Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Dana, When Eilish was dx, our lovely Gp told the news (I didn't go). He said it wasn't to bad, only a few dietary changes. If only. (Australia) Re: Doctors ignorant of Cf - I have 1 t tell Ok you want to hear about Drs ignorant of CF. When Jesscia was diagnosed in at 2 mths in 1990, my mother in law went to their dr. in their small town and asked him about it and his answer to her was " she'll grow out of it " Therefore leaving me with the job of explaining other wise and at that time I was having to deal with it myself and my mother telling me what to do. I wanted to tweek that doctors nose. Dana, soon to be 13 w/cf Philip 6 wo/cf > We went out to dinner this evening with my boss and his wife who are > both GP's. My bosses son (ENT Surgeon), his wife (GP), other son > (Orthopaedic surgeon) his wife (Ortho. surgeon). They chatted to me > about cf and were very interested to find out things. Even the GP's > said they don't know much about Cf, as most cf kids go through the > clinics. So I got a chance to tell them about the enzymes and salt > powder as I was doing it. I still heard the usual " she looks so good, > so much energy. So that saying never stops. At least I got a chance to > speak with (Eilishs ENT) about when her surgery would suit us (have > to have some perks). My parents came also. My dad got a free > consultation, which is good for him. If one of us had a heart attack > we'd be crushed in the stampede. > > Also one of the usual dr's that come didn't come. Their son was > diagnosed three months ago with inoperable cancer of the and he is in a > wheel chair and cant talk. They expect him to die any day. That was > very sad and made me appreciate Eilish all the more. You just never > know what's around the corner. This poor guy passed his dr's > examination 2 months ago while he was lying dying in a hsp bed. > > Anyway sorry about that depressing story. Just wanted to remind myself > actually how lucky we are. Even though I hate Cf and would do anything > to remove it, things could be worse. > > > > > Quote Link to comment Share on other sites More sharing options...
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