not acceptable in court. Bummer!

I wish you loads of good luck in June. I'll say a prayer.

Keep us posted.

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How does one get SSI?

Applying for SSDI

Social Security Disability Insurance

The following is Social Security Disability information I've collected over the

Internet and through friends. This is for information purposes only, not legal

advice. Compiled by Linie

Social Security Disability Information

What is Social Security Disability?

Disability is the " inability to to do any substantial gainful activity " by

reason of a medically determinable physical or mental impairment:

.. which can be expected to result in death; or

.. which has lasted or can be expected to last for a period of not less than

twelve months.

The claimant must have a severe impairment that makes the claimant unable to do

the claimant's previous job or any other substantial gainful activity which

exists in the national economy. Further, recent law has generally made a

requirement of Citizenship. To determine if the claimant can do any other work,

the Social Security Administration will consider the claimant's residual

functional capacity, age, education and work experience. A determination by

another agency that an applicant is disabled will impact a claim. If found

disabled by some other non- governmental or governmental agency, the evidence

toward that finding is important.

The Social Security Administration determines disability by a five step process:

1.. The claimant must have no substantial gainful activity.

2.. The claimant must have a severe impairment. If work is not being

performed, Social Security will initially look at any physical or mental

impairments to determine whether one is disabled or blind.

3.. The analysis generally ends if the claimant meet or equal a listing of

impairments. The listings are medically determinable criteria, for a presumptive

finding of disability. If the claimant does not meet or equal a listing, the

analysis goes to steps 4 and 5.

4.. The claimant's impairment must prevent the claimant from working

previous employment over the past fifteen years.

5.. The impairment must be so severe that any other work which exists in the

national economy cannot be performed.This analysis at steps four and five depend

on the claimant's residual functional capacity

There are several forms of Social Security disability, including Disability

Insurance Benefits, Widow's Benefits, and Supplemental Social Security Income

(SSI). Social Security, however, no longer grants disability based solely on

drug or alcohol addiction or, generally, to non-citizens. There are also

children's benefits, which have been subject to recent changes. Social Security

may also be available to those disabled by Chronic Fatigue Syndrome or

Fibromyalgia. The claimant needs to provide evidence to Social Security. Social

Security will generally not pay for getting all the medical evidence they need

to decide a case.

Impairment

Any impairment must be a medical, anatomical, physiological or psychological

abnormality that can be shown by a medically acceptable clinical and laboratory

diagnostic technique. Physical or mental impairments must be established by

medical evidence consisting of signs, symptoms and laboratory findings, not only

by the claimant's symptoms. Symptoms are a description of physical or mental

impairments. An individuals statement alone is not enough to establish that

there is a physical or mental impairment. Signs are anatomical, physiological or

psychological abnormalities which can be observed separate from a statements

(symptoms). Signs must be shown by medically acceptable clinical diagnostic

techniques. Psychiatric signs are medically demonstrable phenomena which

indicates specific abnormalities of behavior, affect thought, memory,

orientation and contact with reality. They must also be shown to be observable

facts that can be medically described and evaluated. Laboratory findings are

anatomical, physiological, or psychological phenomena which can be shown through

the use of medically acceptable laboratory diagnostic techniques. Some of the

techniques include chemical tests, electrophysiological studies,

electrocardiogram, electroencephalogram and psychological tests. The kind of

evidence that needs to be supplied to Social Security must show an impairment

and how severe it is during the period it is said that one is disabled.

Remember, the Social Security Administration will only consider the impairments

that one says they have or about which they receive evidence, with a possible

exception of those who suffer from Chronic Fatigue Syndrome " CFIDS " or perhaps

Fibromyalgia. Social Security can help get medical evidence and reports when

giving SS permission to request such from your doctors.

In almost every case, no matter what the disease is, the answer is the same -

" Maybe, it just depends upon how badly you are affected by the disease. " One

example might be cancer. The word " cancer " is scary to anyone, but there are

many cancers which can be treated and cured very quickly, with little or no

lasting effect. On the other hand, of course, there are cancers which cause

great suffering and ultimately death. The question in each individual case is

" How sick is this particular individual with cancer and how long is this person

going to remain sick? " Skin diseases are another example. The vast majority of

skin diseases, while annoying, would not be considered to be disabling. On the

other hand, there are some uncommon, very severe skin problems which are clearly

disabling. In extreme cases, psoriasis, which is not rare, may be disabling.

Thus, almost without exception, the mere fact that an individual has a disease

with a certain name does not guarantee that the individual either will or will

not be found disabled. It all depends upon how sick the person is.

Listings for Adults

The listings are medically determinable criteria you generally must be very ill

to meet or equal these listings. If you do not meet or equal a listing, you go

to the next step. Included below are the adult listings. While these listings

were updated recently, this page cannot verify that the listings are exact and

to date. The listings may be looked up at 20 C.F.R. Section 404 Subpart P

Appendix I:

Part A . Sec.

1.00 Musculoskeletal System.

2.00 Special Senses and Speech.

3.00 Respiratory System.

4.00 Cardiovascular System.

5.00 Digestive System. including liver disease 5.05 (see below)

6.00 Genito-Urinary System.

7.00 Hemic and Lymphatic System.

8.00 Skin.

9.00 Endocrine System and Obesity.

11.00 Neurological.

12.00 Mental Disorders. (see below)

13.00 Neoplastic Diseases, Malignant.

14.00 Immune System.

Residual Function

Residual Function: The residual functional evaluation based on your age,

education and work experience, that helps them make this determination in steps

four and five, and it is defined by the limitations that your impairments have

on you. The impairments may be assessed either from a physical or mental

standpoint. The evaluation is made ultimately by Social Security. However, when

your treating physician(s) hold an opinion on how you are functioning,

particularly if the treatment is over a long period with sustained contact,

Social Security will give the opinion(s) great weight.

What a " medical functional capacity assessment " describes. This assessment

describes an individual medical ability to do work-related activities such as

sitting, standing, moving about, lifting, carrying, handling objects, hearing,

speaking a mental impairment, the medical assessment will include your ability

to reason or make occupational, personal or social adjustments. The medical

evidence must be complete enough to allow the Social Security Administration to

determine the nature and limiting affects of impairments for any period in

question, the probable duration of individual impairments and an individual

residual functional capacity to do work-related physical or mental activities.

