Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 Chris I wish you luck in your mission. It took me 15 years to convince anybody that I had cp. In the meantime I read as much as I could about it and worked out that until I actually needed digestive enzymes, I had to take charge of the condition myself. If I had listened to my own instincts and not decided that " they " must be right, and that it was all in my head, I would probably not be as badly off as I am now. Somewhere along the path, I actually managed to get my GP to test for loss of fat (can't think of the correct name for it), the result of which was the prescribing of Cotazym. But it took a few more years to finally have a CAT scan, which showed there was indeed something wrong. The only kind of advice I have received that was of any use to me, was to have my ferritin levels checked every 3 months. I have been diabetic for 48 years and had cp for about 20. I am still convinced it was an adverse reation to steroids that caused cp for me. Apart from the fact I wasn't told I was being prescribed steroids at the time, none of the medicos I have spoken to will accept that it was the steroids that caused it. Seemingly I am one of the few who is particularly sensitive to steroids. Cheers Ethne Quote Link to comment Share on other sites More sharing options...
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