Re: Doctors ignorant of Cf - I have 1 t tell

[Guest guest]

In a message dated 1/27/2003 6:41:05 AM Central Standard Time,

jandpb9096@... writes:

> Ok you want to hear about Drs ignorant of CF. When Jesscia was

> diagnosed in at 2 mths in 1990, my mother in law went to their dr. in

> their small town and asked him about it and his answer to her was

> " she'll grow out of it " Therefore leaving me with the job of

> explaining other wise and at that time I was having to deal with it

> myself and my mother telling me what to do. I wanted to tweek that

> doctors nose.

>

> Dana, soon to be 13 w/cf Philip 6 wo/cf

I know what you mean about wanting to tweak a doctors nose last week when I

took in for her first check since her polyp surgery. The resident

that came in to see here before her regular doctor came in asked me the usual

question and then he said and we need a throat culture too and I said yes but

we also need a nose culture and he said well there is not an order for a nose

culture and I said well we need one and he said well I don't see a need for

it they did one when she was in surgery. Let me tell you I think steam was

coming out of my ears and I said to him listen we have been fighting

psuedomonas in her nose for the last year I don't care that you don't have an

order I want to know if there is still psuedomonas in her nose if you know

anything about CF that is what we are constantly fighting to get rid of and I

want to make sure it is gone. He didn't say one word and walked out of the

room LOL WHAT A JERK! Deb A

[Guest guest]

Ok you want to hear about Drs ignorant of CF. When Jesscia was

diagnosed in at 2 mths in 1990, my mother in law went to their dr. in

their small town and asked him about it and his answer to her was

" she'll grow out of it " Therefore leaving me with the job of

explaining other wise and at that time I was having to deal with it

myself and my mother telling me what to do. I wanted to tweek that

doctors nose.

Dana, soon to be 13 w/cf Philip 6 wo/cf

> We went out to dinner this evening with my boss and his wife who are

> both GP's. My bosses son (ENT Surgeon), his wife (GP), other son

> (Orthopaedic surgeon) his wife (Ortho. surgeon). They chatted to me

> about cf and were very interested to find out things. Even the GP's

> said they don't know much about Cf, as most cf kids go through the

> clinics. So I got a chance to tell them about the enzymes and salt

> powder as I was doing it. I still heard the usual " she looks so

good,

> so much energy. So that saying never stops. At least I got a

chance to

> speak with (Eilishs ENT) about when her surgery would suit us

(have

> to have some perks). My parents came also. My dad got a free

> consultation, which is good for him. If one of us had a heart

attack

> we'd be crushed in the stampede.

>

> Also one of the usual dr's that come didn't come. Their son was

> diagnosed three months ago with inoperable cancer of the and he is

in a

> wheel chair and cant talk. They expect him to die any day. That

was

> very sad and made me appreciate Eilish all the more. You just never

> know what's around the corner. This poor guy passed his dr's

> examination 2 months ago while he was lying dying in a hsp bed.

>

> Anyway sorry about that depressing story. Just wanted to remind

myself

> actually how lucky we are. Even though I hate Cf and would do

anything

> to remove it, things could be worse.

>

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