Information from other sources may help an individual to understand how an

impairment affects ability to work. Some other sources that may help are: public

and private social welfare agencies, observations by non-medical sources and

other practitioners such as chiropractors, audiologists, etc. If a family

medical doctor writes a letter that an individual is totally and permanently

disabled, it will not help one receive benefits that is for Social Security to

conclude. The report must contain all of the items covered under what a medical

report should include (i.e, history, clinical findings, laboratory findings,

diagnosis, treatment, medical assessment). It must be complete. Social Security

will use the doctor's reports as evidence to make their determination, but not

for its conclusion.

Burden of Proof

The burden is, generally speaking, on the claimant. Attention should be brought

to the Social Security administration illustrating everything that shows

disability. The Social Security Administration will consider all relevant

information they receive from the applicant. If the information is not present

in the claimant's file (or the tape of the testimony) then it is not considered.

The opinion by a claimant's frequently treating doctor, with objective tests for

impairment, over a long period of time is given more evidentiary value than the

opinion of consultative examiners. Specialists are given more weight than

generalists on specified topics of impairments. Once the claimant shows that the

impairment limits to the extent that the claimant cannot perform past relevant

work, than the burden shifts to Social Security to show that the claimant cannot

perform any significant and competitive work in the national economy.

Evidence

The claimant should provide Social Security with information about age,

education and training, work experience, daily activities both before and after

the date of disability, efforts to work and any other evidence showing how

impairments affect the ability to work. The Social Security Administration

accepts evidence from reports from acceptable medical sources.

The medical sources that are acceptable are: licensed physicians, osteopaths,

certified psychologists, optometrists for measurement of visual acuity and

visual fields (they may need a report from a physician to determine other

aspects of eye disease); and individuals authorized to send them a copy or

summary of the medical records of a hospital, clinic, sanitarium, medical

institution, or health-care facility.

Generally, the copy should be certified as accurate by the custodian or by any

authorized employee of the Social Security Administration, Veteran's

Administration or State Agency. Generally, Social Security will not return an

uncertified copy or summary for certification unless there is some question

about the document. These reports should contain the claimant's medical history,

clinical findings such as the results of physical or mental status examinations,

laboratory findings such as blood pressure, x-rays, etc., diagnosis (statement

regarding disease or injury based on its signs and symptoms), treatment

prescribed with response and prognosis and a medical assessment (except in

statutory blindness claims, and disability claims for widowers and surviving

wives).

Remember, Social Security gives greater evidentiary weight to opinions of

treating sources who have cared consistently over a long period to that of a

single consultative examination. However, specialists examining a claimant in

their area of expertise are given more weight than generalists. Further,

objective evidence of impairment, such as a positive MRI scan, are given a

greater weight to opinions based on subjective findings, eg., complaints of

pain. The medical opinions are best described in terms of functioning. For

instance, many hours at one time can the comfortably claimant sit, stand or

walk, or in combination of these positions? How much can the claimant

occasionally, frequently, or continuously lift or carry? Can the claimant use

hands for grasping, pushing, pulling, or fine manipulation? Can the claimant use

feet for pushing and or pulling leg controls? Can the claimant bend, squat,

crawl, climb, or reach? Is the claimant restricted from activities involving

unprotected heights, moving machinery, weather changes, automobiles, exposure to

dust, fumes, and gases? Can the claimant understand and remember instructions?

Can the claimant persistently sustain concentration? Can the claimant socially

interact? Can the claimant adapt? Are the functional limitations materially

related to a problem with drugs or alcohol (if so, benefits may be restricted)?

Who pays for getting all the medical evidence Social Security needs to decide a

case? Generally, individuals are responsible for submitting evidence to support

claims for disability. However, Social Security will help by asking sources

questions on one's behalf. The Social Security Administration will generally not

pay for this information. There are rare situations when Social Security will

pay for this information. The situations when Social Security will pay for

medical evidence. If the evidence in the file shows that there may be a

disability but it does not contain the medical findings to make a disability

determination and Social Security must have this additional information. If,

Social Security finds one or more of your medical sources has the information

but they will not give Social Security the information until they are paid for

it, Social Security may pay for the report. Generally, Social Security may pay

when a hospital or clinic charges a small fee to cover its copying and mailing

costs and the only way to get the information would be to have an individual

take a special examination at Social Services expense. The evidence may be

submitted to any Social Security Office to the office of any State Social

agency, or to one of Social Security's employees authorized to accept evidence

at another place such as an Administrative Law Judge. If your doctors do not

provide Social Security with the medical and other evidence they need and

request, Social Security will make its decision about your case based on the

information provided in your file. A religious or personal reason not to take a

medical examination, test or treatment requested by Social Security may be a

valid excuse not to have it. However, if medical sources cannot give social

Security sufficient medical evidence about impairment to determine a disability,

they may ask that a physical or mental examination be taken. These examinations

are called consultative examinations. Social Security pays for the consultative

examinations. They may also pay for transportation to the place of the requested

examination.

Social Security Questions & Answers

Q: I understand that to get Social Security disability benefits, your disability

must be expected to last at least a year. Does this mean that you must wait a

year after being disabled before you can get benefits?

A: You do not have to wait a year after the onset of the disability before you

can get benefits. You should file as soon as you can after becoming disabled and

benefits begin after a 5-month waiting period. The waiting period begins with

the month Social Security decides your disability began.

Q: I have been receiving Social Security disability benefits for the past four

years and my condition has not improved. Is there a time limit on Social

Security disability benefits?

A: No. You will continue to receive a disability benefit as long as your

condition keeps you from working. But, your case will be reviewed periodically

to see if there has been any improvement in your condition and whether you are

still eligible for benefits. If you are still eligible when you reach 65, your

disability benefit will be automatically converted to retirement benefits.

