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Hello everyone! I just joined this list not too long ago. I see quite a few

people from Iowa on the list. I am writing from Dallas Center, IA (just 20

minutes west of Des Moines). Where is everyone else from?

My has CF and she is 4. She cultured pseudo last clinic and is on

colistin and cipro. yuck! Her intestine ruptured in utero and thank goodness

for a emergency csection (due my failure to dialate) or we both would have been

injured or worse.... After a blood test - wala! CF entered our lives

*ggggrrrrrrr!*

We did a little procedure called PGD to conceive our next child. She will be

born in May with NO CF! Yay! Of course, you all know how us CF parents

think... " yeah, but something else could go wrong... " Anyway, I will try not to

worry too much and just enjoy while the little girl is kicking around inside of

me.

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In a message dated 1/28/2003 12:04:21 AM Central Standard Time,

JCx2.IN.DC@... writes:

> Hello everyone! I just joined this list not too long ago. I see quite a

> few people from Iowa on the list. I am writing from Dallas Center, IA

> (just 20 minutes west of Des Moines). Where is everyone else from?

>

> My has CF and she is 4. She cultured pseudo last clinic and is on

> colistin and cipro. yuck! Her intestine ruptured in utero and thank

> goodness for a emergency csection (due my failure to dialate) or we both

> would have been injured or worse.... After a blood test - wala! CF entered

> our lives *ggggrrrrrrr!*

>

> We did a little procedure called PGD to conceive our next child. She will

> be born in May with NO CF! Yay! Of course, you all know how us CF parents

> think... " yeah, but something else could go wrong... " Anyway, I will try

> not to worry too much and just enjoy while the little girl is kicking

> around inside of me.

>

Hi I am in Iowa we are about 13 miles south of Iowa City. We go to the

University of Iowa. I have two daughters with CF and one that does not. They

are 10 w/CF, 8wo/cf, and 5 w/CF. My oldest was 6 when she was diagnosed and

my youngest was just a year old when CF entered our life's YUCK! I am so glad

that this PGD is offered now because at least you have some kind of

alternative to having a healthy baby. Deb A

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awsome, how many times did you try for your second baby??

mum to Liam 5 months and baby angel Lily both CF deceased 8 days old old

Re: just joined list...

-

This may be a stupid question, what it PGD? It is similar to invitro?

~Wendi

Mom to Peyton 2 wcf

Iowa

> Hello everyone! I just joined this list not too long ago. I see

quite a few people from Iowa on the list. I am writing from Dallas

Center, IA (just 20 minutes west of Des Moines). Where is everyone

else from?

>

> My has CF and she is 4. She cultured pseudo last clinic

and is on colistin and cipro. yuck! Her intestine ruptured in utero

and thank goodness for a emergency csection (due my failure to

dialate) or we both would have been injured or worse.... After a

blood test - wala! CF entered our lives *ggggrrrrrrr!*

>

> We did a little procedure called PGD to conceive our next child.

She will be born in May with NO CF! Yay! Of course, you all know

how us CF parents think... " yeah, but something else could go

wrong... " Anyway, I will try not to worry too much and just enjoy

while the little girl is kicking around inside of me.

>

>

>

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Hi ,

thanks for introducing yourself to the list! With all those newbies

on the list recently I wished that more would write at least a short

intro.

I totally agree about the fears of us CFparents about what can go

wrong with a new baby. When you have " hit the jackpot " once, every

rare but possible problem seems to wait just around the corner. Here

is hoping for the both of us that we worry without reason.

Peace

Torsten, dad of Fiona 5wcf and a boy due in May

> Hello everyone! I just joined this list not too long ago. I see

quite a few people from Iowa on the list. I am writing from Dallas

Center, IA (just 20 minutes west of Des Moines). Where is everyone

else from?

>

> My has CF and she is 4. She cultured pseudo last clinic

and is on colistin and cipro. yuck! Her intestine ruptured in utero

and thank goodness for a emergency csection (due my failure to

dialate) or we both would have been injured or worse.... After a

blood test - wala! CF entered our lives *ggggrrrrrrr!*

>

> We did a little procedure called PGD to conceive our next child.

She will be born in May with NO CF! Yay! Of course, you all know

how us CF parents think... " yeah, but something else could go

wrong... " Anyway, I will try not to worry too much and just enjoy

while the little girl is kicking around inside of me.

>

>

>

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-

I am also from Iowa. I live in Batavia, it's a small town near

Ottumwa.

~Wendi

Mom to Peyton 2 wcf

Iowa

> Hello everyone! I just joined this list not too long ago. I see

quite a few people from Iowa on the list. I am writing from Dallas

Center, IA (just 20 minutes west of Des Moines). Where is everyone

else from?

>

> My has CF and she is 4. She cultured pseudo last clinic

and is on colistin and cipro. yuck! Her intestine ruptured in utero

and thank goodness for a emergency csection (due my failure to

dialate) or we both would have been injured or worse.... After a

blood test - wala! CF entered our lives *ggggrrrrrrr!*

>

> We did a little procedure called PGD to conceive our next child.

She will be born in May with NO CF! Yay! Of course, you all know

how us CF parents think... " yeah, but something else could go

wrong... " Anyway, I will try not to worry too much and just enjoy

while the little girl is kicking around inside of me.

>

>

>

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-

This may be a stupid question, what it PGD? It is similar to invitro?

~Wendi

Mom to Peyton 2 wcf

Iowa

> Hello everyone! I just joined this list not too long ago. I see

quite a few people from Iowa on the list. I am writing from Dallas

Center, IA (just 20 minutes west of Des Moines). Where is everyone

else from?

>

> My has CF and she is 4. She cultured pseudo last clinic

and is on colistin and cipro. yuck! Her intestine ruptured in utero

and thank goodness for a emergency csection (due my failure to

dialate) or we both would have been injured or worse.... After a

blood test - wala! CF entered our lives *ggggrrrrrrr!*

>

> We did a little procedure called PGD to conceive our next child.

She will be born in May with NO CF! Yay! Of course, you all know

how us CF parents think... " yeah, but something else could go

wrong... " Anyway, I will try not to worry too much and just enjoy

while the little girl is kicking around inside of me.

>

>

>

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