Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 My son Josh wcf wet the bed until he was almost 7. My Dr. told me he thought it could be because the bowels are so full all the time it presses on the bladder and the bladder can't hold as much as it normally would. I don't know, he wasn't sure just a theory. Josh now 9 never wets the bed. Mom to Josh 8 1/2 wcf and 3 1/2 nocf but wants to do therapy for his brother. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 I have a question. My twin girls w/CF suffer from on-going bed-wetting (luckily only at night). We have them on DVAP (nasal drops) which helps, but at 10 years old, it definitely affects their self esteem and infringes on their social life. I feel like this is an under-researched or discussed area in the CF world. Comments? Suggestions? Ideas? (Any Docs out there reading? What do you think? Latest research?) Although not life-threatening, I wish they didn't have to suffer with this problem. Bless their hearts, they get up, sometimes several times a night to change their own sheets. Thanks, Marilyn -Hampton (Aside: Did anyone see the Genetech ad of my two girls? Most of the Western Region papers in California are carrying it through March.) Marilyn M. -Hampton Counselor, Miramonte High School mlewis-hampton@... Nigel is only in the reserves now, although if he had the choice he would be back in again. I have said that he can rejoin but I am staying put, any postings would be Darwin or Nth Qld. Each state or even unit area tend to look after housing so possibly check your local phone book or ring the local defence base be it army navy or RAAF Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Hye, I know there is a medical study going on of bed wetting associated to CF. This study occurs in Belgium, but i didn't heard of any results yet. I know becaus i got a to fill in survey mysel. Greets, Stefaan Nigel is only in the reserves now, although if he had the choice he would be back in again. I have said that he can rejoin but I am staying put, any postings would be Darwin or Nth Qld. Each state or even unit area tend to look after housing so possibly check your local phone book or ring the local defence base be it army navy or RAAF Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 This is really interesting that you wrote this now. I have been wondering about my own daughter's bed-wetting and if it could be related to CF at all. I was just at clinic last week and forgot to ask. Mycah will be six next month. I'm not sure how it could be related to CF, but I guess anything is possible. Could you tell me more about DVAP? I am not familiar with it. Thanks. Lori in Florida Nigel is only in the reserves now, although if he had the choice he would be back in again. I have said that he can rejoin but I am staying put, any postings would be Darwin or Nth Qld. Each state or even unit area tend to look after housing so possibly check your local phone book or ring the local defence base be it army navy or RAAF Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 One more mom wondering if this is cf related, my daughter is 7 ½ and still wears a pull-up to bed at night. Some nights she may be dry, other nights she will get up and go to the bathroom, but most nights she fills it up. I have tried not putting a pull-up on her, getting her up every few hours to go, but she is such a sound sleeper that when she gets up she's not awake enough to go. I have asked her regular pediatrician a few times about it and he didn't think it was such a big deal, but I never even thought about it being cf related. My son is 4 w/ cf and he also wets at night. Are they just too lazy to get up and go to the bathroom or is there something else here that we haven't thought of? Trish, mom to Presley 7 ½ w/cf and Dylan 4 w/cf, short gut, asthma, and a SEVERE peanut allergy. Re: Digest Number 2317 This is really interesting that you wrote this now. I have been wondering about my own daughter's bed-wetting and if it could be related to CF at all. I was just at clinic last week and forgot to ask. Mycah will be six next month. I'm not sure how it could be related to CF, but I guess anything is possible. Could you tell me more about DVAP? I am not familiar with it. Thanks. Lori in Florida Nigel is only in the reserves now, although if he had the choice he would be back in again. I have said that he can rejoin but I am staying put, any postings would be Darwin or Nth Qld. Each state or even unit area tend to look after housing so possibly check your local phone book or ring the local defence base be it army navy or RAAF Terri Quote Link to comment Share on other sites More sharing options...
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