Q: I had a serious back injury four years ago and received disability benefits

for about 18 months until I could return to work. Unfortunately, my back

problems have recurred and I don't know how much longer I will be able to

continue working. When I initially applied for benefits, I waited several months

before I received my first check. If I reapply for benefits, will my wait be as

long as it was the first time?

A: Maybe not. It depends on what the new medical reports say and whether

additional evidence is required. A worker who becomes disabled a second time

within five years after benefits stop can have his or her checks start again,

beginning with the first full month of disability if the new claim is approved.

Q: My brother had an accident at work last year and is now receiving Social

Security disability benefits for himself, his wife, and daughter. Before his

accident, he helped support another daughter by a woman to whom he has never

been married. Is the second child entitled to some benefits as well?

A: Yes, even though your brother wasn't married to the second child's mother,

Social Security pays benefits to all of his children, even if they were born out

of wedlock. Each child is entitled to equal benefits.

Q: What are Medicaid and Medicare?

A: If you qualify for disability insurance benefits you will be eligible for

Medicare after two years and five months. If you qualify for SSI you will be

eligible for Medicaid. Even if you have not yet been approved for SSI you may

qualify for Medicaid through the state. Medicaid is an assistance program under

which money from Federal, State and local taxes pays medical bills for certain

eligible needy and low-income people. For more information you may contact the

Social Security Administration.

Do I need an attorney?

You have the right to have an attorney represent you in your Social Security

case. Although attorney representation may not be absolutely essential in all

cases, statistics have shown that people represented by an attorney have been

more successful than people without attorney representation. Whether you hire an

attorney is entirely up to you; but you should consider the advantages by

examining what an attorney can do for you in your Social Security case.

By law, an attorney can only charge you 1/4 of the past benefits if you win the

case, up to a maximum of $4,000. Every case is different. Your attorney's role

depends on the particular facts of your case. However, a few things your

attorney may do are:

Gather medical and other evidence.

Analyze your case under Social Security Regulations.

Contact your doctor and explain Social Security Regulations to obtain a report

consistent with those regulations.

Refer you to additional doctors for further medical reports to support your

claim.

Send you to a vocational expert for a report on your ability to work.

Suggest that the Social Security Administration send you to a doctor for a

consultative examination.

Obtain documents from your Social Security file.

Review actions taken by the Social Security Administration.

Ask that a prior application for benefits be reopened.

Seek waiver of a time limit.

Request subpoenas to insure the presence of crucial witnesses or documents at

your hearing.

Advise you how best to prepare yourself to testify at your hearing.

Protect your right to a fair hearing by objecting to improper evidence and

procedures.

Cross-examine adverse witnesses at your hearing.

Present a closing statement at your hearing arguing that you are entitled to

benefits under Social Security Regulations.

Submit a written summary of the evidence and argument to the Administrative

Law Judge.

If you win, make sure that the Social Security Administration correctly

calculates benefits. If you lose, request review of the Hearing Decision by the

SSA Appeals Council. If necessary, represent you in a federal court review of

your case.

Factors affecting your disability claim

No one can say with absolute certainty whether or not a social security

disability claim will be allowed. There are certain factors that can be

predicted, with reasonable certainty, to increase the likelihood of a favorable

decision and the actual payment of disability benefits. It is to those factors

that the body of this chapter is addressed. As previously mentioned, disability

for purposes of receiving social security benefits is determined by whether or

not the claimant's disability and other factors fit neatly into the scheme of

one of the GRID TABLES " . The overwhelming majority of disability claims that are

approved, are based on one of the Grid Tables. The following factors directly

impact on which table's standards the claimant's disability will be determined.

A. Age of Claimant

The age of the claimant is the single most important determining factor in

whether or not the claim for disability benefits will or will not be approved.

Theories: Claimants age 50 or over that due to education and skills are unsuited

for sedentary work, often win for that reason. Those who have a history of

sedentary work and are below age 50 have a far more difficult time in obtaining

a favorable ruling unless they can show that they are unable to sit due to the

weight placed on the hip. The hip is the largest joint in the body and hip pain

can be disabling if it is severe.

Appearance: Claimants suffering from severe hip impairments will display a

seriously altered and or labored gait. Administrative Law Judges will observe

the claimant's walk, limp and any devices such as canes, walkers etc. necessary

to walk or stand.

B. Education Of The Claimant

Education has very little to do with whether or not a claimant is allowed

disability benefits unless the claimant is functionally illiterate ie: unable to

read and write well enough to function in a modern society at the same level as

the majority of the citizens. This is possibly the greatest injustice done to

those applying for social security disability. There are countless hard working

people in the construction or other labor intensive areas that are not

illiterate, but do not have a high school education and are unable to compete

and qualify for jobs with those who do have a high school education.

C. Work Experience

The claimant's prior work history has a major impact on the determination of the

their disability. You are only required to prove that you are unable to perform

the same type of work that you have done in the past fifteen (15) years. This

can have a dramatic impact on your chances of winning your disability claim. It

is essential that the evidence show that you cannot perform the same type of

work you have done in the past. Putting together the necessary information to

ensure that your evidence will show to the Administrative Law Judge that you are

unable to perform the same type of work you have previously done is one of the

many things that you can do to increase your chances of winning your disability

case. (more will be said later about how to gather the necessary evidence)

D. Physical Limitations

It is not the disease or injury that makes a person disabled as it applies to

social security disability. It is rather the physical limits the disease or

injury causes in the claimant that determines disability. A claimant may have a

disease such as cancer that has a horrible name and sends shivers up your spine,

but it is not the fact that the claimant has cancer that qualifies them for

disability benefits. Disability is determined based on how the cancer has placed

physical limitations on the claimant. Many people have cancer. Not all people

with cancer are disabled.

E. Mental Illness

By the date of the hearing before an Administrative Law Judge there are probably

very few social security claimants that stick with the process through the

hearing before an Administrative Law Judge that do not have some degree of

psychiatric problems. You will have endured months if not years of physical

pain, financial devastation, and the day to day difficulties that are part and

parcel of having a serious condition that disables you and no doubt has turned

your life upside down. It is virtually inconceivable that anyone could survive

the process up to the hearing level without at least having some degree of

depression as a reaction to their circumstances. In cases where the

Administrative Law Judge could go either way in his decision, reactive

depression brought on by your circumstances may well be the extra disabling

factor that convinces the Administrative Law Judge to rule in your favor.

History Of The Case

The theory of the case is the reason or logic that supports your claim for

disability. For each theory that supports the claimant's disability, there is

also probably a theory that will deny them their disability determination. It is

important to recognize those theories that would be against your case and be

prepared to show how they do not apply in your case.

The Effects of Being Disabled

Drugs * Anxiety * Bladder Problems * Lack of Concentration * Colostomys and

Illeostomys * Confusion * Depression * Diarrhea * Dizziness * .Drowsiness *

Eye-Hand Coordination * Fatigue * Grasping * Headaches * Memory Loss * Numbness

* Pain * Poor Stress Tolerance * Skin Conditions

Getting Started

The first step in trying to be placed on Social Security disability is to see

your Doctor. Ask the Doctor if in his or her medical opinion you are disabled

from being gainfully employed or disabled from your present job. If the Doctor

states that you are disabled, the next step is to go to your local Social

Security office and get the disability forms. At this time you can also request

a phone interview instead of going into the SS office for the interview.

You will need the proper documentation:

Your Social Security card (or a record of your number);

Your certified birth certificate;

Children's birth certificates (if they are applying);

Marriage certificate (if signing up on a spouse's record)

Your most recent W-2 form, or your tax return if you're self- employed;

Your military discharge papers if you had military service.

Try to collect all your own medical records. This is very important, because

most of the time ALL your medical records are not sent to SS.

Always keep a copy of any of the applications or letters you write to SS. You

may need these later.

In most circumstances, the initial SSD request will be denied. You will be

notified by mail of the result. If you receive a letter informing you of your

rights and you disagree with the decision rendered in your case, you can appeal

the decision. Careful attention must be given to the appeal process. Any

mistakes can render the appeal invalid. If that happens, you may have to start

from the very beginning by filling out an application, and again submit it and

wait for the determination. If the claimant receives 2 SS denials, an appeal can

be filed within 60 days and the next step is the Law Judge hearing.

Administrative Law Judge (ALJ)

If an appeal is taken, a hearing will be scheduled for your case. At this stage,

having an attorney represent you can be helpful. Testimony will be given by the

applicant. Testimony will also have to be submitted by the way of medical

documentation and deposition transcripts of the treating Doctors. Additionally,

friends, family, and acquaintances can testify as to the disability of the

applicant. A vocational expert can also be used to show that the applicant's

pain would affect job performance and therefore render the applicant

unemployable.

Once the applicant is before a Administrative Law Judge who will hear the

applicants testimony, the Administrative Law Judge only will decide if the

applicant is disabled. Even when a doctor testifies before the Administrative

Law Judge, the finding the applicant to be disabled is a conclusion that only

the Administrative Judge can render. The testimony presented to the

Administrative Law Judge must be evaluated by that judge to determine the

credibility of the witnesses, including medical testimony. If the Administrative

Law Judge finds the testimony credible, he or she will issue a decision stating

something to the affect, " in consideration of all the probative evidence

including testimony of the witnesses and treating doctors to the claimants pain

and on the observations of the claimant themselves, I find the claimant's

allegations to be disabled to be credible. " It is a this point that one will

start to receive disability benefits.

If the Administrative Law judge finds that the allegations are not credible,

then the claimant and/or applicant loses. At this point another appeal can be

taken to get another hearing. At this next hearing, new evidence may be

presented as to the applicants disability. Finally, an appeal may be taken to

the appeals Council. The observations of the Administrative law judge weighs

heavily with the Appeals Council. The Appeals Council will not hear testimony.

They will only review the record and not get a chance to see the applicant.

The overall procedure can be lengthy. Numerous hearings can be held by an

administrative judge that can last for years. Besides the applicants

presentation of the case, the government, the other side in these cases, can

present it's own testimony showing that the applicant is not disabled and should

not be entitled to disability benefits.

What will I testify about at the ALJ hearing?

1. Medical Condition

2. Medical History

3. Physical Abilities

4. Mental Abilities

5. Education and Training

6. Work Experience

7. Daily Activities

1. Medical Condition The judge will ask how your medical condition makes you

feel. You should tell the judge about the symptoms you experience such as pain,

dizziness, numbness, nausea or paralysis as well as you can. Before the hearing,

you should make notes to yourself about what conditions you have and how they

affect you. Don't leave anything out. For example, if your case involves pain,

you might be asked:

Is the pain burning, stabbing, crushing, sharp, throbbing, radiating or

aching?

Do your activities affect the pain?

What do you do to relieve pain?

What medicine do you take for pain?

How well does the medication work?

Are there any side effects from the pain medication?

2. Medical History The judge may ask you how often you see your doctor, what

sort of treatment your doctor provides, what medication you are presently

taking, how often you take each medication and whether there are any side

effects.

You may also be asked to describe the symptoms and treatment of your medical

condition since it began. You may be asked what your doctor has told you about

your problem, but the judge won't ask you medical questions about your

disability.

3. Physical Abilities If you have a physical disability, the judge will ask you

a lot of questions about what you are able to do. For example:

How far you can walk before resting

How long you can sit and stand at one time during an eight-hour day

How much you can lift.

4. Mental Abilities The judge will ask about your ability to understand, carry

out and remember instructions, to use good judgment, to respond appropriately to

supervision, co-workers, usual work situations, and changes in your work

setting.

5. Education and Training The judge will ask you how far you went in school, if

you have had any training in the military, if you can read and write, and if you

have had any job training.

6. Work Experience The judge will ask you about the jobs you have had during the

past 15 years. If your condition caused you to miss a lot of work or caused you

to stop working, you should explain this.

7. Daily Activities The judge will ask you a lot of questions to find out how

your disability affects you. For example:

How do you spend your time during the whole day;

How well you usually sleep;

If you take naps during the day;

What things you do around the house, such as cooking, housework, or gardening;

If you go shopping;

If you drive a car;

What hobbies and activities you have now.

You may also be asked how your daily routine has changed since you became

disabled. For example, what kinds of activities did you do before you became

disabled that you can't do now?

1.. The nature, location, onset, duration frequency, radiation, and

intensity of any pain;

2.. Precipitating and aggravating factors (e.g., movement, activity,

environment conditions);

3.. Type, dosage, effectiveness, and adverse side-effects of any pain

medication;

4.. Treatment, other than medication, for relief of pain;

5.. Functional restrictions; and

6.. The claimant's daily activities.

Evaluations by " SS blue book "

(Liver disease, depression & arthritis criteria)

" The Blue book " , does not accurately assess " severity of impairments " . Much of

the info is outdated, and many illnesses are not discussed. Yet, SSA only

evaluates the medical evidence against the severity of the listed impairment. No

gray area, just a either/ or for approval. True, SSDI is a total disability

program. But how many public or private employers will cope with a disabled

worker whose impairment will interfere with the performance, conduct or

attendance standards of the position. Even if it is a sedimentary job?

SSA law judges apply the actual law in arriving at disability determinations.

The claimant must demonstrate a severe impairment as shown by the medical

evidence.

The " Blue Book " is actually a reprinting of a small portion of Social Security's

regulations on disability. Probably less than half of people who get on Social

Security disability benefits do so as a result of " meeting a listing " which is

what the " Blue Book " contains. Actually, both state agencies and the ALJs are

supposed to be applying the same law. The reasons for the differences in

approval rates are complex, but to my mind the biggest reason is that state

agency allowances are subject to " Quality Assurance " (QA) reviews. As a result

of these reviews the state agencies cannot allow someone unless they are in

terrible shape. The ALJs are not subject to these QA reviews.

From the SS blue book:

5.05 Chronic Liver Disease(e.g., portal, postnecrotic, or biliary cirrhosis;

chronic active hepatitis; 's disease). With:

A. Esophageal Varices (demonstrated by X-ray or endoscopy) with a documented

history of massive hemorrhage attributable to these varices. Consider under

disability for 3 years following the last massive hemorrhage; thereafter

evaluate the residual impairment; or

B. Performance of a shunt operation for esophageal varices. Consider under a

disability for 3 years following surgery; thereafter evaluate the residual

impairment; or

C. Serum bilirubin of 2.5 mg. per deciliter (100ml.) or greater persisting on

repeated examinations for at least 5 months; or

D. Ascites, not attributable to other causes, recurrent or persisting for at

least 5 months, demonstrated by abdominal paracentesis or associated with

persistent hypoalbuminemia of 3.0 gm. per deciliter (100 ml.) or less; or

E. Hepatic encephalopathy. Evaluate under the criteria in 12.02; or

F. Confirmation of chronic liver disease by liver biopsy (obtained independent

of Social Security disability evaluation) and one of the following;

1. Ascites not attributable to other causes, recurrent or persisting for at

least 3 months, demonstrated by abdominal paracentesis or associated with

persistent hypoalbuminemia of 3.0 gm. per deciliter (100 ml.) or less; or

2. Serum bilirubin of 2.5 mg. per deciliter (100 ml.) or greater on repeated

examinations for at least 3 months; or

3. Hepatic cell necrosis or inflammation, persisting for at least 3 months,

documented by repeated abnormalities of prothrombin time and enzymes indicative

of hepatic dysfunction.

Please note Prothrombin time (PT) in Primary biliary cirrhosis

Primary biliary cirrhosis is a cholestatic, not a hepatotoxic disease, so

the PT does not increase much in PBC. The PBC hepatocytes (the pinkstaining

liver cells which make up most of the organ) are undamaged until very late

stage. Instead, the little bile ducts that drain the liver are destroyed and

fibrous tissue occludes the blood vessels to the liver.

12.04. Affective Disorders:

Characterized by a disturbance of mood, accompanied by a full or partial manic

or depressive syndrome. Mood refers to a prolonged emotion that colors the whole

psychic life; it generally involves either depression or elation.

The required level of severity for these disorders is met when the requirements

in both A and B are satisfied.

A. Medically documented persistence, either continuous or intermittent of one of

the following;

1. Depressive syndrome characterized by at least four of the following:

a. Anhedonia or pervasive loss of interest in almost all activities; or

b. Appetite disturbance with change in weight; or

c. Sleep disturbance;. Or

d. Psychomotor agitation or retardation; or

e. Decreased energy; or

f. Feelings of guilt or worthlessness; or

g. Difficulty concentrating or thinking; or

h. Thoughts of suicide; or

i. Hallucinations, delusions or paranoid thinking; or

2. Manic syndrome characterized by at least three of the following:

a. Hyperactivity; or

b. Pressure of speech; or

c. Flight of ideas; or

d. Inflated self-esteem; or

e. Decreased need for sleep; or

f. Easy distractibility; or

g. Involvement in activities that have a high probability of painful

consequences which are not recognized; or

h. Hallucinations, delusions or paranoid thinking;

OR A. Bipolar syndrome with a history of episodic periods manifested by the full

symptomatic picture of both manic and depressive syndromes (and currently

characterized by either or both syndromes); AND B. Resulting in at least two of

the following:

1. Marked restriction in activities of daily living; or

2. Marked difficulties in maintaining social functioning; or

3. Deficiencies of concentration, persistence or pace resulting in frequent

failure to complete tasks in a timely manner (in work settings or elsewhere); or

4. Repeated episodes of deterioration or decompensation in work or work-like

settings which cause the individual to withdraw from that situation or to

experience exacerbation of signs and symptoms (which may include deterioration

of adaptive behaviors).

1.02. Active Rheumatoid Arthritis and Other Inflammatory Arthritis.

With both A and B:

A. History of persistent joint pain, swelling and tenderness involving multiple

major joints (see 1.00D) AND with signs of joint inflammation (swelling and

tenderness) on current physical examination despite prescribed therapy for at

least 3 months, resulting in significant restriction of function of the affected

joints, and clinical activity expected to last at least 12 months; and

B. Corroboration of diagnosis at some point in time by either:

1. Positive serologic test for rheumatoid factor; or

2. Antinuclear antibodies; or

3. Elevated sedimentation rate; or

4. Characteristic histologic changes in biopsy of synovial membrane or

subcutaneous nodule (obtained independent of Social Security disability

evaluation).

1.03. Arthritis of a Major Weight-Bearing Joint (due to any cause): With history

of persistent joint pain and stiffness with signs of marked limitation of motion

or abnormal motion of the affected joint on current physical examination. With:

A. Gross anatomical deformity of hip or knee (e.g., subluxation, contracture,

bony or fibrous ankylosis, instability) supported by x-ray evidence of either

significant joint space narrowing or significant bony destruction and markedly

limiting ability to walk and stand; or

B. Reconstructive surgery or surgical arthrodesis of a major weight-bearing

joint and return to full weight-bearing status did not occur, or is not expected

to occur, within 12 months of onset.

1.04. Arthritis of One Major Joint in Each of the Upper Extremities (due to any

cause): With history of persistent joint pain and stiffness, signs of marked

limitation of motion of the affected joints on current physical examination, and

X-ray evidence of either significant joint space narrowing or significant bony

destruction. With:

A. Abduction and forward flexion (elevation) of both arms at the shoulders,

including scapular motion, restricted to less than 90 degrees; or

B. Gross anatomical deformity (e.g., subluxation, contracture, bony or fibrous

ankylosis, instability, ulnar deviation) and enlargement or effusion of the

affected joints.

1.05. Disorders of the Spine:

A. Arthritis manifested by ankylosis or fixation of the cervical or dorsolumbar

spine at 30 degrees or more of flexion measured from the neutral position, with

X-ray evidence or;

1. Calcification of the anterior and lateral ligaments; or

2. Bilateral ankylosis of the sacroiliac joints with abnormal apophyseal

articulations; or

B.Osteoporosis, generalized (established by X-ray) manifested by pain and

limitation of back motion and paravertebral muscle spasm with X-ray evidence of

either:

1. Compression fracture of a vertebral body with loss of at least 50 percent

of the estimated height of the vertebral body prior to the compression fracture,

with no intervening direct traumatic episode; or

2. Multiple fractures of vertebrae with no intervening direct traumatic

episode; or

C. Other vertebrogenic disorders (e.g., herniated nucleus pulposus, spinal

stenosis) with the following persisting for at least 3 months despite prescribed

therapy and expected to last 12 months. with both 1 and 2:

1. Pain, muscle spasm, and significant limitation of motion in the spine; and

2. Appropriate radicular distribution of significant motor loss with muscle

weakness and sensory and reflex loss.

1.08. Osteomyelitis or Septic Arthritis (established by X-ray);

A. Located in the pelvis, vertebra, femur, tibia, or a major joint of an upper

or lower extremity, with persistent activity or occurrence of at least two

episodes of acute activity within a 5-month period prior to adjudication,

manifested by local inflammatory, and systemic signs and laboratory findings

(e.g., heat, redness, swelling, leucocytosis, or increased sedimentation rate)

and expected to last at least 12 months despite prescribed therapy; or

B. Multiple localizations and systemic manifestations as in 1.08 A above.

1.09. Amputation or Anatomical Deformity of (i.e., loss of major function due to

degenerative changes associated with vascular or neurological deficits,

traumatic loss of muscle mass or tendons and X-ray evidence of bony ankylosis at

an unfavorable angle, joint subluxation or instability):

A. Both hands; or

B. Both feet; or

C. One hand and one foot.

1.10. Amputation of One Lower Extremity (at or above the tarsal region):

A. Hemipelvectomy or hip disarticulation; or

B. Amputation at or above the tarsal region due to peripheral vascular disease

or diabetes mellitus; or

C. Inability to use a prosthesis effectively, without obligatory assistive

devices, due to one of the following;

1. Vascular disease; or

2. Neurological complications (e.g., loss of position sense); or

3. Stump to short or stump complications persistent, or are expected to

persist, for at least 12 months from onset; or

4. Disorder of contralateral lower extremity which markedly limits ability to

walk and stand.

1.11. Fracture of the Femur, Tibia, Tarsal Bone, or Pelvis: With solid union not

evident on X-ray and not clinically solid, when such determination is feasible,

and return to full weight-bearing status did not occur or is not expected to

occur within 12 months of onset.

1.12. Fractures of an Upper Extremity: With nonunion of a fracture of the shaft

of the humerus, radius, or ulna under continuing surgical management directed

toward restoration of functional use of the extremity and such function was not

restored or expected to be restored within 12 months after onset.

1.13. Soft Tissue injuries of an Upper or Lower Extremity: Requiring a series of

staged surgical procedures within 12 months after onset for salvage and/or

restoration of major function of the extremity, and such major function was not

restored or expected to be restored within 12 months after onset.

The article entitled " Traditional Management of Liver Disorders " by M. Messner

and P. Brissot. They work in the Liver Unit, Pontchaillou Hospital, Rennes,

France. 1990 In the article they quote, " Bed rest is an important component of

the management of acute and chronic liver disorders, together with the avoidance

of fatique. " Another place, " Bed rest reduces functional demands on the liver

and is thus advisable in acute liver disorders. " If fatigue is one of your major

symptoms, it should be stated in your application for SSD, and need for bed

rest. Make sure you have your doctor document everything..........all your

symptoms and any new problems.

How Betty made it through the system

I applied for SSD and was approved on the first try and received one year

retroactive payments in 6 weeks. HOW???? The key is in the documentation by your

doctor. It is not sufficient to send office records to SS. You must accompany

them by a letter or a report with the key information that they are looking for.

This key information should clearly outline the following:

1. ALL DIAGNOSIS: The first listed should be the one most responsible for your

disability and then in descending order according to the degree of

responsibility for your disability.

2. DURATION OF ILLNESS FOR EACH DIAGNOSIS

3. WHY YOU ARE UNABLE TO WORK. THIS MUST BE SPECIFIC.

Examples: " This patient cannot do any work which requires decision making or

number figuring due to his/her cognitive dysfunction causing poor judgment and

severely impaired organizational skills. "

Example 2: " This patient is unable to do any work requiring the use of his/her

hands due to severely impaired fine and gross motor skills due to swelling and

pain in digital joint. " Etc.

REMEMBER THE ACTUAL SYMPTOM THAT AFFECTS THE PERFORMANCE AND THE TYPE OF

PERFORMANCE YOU ARE UNABLE TO PERFORM IN SPECIFICS IS IMPORTANT.

4. ACTIVITIES OF DAILY LIVING THAT ARE IMPAIRED.

Example: " This patient at times is incapable of caring for his/her children

without assistance because of the safety hazard due to short term memory loss,

inability to concentrate on more than one task at a time and distractibility. "

Example 2: " Cooking proposes a safety hazard for this patient because of his/her

frequent involvement of his/her hands and the fact that he/she has several times

dropped hot pans while attempting this task.

AGAIN BE SPECIFIC ABOUT THE TASKS THAT YOU ARE UNABLE TO PERFORM. DO NOT BE

AFRAID TO DOCUMENT EVERY ACTIVITY THAT HAS BEEN JEOPARDIZED DUE TO YOUR

IMPAIRMENT.

STATEMENT REGARDING TIME FRAME OF DISABILITY. Example: " Due to the frequent

severe exacerbationa of this patients condition, it is unreasonable at this time

to expect that he/she will be able to return to work anytime in the near future.

Attempts to control his/her flare ups have been unsuccessful and at this time I

believe that his/her condition is chronic. It is my opinion that this patient

would be a liability to any employer, and would have a very difficult time at

best maintaining gainful employment due to his/her incapabilities.

NOW YOU ASK?????HOW DO I GET MY DOCTOR TO WRITE SUCH A LETTER? Ask him. You have

to remember that your doctor can only document what you tell him. Forget your " I

can do it " attitude if you really can't. Tell your doctor all the things that

you cannot do and why. Ask him to write this letter and document your complaints

and restrictions. He can only pass on the information he has. Also be sure he

attaches any documentation he may have to support your claim.

Example: neuro-psych testing results, occupational therapy evaluation, blood

work etc.

If your doctor refuses to do this then get what is called an " Independent

Medical Evaluation. " It is an opinion by an uninvolved doctor. You will meet

with this doctor and relate to him all the information regarding your

disability. He will review your medical records and then make a decision on

whether he can substantiate your claim. The key phrases above will help to

clearly define your need for disability. Bob has a lot of experience with

patients he has examined for disability and firmly believes that cases are

approved or denied based on the way the information is documented.

Remember, stress, including financial stress just makes conditions flare. If you

have been denied ask for a hearing this letter so they have the information

needed to approve your claim.

's step-by-step approach

's disease was Marfan, but the process is basicly the same for any disease.

The response we got from the Social Security article in the last issue of

Connective Issues was overwhelming. We'll continue to keep you up-to-date on

Social Security information as we receive it.

To further assist you in your attempts to obtain Social Security benefits, here

are tips provided by . She applied for Social Security for her husband on

March 30, 1994, and received her first check on October 3, 1994.

" Determination and over-preparation helped me a lot, despite the fact that most

people I came in contact with only told me about the red tape and horror stories

of dealing with Social Security, " says . " Encouragement is something that

is in short supply going through this process, but it can be done successfully. "

Here is 's step-by-step approach to obtaining Social Security benefits.

1. Make a timetable that gives yourself some flexibility and try to follow it.

2. Call Social Security to make an appointment; schedule it for at least two

weeks away.

3. Compile an up-to-date medical file; it is essential. Ask your specialists

for copies of all records pertaining to disability validity, x-rays, labs, etc.

(Some doctors' offices do not release x- rays; they have to come from the

hospital.) If you are seeing another specialist for another problem, get those

records as well. Give the doctor's office a deadline for providing you with the

materials you need (at least three days before your meeting with Social Security

is scheduled).

4. In addition to your medical records, ask your doctor to write a letter for

you that includes your prognosis (the length of time you will be disabled) and

the restrictions that prohibit you from gainful employment.

5. Make four copies of everything, including your records and the doctor's

letter.

6. Go to Social Security with your entire package, as well as the other

information that Social Security needs. Make sure you get the name and phone

number of the representative handling your case.

7. Follow up with your representative by phone to make sure she has all the

information she needs. Volunteer to provide her with additional information on

Marfan syndrome. Maintain a positive attitude; you have done your homework. If

it is an election year, go meet your senators and congressmen or their aides in

person in their local district office. Don't be discouraged; you have a

legitimate right to try to get disability benefits. Because you have provided

Social Security with all the information they need, they should be able to reach

a decision more quickly. However, if they don't, here's what you can do. 8. Make

an appointment with a specialist, preferably at a hospital with a Marfan clinic

or at a teaching hospital, and have the physician write another letter about

your condition.

9. Refer to the Federal Guidelines for Disability which relate to Marfan

syndrome and are used by the Social Security Administration

10. Network with any politicians you can.

If you are denied by Social Security:

1. Call your senators and congressmen to make an appointment to meet with

them. Send them all of your medical records, letters and a booklet about Marfan

(or other disease) and follow up with them by phone. On the phone, you can offer

additional information about your ??? disease.

2. Bring in your newest doctor letter, any recent medical records, the letter

from the NMF, and any additional information you have.

3. If all else fails, your congressmen can tell you which lawyers in your area

have good track records in disability cases. " This approach is not about

overloading your local social security office and congressmen with a pile of

paperwork. The emphasis should be on good, solid documentation for your case, "

says . " In my experience, the doctors have always been cooperative, and the

congressmen show interest (because you are their constituent). By becoming

well-informed and educated about Marfan syndrome and the social security system,

you can really help your cause. "

Providing Medical Evidence to Social Security

A Guide for Health Professionals

(You may want to print this out and give it to your doctor. This is what your

doctor needs to know when filling out statements & records for SS. The following

was WRITTEN FOR doctors and other medical professionals.)

When an individual applies for Social Security disability benefits, we must

decide whether he or she is disabled under the law. We base our decision on

information you provide and other evidence, including information provided by

the individual. The following guidelines will help you understand the kind of

information we need to evaluate claims filed

DEFINITION OF DISABILITY Under Social Security law, an individual is considered

disabled if he or she is:

-- unable to do any substantial gainful work activity because of a medical

condition (or conditions), that has lasted, or can be expected to last, for at

least 12 months, or that is expected to result in death;

-- or, in the case of an individual under the age of 18, if he or she suffers

from any medically determinable physical or mental impairment of comparable

severity.

The medical condition(s) must be shown to exist by means of medically acceptable

clinical and laboratory findings. Under the law, symptoms alone cannot be the

basis for a finding of disability, although the effects of symptoms may be an

important factor in our decision whether a person is disabled.

If the medical evidence alone shows that a person is clearly disabled or not

disabled, we decide the case on that information. Otherwise, we go on to

consider other factors, such as functional capacity in light of the person's

impairment(s), age, education, and work background. For a child under age 18, we

generally consider the child's ability to function independently, appropriately,

and effectively in an age-appropriate manner.

WHAT WE NEED FROM THE MEDICAL PROFESSIONALS We need information from you that

will help us to determine the existence, severity, and duration of the person's

impairment(s).

Your report should include a thorough medical history, and all pertinent

clinical and laboratory findings (both positive and negative) from your

examination of the person. Copies of laboratory results should be provided if

available. Also, provide the results of any mental status examination, including

any psychometric testing.

Longitudinal clinical records and detailed historical notes discussing the

course of the disorder, including treatment and response, are very useful for us

since we are interested in the impact of the illness over a period of time.

Additionally, any information you are able to provide contrasting your patient's

medical condition and functional capabilities since the onset of illness with

that of his or her prior status would be helpful.

You should also include a statement of your opinion about what work-related

activities the person can still do despite his/her impairment. Tell us your

opinions about both physical and mental functions and, to the extent possible,

the reasons for your opinions, such as the clinical findings and/or your

observations of the person. These opinions should reflect the person's abilities

to perform work-related activities on a sustained basis, i.e., 8 hours/day and 5

days/week. Your descriptions of any functional limitations you noted throughout

the time you treated the patient are very important. Examples of work-related

functions include:

1. Physical work-related functions: Walking, standing, sitting, lifting,

pushing, pulling, reaching, carrying, and handling.

2. Mental work-related functions: The ability to understand, remember, and

carry out simple instructions, the ability to use appropriate judgment, and the

ability to respond appropriately to supervision, co-workers, and usual work

situations, including changes in a routine work setting.

SSA can pay a reasonable amount for reports (or copies) of medical evidence

requested from physicians/psychologists, hospitals, and other non-Federal

providers of medical services.

The Effects of Being Disabled

Drugs * Anxiety * Bladder Problems * Lack of Concentration * Colostomys and

Illeostomys * Confusion * Depression * Diarrhea * Dizziness * .Drowsiness *

Eye-Hand Coordination * Fatigue * Grasping * Headaches * Memory Loss * Numbness

* Pain * Poor Stress Tolerance * Skin Conditions

END

Will my benefits be cut off?

The biggest fear for most people who receive Social Security disability benefits

is that they will be cut off benefits. What are the chances of this happening?

Social Security is supposed to review most people receiving Social Security

disability benefits at least every three years. Even recipients who are

permanently disabled are supposed to be reviewed at least every seven years. In

recent years, Social Security has been so short of money that there have been

few reviews. This will probably change in the next few years. Congress is

putting pressure on Social Security to review more cases. Congress may even give

Social Security the money it needs to do this.

One of the reasons Social Security has been reluctant to do more continuing

disability reviews is that it is difficult to cut off disability benefits.

Social Security must prove that a person has improved. When Social Security has

done reviews, it has found that more than 90% of the people it reviews have not

improved. There is some chance that Congress will change the standard to make it

easier to cut off disability enefits.

What can people who are now receiving Social Security disability benefits do to

protect themselves against being cut off?

1) If you get better and feel like going back to work, of course, go back to

work. Just let Social Security know you have gone back to work. Social Security

won't cut off or even reduce your regular Social Security disability benefits

until you have been back at work for a year.

2) If you can't go back to work, at least keep seeing your doctors on a

regular basis.

3) If you get a notice that you are being reviewed, don't panic, the odds are

excellent that your benefits will be continued.

4) If Social Security does try to cut you off, call us right away. Don't

delay. Your benefits can continue while you appeal, if you file your appeal

within ten days after you receive the notice cutting off your benefits.

5) Try to save some money. You may need the money to pay attorney fees and to

keep going if Social Security tries to cut you off. This information is not

legal advice, but for information purposes only. This information is from AOL

SSD BB-C. Hall

Putting together your SS packet

Have you ever heard the saying " Too much is never enough? "

I think this must have been in reference to SS.........overload them with paper

work, and they will still ask for more. Send them everything but in an organized

info pack.

My son and a friend helped me put my SS info pack together. It took a lot of

time and energy, but it worked. I used (2) three inch binders and sectioned

everything with tabs.

1. Cover sheet with name, SS#, date I stopped working and diagnosed diseases

listed.

2. A list of ALL medications including over the counter meds and even eye drops

for Sjogrens, etc. Next to each I listed what they were prescribed for, doctor

who prescribed them, dosage and any side effects I experienced. Behind this

sheet I included the drug info sheet. It is usually given with the prescription

or you can locate information on the Internet.

3. Disease information sheets which explained each of my diagnosed diseases,

their symptoms, prognosis, etc. I highlighted the important parts of each. You

can get this information from your doctors or Internet sites.

4. Statements on how my illness had changed everything in my life. There were 3

written statements: Myself, son and a close friend.

5. Doctor statements and Residual Functional Capacity Questionnaires. Each of my

doctors (5) filled out a RFCQ and on their letterhead stationary type a

statement about my diseases, symptoms, prognosis, that the diseases would last

longer than 12 months and I could NOT engage in any substantial gainful

activity.

6. All Medical records-doctor notes, labs, hospitals, tests and x-rays. The

doctors were sectioned by type, with most important first. Most recent records

were first. Important factors were highlighted in all medical records.

7. Copies of all applications and letters sent to SS. Also copies of SS criteria

for each of my diseases.

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